Discussions By Condition: Headache

Headache for over a year and a half non stop. As in it never stops.

Posted In: Headache 0 Replies
  • Posted By: Shainalovesmusic
  • September 22, 2013
  • 11:49 PM

Hi. I'm 19 years old and have been having a Migraine like headache since I was 17 years old. My name is Shaina by the way. My headaches literally never stop. They are 24/7 365 days a year. There have been only a few things we've tried that's had any break through but it seems like that's just making everyone more confused.

Past treatments-

Three spinal taps, the first got rid of it for four months and I was diagnosed with Psuedo tumor cerebri but it came back.
Chiropractic would relieve it for a few hours then stopped working.
MRI of my head
Immitrex(did seem to reduce auras)
Steroid injections
Cervical epidural coming up on Tuesday!
Birth control
Fiorocet for pain (we are careful to prevent rebound headaches)
I've lost track of everything else but we're packing up I see our second doctor at a high profile hospital next month.

Headache, right side only.
Light and sound sensitivity
Muscle weakness
Loss of feeling on the right side of my head and neck
Neck pain
Irregular periods(I got one for five weeks one time!)
Joint pain
Depression, but that's always been there.
Jaw clicking

Past injuries-
I've never had a broken anything but I've taken a few mighty bad tumbles with horse back ridings, smacked myself in the head with drill rifles(yay JROTC) and when I was a baby a metal chair fell on my head. There's more, too many to list. My orthodontist said when he took jaw X-rays he saw a healed fracture?

Other medical problems-
Irregular periods.

I get random times where the pain is more intense, sometimes if I crack my neck it gets worse, and it's just unbearable. We can't even have a fan on in the house.

I used to be so healthy before all of this started and now my life has just stopped. If I leave the dark room we have set up the pain from the light and sound becomes too much and I vomit everywhere and passout/almost passout.
We've adapted pretty well, we have captioning on the tv, I have my own bathroom, an iPhone with a screen dim thing taped on so I can keep in tough with the friends that have forgotten about me. But I'm just tired of this. I didn't get to graduate highschool or go to prom, I've missed out on everything and everyone is just taking so long.

Any ideas?

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.