Discussions By Condition: Heart conditions

Wpw

Posted In: Heart conditions 21 Replies
  • Posted By: Anonymous
  • September 28, 2006
  • 11:57 PM

I have had surgery for this condition. I had the surgery almost ten years ago. Does scar tissue start to form? I've been having problems. My current family doctor has me on the beta blocker called Antenol. I believe this is the incorrect type of Beta Blocker I should be on. Has anyone else had experiences with this medication?
Thank you,
Angelia

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21 Replies:

  • I too had open heart about 20 yrs ago. I have been having "spells" again and I am wondering if the condition can come back? My doctor died in a plane crash a few months ago. Please let me know if there is anyone having this problem.brinkleyfelicia@yahoo.com
    Anonymous 42,789 Replies
    • October 25, 2006
    • 01:58 AM
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  • Hi my Mum suffers from WPW although taking med she has attacks often very strong and long , passing out few time while attack , vomiting, pain in chest,heart rate over 200, dry mouth , cold body and lips getting dark blue . she has is since 40 years and no doctor could ever help ,they only say it is WPW you have to live with it :eek: , i believe she is alive only by God's will :) my question is does she really have to suffer like this ? we all are so worried about every next attack comming , what kind of operation has to be done to "fix" the heart ? what med is good , the one she has is not so great it seems , how to help her ? i can't look how she suffers because of this i suffer from anxiety :( thank you for any answer salma
    Anonymous 42,789 Replies
    • October 31, 2006
    • 00:18 PM
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  • I had WPW and suffered from a attacks. You can have surgery to cure the syndrome. I had a catheter ablation and have been great ever since. But there are only specialized doctors who perform the surgery so you'll have to find an electrocardiologist
    Anonymous 42,789 Replies
    • November 15, 2006
    • 09:38 PM
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  • thank you very much for the answerquestion i have according to the catheter ablation, is it safe in the age of 57 ? thank you , Salma
    Anonymous 42,789 Replies
    • November 18, 2006
    • 07:20 AM
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  • HI I was diagnosed with wpw when I was 11 years old, I took atenolol until I was 16 but it stopped working so I had the surgery (oblation) a couple of years after I had the surgery I would have these short breakthroughs and now I am 24 and I was just rediagnosed with wpw, apparently it can come back so I have to have some more tests done and see what my options are.
    Anonymous 42,789 Replies
    • January 31, 2007
    • 02:09 PM
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  • Hi I Was Born With Wpw And Was In And Out Of Hospital A Lot As A Baby Up To The Age Of 3. Then It Came Back At About 15 Years Old And I Was Put On Flecanide Acetate And Had Surgery At 19 Years Old Which Cured It. I Am Rather Shocked Now Though To Read That It Can Come Back As I Was Never Told This. Touch Wood I'll Be Ok Though.
    Anonymous 42,789 Replies
    • February 13, 2007
    • 11:34 AM
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  • i was also born with wpw and ive had some really bad episodes , ive had heart beats over 250 beats a minute , i had the surgery about 4 years ago and mine is back, i was in surgery for six hours , they said mine is in a really bad spot so it was very dificult to get too, my spells ive had latley havent been bad , but they scare the crap out of me any way, mine get so bad i have to go to the hospital to get them to slow it down, has any one had any spells while they were sleeping and get woke up, i have never met anyone with this and i would like to talk with someone who has this , i am 36 years old , my name is wes and my email is wshelton_11@sbcglobal.net , im just wondering how or if anyone out there can stop theres every time they have one , i had a little luck in stopping some but when they get in a rythom i cant stop it and i just go to the hospital , and it scares me to death everytime, i really dont want to have the surgery again, but what do you do , and would it come back again, thanks for listening to me ramble , wes
    Anonymous 42,789 Replies
    • February 27, 2007
    • 01:56 AM
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  • I had WPW and suffered from a attacks. You can have surgery to cure the syndrome. I had a catheter ablation and have been great ever since. But there are only specialized doctors who perform the surgery so you'll have to find an electrocardiologistI just read the above that was written, ive never been on this site before. about 9-10 yrs ago i was diagnosed with WPW and sicne then ive had a close friend of mines mother die from it, my grandmother also has it. and i hear is not very common, BUT ive been seeing a doctor now for the last 3 1/2 yrs and after 3 1/2 yrs he NOW thinks i dont have WPW but i do have SVT , but i have all the symptoms of WPW, terrible terrible chest pains, where i cannot breath or even move certain ways, fast irregular heart beats, skipped beats and double beats , im now awaiting more test results from my spiral chest CT scan, echo and holter monitor, i dont know if someone could help but ive never been put on meds and iver never had any surgery for it. Heart disese runs in my family my aunt is in congestive heart failure right now and shes not even 40 yet. doctors wont do anymore serious surgeries on her nemore since shes had 5 triple bipass surgeries. i just dont know if im not being diagnosed right or what, and i have to worry since i have a 2 1/2 yr old son to care for. thanks, Crystal from Maryland
