Discussions By Condition: Fibromyalgia

How come I can't get a diagnosis?

Posted In: Fibromyalgia 3 Replies
  • Posted By: twogreatkids
  • April 28, 2008
  • 02:32 AM

:confused:
I'm 27 years old I have seen numerous doctors including neurologists! No one has ever been able to tell me whats wrong but they never hesitate to look at me like I'm crazy when I tell them my symptoms. The only thing I have been diagnosed with is depression, and quite frankly I don't think thats the biggest of my problems. My best friend had heard of fibro and told me it sounded just like me. I have now been out of work for over a year relinquishing a promising career in law enforcement.:( How come a a 27 year old opthamologist could see what a dozen Drs. couldn't?:mad:
I found a list of symptoms someone posted on someone elses thread and I will include it. Even I was amazed at how many things I had that I never thought could be caused by the same thing. I'm currently taking depression meds and fiorecet for the headaches but I'm not getting any relief from either. I'm a nonstrict vegetarian who takes multi vitamins everyday and has been active everday of my life what can I do please help!
You'd be surprised at all the symptoms for Fibro. Theres a great book called Fibromyalgia & chronic Myofascial pain a survival manual by Devin Starlanyl & Mary Ellen Copeland that dedicates an entire chapter to symptoms alone. Here's a checklist found on a cafemom fibro group that is now circulating on myspace between FMily. Some have a few, others have all.
GENERAL
__x__ Fatigue, made worse by physical exertion or stress
___x_ Activity level decreased to less than 50% of pre-illness activity level
____ Recurrent flu-like illness
____Sore throat
_x___ Hoarseness
__x__ Tender or swollen lymph nodes (glands), especially in neck and underarms
____ Shortness of breath (air hunger) with little or no exertion
_x___ Frequent sighing
____Tremor or trembling
_x___ Severe nasal allergies (new allergies or worsening of previous allergies)
____ Cough
_x___ Night sweats
____ Low-grade fevers
_x___ Feeling cold often
____ Feeling hot often
_x___ Cold extremities (hands and feet)
_x___ Low body temperature (below 97.6)
_x___ Low blood pressure (below 110/70)
_x___ Heart palpitations
_x___ Dryness of eyes and/or mouth -
____ Increased thirst
_x___ Symptoms worsened by temperature changes
____ Symptoms worsened by air travel
_x___ Symptoms worsened by stress
_x___ Hypoglycemia (low blood sugar attacks)
PAIN
_x___ Headache
____ Painful Menstruation
_x___ Tender points or trigger points -
_x___ Muscle pain
____ Muscle twitching
_x___ Muscle weakness
_x___ Paralysis or severe weakness of an arm or leg
_x___ Joint pain
_x___ TMJ syndrome
_x___ Chest pain
GENERAL NEUROLOGICAL
__x__ Lightheadedness; feeling "spaced out"
__x__Inability to think clearly ("brain fog") -
____ Seizures
____ Seizure-like episodes
____ Syncope (fainting) or blackouts
__x__ Sensation that you might faint -
__x__ Vertigo or dizziness
__x__ Numbness or tingling sensations
__x__ Tinnitus (ringing in one or both ears)
__x__ Photophobia (sensitivity to light)
__x__ Noise intolerance
EQUILIBRIUM/PERCEPTION
__x__ Feeling spatially disoriented
_x___ Dysequilibrium (balance difficulty)
____ Staggering gait (clumsy walking; bumping into things)
_x___ Dropping things frequently
_x___ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
_x___ "Not quite seeing" what you are looking at
SLEEP
__x__ Hypersomnia (excessive sleeping)
__x__ Sleep disturbance: unrefreshing or non-restorative sleep
__x__ Sleep disturbance: difficulty falling asleep
_x___ Sleep disturbance: difficulty staying asleep (frequent awakenings)
__x__ Sleep disturbance: vivid or disturbing dreams or nightmares
__x__ Altered sleep/wake schedule (alertness/energy best late at night)
MOOD/EMOTIONS
__x__ Depressed mood -
____ Suicidal thoughts
____ Suicide attempts
_x___ Feeling worthless
__x__ Frequent crying
__x__ Feeling helpless and/or hopeless
_x___ Inability to enjoy previously enjoyed activities
____ Increased appetite
__x__ Decreased appetite
__x__ Anxiety or fear when there is no obvious cause
_x___ Panic attacks
_x___ Irritability; overreaction
__x__ Rage attacks: anger outbursts with little or no cause
_x___ Abrupt, unpredictable mood swings
_x___ Phobias (irrational fears)
__x__ Personality changes
EYES AND VISION
__x__ Eye pain
_x___ Changes in visual acuity (frequent changes in ability to see well)
_x___ Difficulty with accommodation (switching focus from one thing to another)
____ Blind spots in vision
SENSITIVITIES
_x___ Sensitivities to medications (unable to tolerate "normal" dosage)
_x___ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
_x___ Sensitivities to foods
__x__ Alcohol intolerance
____ Alteration of taste, smell, and/or hearing
UROGENITAL
_x___ Frequent urination
_x___ Painful urination or bladder pain
____ Prostate pain
____ Impotence
____ Endometriosis
____ Unexplained Hematuria (blood in the urine)
_x___ Decreased libido (sex drive)

GASTROINTESTINAL
__x__ Stomach ache; abdominal cramps
__x__ Nausea -
____ Vomiting
__x__ Esophageal reflux (heartburn)
_x___ Frequent diarrhea
__x__ Frequent constipation
__x__ Bloating; intestinal gas
__x__ Decreased appetite
____ Increased appetite
____ Food cravings
____ Weight gain (____ lbs)
____ Weight loss (____ lbs)
SKIN
____ Rashes or sores -
__x__ Eczema or psoriasis
OTHER
__x__ Hair loss
____ Mitral valve prolapse
____ Cancer
__x__ Dental problems
__x__ Periodontal (gum) disease
____ Aphthous ulcers (canker sores)
COGNITIVE
__x_ Difficulty with simple calculations (e.g., balancing checkbook)
__x__ Word-finding difficulty
_x___ Using the wrong word
__x__ Difficulty expressing ideas in words
__x__ Difficulty moving your mouth to speak
__x__ Slowed speech
____ Stuttering; stammering
___x_ Impaired ability to concentrate
__x__ Easily distracted during a task
__x__ Difficulty paying attention
__x__ Difficulty following a conversation when background noise is present
_x___ Losing your train of thought in the middle of a sentence
__x__ Difficulty putting tasks or things in proper sequence
__x__ Losing track in the middle of a task (remembering what to do next)
__x__ Difficulty with short-term memory
__x__ Difficulty with long-term memory
__x__ Forgetting how to do routine things
_x___ Difficulty understanding what you read
____ Switching left and right
_x___ Transposition (reversal) of numbers, words and/or letters when you speak
_x___ Transposition (reversal) of numbers, words and/or letters when you write
_x___ Difficulty remembering names of objects
_x___ Difficulty remembering names of people
____ Difficulty recognizing faces
_x___ Difficulty following simple written instructions
_x___ Difficulty following complicated written instructions
_x___ Difficulty following simple oral (spoken) instructions
_x___ Difficulty following complicated oral (spoken) instructions
____ Poor judgment
_x___ Difficulty making decisions
__x__ Difficulty integrating information (putting ideas together to form a complete picture or concept)
____ Difficulty following directions while driving
__x__ Becoming lost in familiar locations when driving
____ Feeling too disoriented to drive

144 total
105 have or have had more then once

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