Discussions By Condition: Headache

HEAD PAIN -- It's not a headache, but does lead to them.

Posted In: Headache 34 Replies
  • Posted By: Princess Momma
  • September 20, 2008
  • 04:06 PM

So, I've been looking around online for about 2 months now and have yet to find anyone who had gotten help for this, just wondering if anyone here has.

For 2 months I have had a PAIN on the top of my head (since then I now have 3 spots). They are all about the size of a quarter. The best way I can explain them is like being hit on the head with a sharp rock (yes, I know what that feels like.) These pains are constant... every waking moment, and without any pain management (one one has really helped) wakes me up at night too.

The pains usually led to headaches and then at times to migraines. Since I was diagnosed with migraines since I was 14 most doctors zoom in on that and start treatment for those. None of these has helped. MRI 9w/out contrast) and CT are normal.

No one I've talked with personally has known anything like this (so, I don't get much unasked for suggestions of what to do that will "take care of it"). Those online who I FINALLY found with the exact same conditions either still haven't got a diagnosis/treatments that's helped or haven't posted their great results.

Anyone here been through this? It's hard to get others/doctors to understand they are pains NOT HEADACHES to start off with. Yes, I get headaches, usually from the pains, but the pains are still there even without ANY headache.

I have an appointment at the Mayo Clinic, but that's at the end of October. My husband plans to take sleeping bags, because he says we're not leaving until they figure out what's wrong.

Any thoughts or experiences to share out there?

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