    Anonymous 42,789 Replies Flag this Response
  • Hi All iam 26 years old now and i and was diagnosed with WPW when I was 15. Through the years my symptoms got worse, such as a very fast heart rate.and many times at the day but there was a very old doctor told me a way to stop it and its really work with me its strange he told me to press hardly on my eyeand it really stops the attack> dont worry its painful but not hearting >My question is ? is this cae prevent from making love with your wife ? is this case prevent to make any hard things or running or playing football or swiming ???is the surgry good or useless ? pls help me iam afraid from every thing on my life
    Anonymous 42,789 Replies Flag this Response
  • :( (I have also posted this in other forums...hoping for good advice) "We are hoping someone can give us some sage advice. Our 12 year old son has had heart palpitations randomly over the last 18 months or so. When they happen, it scares him immensely, as it does us also. It feels as though his heart is pounding through his chest. We have taken him to the ER a couple of times and nothing comes of that. The symptoms disappear or someone associates it with going into puberty. When it occurs he also complains of the chest pain and tightness. His heart rate also is abnormally high. He is not a couch potato and is about 61" tall and weighs 90 pounds. He is a competitive swimmer and plays soccer here in Germany (oh yeah, this is the other issue). He is extremely intelligent and has been reading at the 12+ grade level since 4th grade.We are Americans and we live in Germany. We have made several trips back to the U.S. over the last 4 years for medical reasons, but for a sibling (not heart related). There are either too few or NO pediatric cardiologists in the U.S. system over here and because I am retired from the military and a DoD civilian, we are at the bottom of the list for health care in the military system. Besides the fact that they are understaffed and overworked also.Please ... someone out there provide us some good advice. We are familiar with the Children's Hospitals in Boston and Cincinnati.We will continue to pursue local avenues here in Germany, but hope that we will be able to get the proper diagnosis from SOMEONE. BTW... he suffered these same symptoms Saturday night, but because he felt good Sunday morning, he left for a week at Boy Scout camp. We are extremely concerned.:( Oh yeah... he also has a 15 year old cousin (female) who was diagnosed with WPW and underwent the corrective surgery. Please Help!M in Germany"
    m6lacy 2 Replies Flag this Response
  • http://www.facebook.com/group.php?gid=3989308077&ref=mf&pwstdfy=7627d01a26859e8aca7677f265c2470djoin my facebook group, I would like to discuss this condition with others.
    Anonymous 42,789 Replies Flag this Response
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  • Hi I am 23 years old and was diagnosed with WPW when I was 18. The electrocardiologist recommended I have the catheter ablation surgery but I elected not to. Thankfully my symptoms have not worsened and have actually subsided. I think the hardest part of the ordeal was actually getting diagnosed. Several trips to the emergency room and some intern telling me that I had taken speed is a little to hard to handle. I have found that whenever I have an "attack" it helps to lie down, close my eyes, and take slow deep breathes concentrating on controlling my heart rate. Yes, it can be done. I've also noticed the attacks are not always brought on by stress and physical activity but occur randomly. I work a manual labor job and I've had more attacks watching TV or using the computer. This may not be the case for everyone. I've also noticed that I had attacks more regularly when I used alcohol or marijuana. Always a good time to quit when you think your dying :) Hope this info helps someone.
    Anonymous 42,789 Replies
    • August 13, 2007
    • 04:03 AM
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  • I had WPW and suffered from a attacks. You can have surgery to cure the syndrome. I had a catheter ablation and have been great ever since. But there are only specialized doctors who perform the surgery so you'll have to find an electrocardiologisti am having a heart catherer abulation to stop my afib is that what you had and can you tell me was it scary or hard to go through did you know right away you were cured how long did it take to find out are you on medicinefor it still would you recommend it to someone to have done thanks jean
    Anonymous 42,789 Replies
    • January 21, 2008
    • 08:31 PM
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  • Lots of scared and confused postings on this board. A lot of misinfomation too.1st WPW is rare but it can be genetic so most likely you know someone in your famiy with the same thing.2nd because WPW is rare most Doctors don't really know much about it other than the page they read about it during med school. These days in the US WPW is found at a very young age and ablated before they are teenagers so Adults with WPW is even more rare, causing even less Doctors that know much about WPW.3rd WPW comes in all shapes and sizes. You ablation isn't like mine, and mine isn't like the other guys. The is WPW and there is Concealed WPW, you can alsp have A-Fib or V-Fib etc etc. Each combonation having it's own solutution and levels of concern.4th Ablation is not surgery. It is a simple proceedure that you have in one day and walk out of the hospital by yourself. It is like having your knee scoped. Nothing you should fear. When you go to the Cath Lab to get your ablation you'll find out that everyone there is like "ah, it's nothin". 4th, IF YOU HAVE WPW and have "attacks" GO GET IT FIXED! Having a fast heart rate all the time will wear out the muscle and you will die sooner. Your heart only has a certian amount of heart beats in it. Don't use them all up on WPW.I have WPW and passed it on to my son. I have had two ablations and my son has been on meds since he was 2. If you have any questions about being a WPW patient let me know...
    Anonymous 42,789 Replies
    • February 18, 2008
    • 11:55 PM
    • 0
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  • hi all..i myself had an ablation 8months ago after having been dianosed at the age of 44.although this seems to have been sucessful i am constantly tired and still get a racing pulse in my neck along with a dry mouth and the weirdest feeling in my throat which i cannot decribe...do any of you have this also....my 10yr old son has been having random palpitations lately too. we are waiting to see a cardiologist,so fingers crossed i havent passed this on to him...im also interseted to no how any parent has found this rare syndrome in a child as young as 2..best wishes jacky230@hotmail.co.uk
    Anonymous 42,789 Replies Flag this Response
  • After the ablation, you must wait at least a few weeks to heal internally. WPW can reoccur. Ablation has to be one of the best remedies for heart abnormalities of all time.I have had 2 for my WPW.
    Anonymous 42,789 Replies Flag this Response
  • i normally don't respond to message boards of any kind, but i felt compelled to offer some advice and hopefully clarification on this matter, as i do sympathize with many here.i work in the field of cardiology and just some advice to all. if anyone carries the diagnosis of wpw and the symptoms are bothersome, you need to see a cardiologist, and specifically an electrophysiologist ("EP"). the EP doc is a specialist in this field and can perform catheter ablation to terminate this rhythm. the success rate often varies with each individual, and the ease of ablating the abnormal pathway. that is why some people are rapidly cured, and have not had any problems for years, and others may recur. an EP doc is also a specialist in all heart rhythms, so if you have atrial flutter, atrial fibrillation, svt, etc., they can also help you with that. good luck to all.
    Anonymous 42,789 Replies Flag this Response
  • Hey guys. I'm 25 and 2 days after my 23rd birthday I was diagnosed with WPW. Apparently my AV Node wasn't working correctly as well. Needless to say I've undergone 4 Catheter Ablations and a pacemaker implant. (I had over 15 extra pathways) Now, I am still have issues (shortness of breath, lightheaded, chest pains) and my dr. just says to take Toprol right now and see what that does. My WPW is a more severe case, and from what my VERY experienced dr. tells me, my case is REALLY rare. Anyway, just kind of letting you guys know, WPW can sometimes take more than 1 surgery or more than 1 medication to fix it. Hang in there, these guys know what they're doing. Frustrating, scary, and annoying I know, but they will find yoru cure.
    Anonymous 42,789 Replies
    • September 22, 2008
    • 02:17 PM
    • 0
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  • I have wpw and my doctor told me that you can stop the fast heartbeats by stimulating the vegas nerve by pressing on your eyelids or by immatating throwing up or your constipated i know it sounds weird but it works
    Anonymous 42,789 Replies Flag this Response
  • Hi I have read several statement and I would like to share my story about WPW. I had my first spell when I was 16 yrs old. I didn't go to the doctors because I though it was a reaction to a drug I had taken. I the had my second attack 5 years later when I was in South Korea in the US Army. I was given the option to take medicine the rest of my life or have the surgrey. I chose the surgrey.The US Army then sent me to Washington DC to Walter Reed Hospital where I had a team of cardiologist and an electrologist perform the 3 hour procedure. I was sent home that same day and next day I was flying back to Korea. Since then I have stayed in the Army. I currently work out two times a day and run 15-20 miles a week. I have not had anymore episodes.
    Anonymous 42,789 Replies
    • January 28, 2010
    • 01:43 AM
    • 0
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