Discussions By Condition: Endometrial conditions

lupron?? endometriosis

Posted In: Endometrial conditions 49 Replies
  • Posted By: Anonymous
  • May 6, 2007
  • 10:32 PM

I've had 2 gyns with 2 strongly different opinions. One says to get a 2nd surgery for endometriosis (first surgery was 7 years ago). Other says NO, go on lupron. Anyone had either of these???? -2nd surgery or lupron?? My ultimate goal is to become preganant!

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49 Replies:

  • I've had 2 gyns with 2 strongly different opinions. One says to get a 2nd surgery for endometriosis (first surgery was 7 years ago). Other says NO, go on lupron. Anyone had either of these???? -2nd surgery or lupron?? My ultimate goal is to become preganant!hello..I had several surgeries for endometriosis and at age 24 I had to have a complete hysterectomy. I was on the lupron for several months and it did absolutely nothing to help my condition. I would say go for the surgery. They say the lupron can cause you not to be able to have kids or make it harder for you. My daughter is going through the same thing right now. She was diagnosed at age 15. Has already had two surgeries but she wants kids as well. Good Luck on getting pregnant and I will keep you in my thoughts and prayers. God Bless
    Anonymous 42,789 Replies Flag this Response
  • I am on Zoladex which is almost just like Lupron. I am only 18 and its been hard for me to adjust to menopause. The worst part is the depression. I am not depressed but i find myself altered a little bit, adn i forget everything. I havent had any pain and my doctor told me that this was my only chance for getting pregnant in the future. I have been in menopause for 6 months and after this month i go on birth control again.
    Anonymous 42,789 Replies Flag this Response
  • I've had 2 gyns with 2 strongly different opinions. One says to get a 2nd surgery for endometriosis (first surgery was 7 years ago). Other says NO, go on lupron. Anyone had either of these???? -2nd surgery or lupron?? My ultimate goal is to become preganant!Hi there. Havung endo myself I know how desperate it is. Lupo? is that transvaginal ultrasound?I have been looking at total life changes in my foods and taking nutritional suppliments. Drugs that are powerful like the decapeptyl I was on and have made me really ill I wouldnt wish on anyone as I had all the adverse reactions. I would advise you to search your heart and change your diet radically and look deeply into alternative therepy. I am on the journey myself and keep positive. Good Luck.
    Anonymous 42,789 Replies Flag this Response
  • I am 20 yrs. old and was diagnosed with endo. after my first lapro. 1 1/2 yrs. ago. I thought the pain would go away after the surgery, but has not. I was on 5 different birth controls and pain meds. Nothing helped me and I found myself spending days in bed at a time. I have now been on lupron for 3 months. I am sceduled for a transvaginal ultrasound in 3 weeks to see if the medicine is working. If not it is time for surgery #2 and possible removing one of my ovaries. Has anyone else experienced this or had problems with pregnancy after the lupron? Please give me some advice or your experience with this!
    Anonymous 42,789 Replies Flag this Response
  • that is my big concern is becoming pregnant! I am scheduled for a specialist in endometriosis (they are hard to find) in mid July to find out what is the best method. (I posted the original concern). I will keep you guys updated. So check back. Anyone else in this situation, please let us know what has worked for you.thanks
    Anonymous 42,789 Replies Flag this Response
  • You may or may not be willing to try this, but acupuncture and Chinese herbal medicine can be very helpful for endometriosis. I have treated several patients successfully using acupuncture and Chinese herbs. I believe strongly that lifestyle changes can be very helpful - please look into the candida connection and see if it fits your profile. www.wholeapproach.com is a very good website to get more info...haven't tried any of their products so can't vouch for them. They just have helpful suggestions for diet changes and such. A holistic approach may be something to try, especially if the endo doesn't resolve with surgery (it usually doesn't in my experience). Lupron is extremely toxic - please look up your meds on www.drugs.com for side effect info. I had a patient on this drug and she had severe reactions. Just be careful. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • When I was on Lupron for endo, I was told that when I came off of it, I would be my most fertile. I two reacted badly to the medicine and begged to not to go the full 6 months but my dr. assured this was my best option for having a baby as well. That didn't work so well and spent the next 11 months with a fertility dr. He is 3 in Aug. I was not cured by having a baby, but we do have a second boy to be 1 in July. Since it was second c-section, I opted to have them take my uterus to see if this would solve one of many problems. While my autoimmune problem does seem to be in remission, my endo is back with full force. Get this, I'm on birth control! :) Ah, I just think that is great! If this doesn't work, surg will once again be in my future.ps. if you go on lupron, i strongly suggest the menps herb mix to counter act the hotflashes and nite sweats. I found this made that part of the reaction much better. It's over the counter.
    Anonymous 42,789 Replies Flag this Response
  • Hi! I had the surgery to remove my endo a year and a half ago, but after 6 months I began having the same old problems that I had had before! I was on regular birth control, but when the problems started again my doctor was immediately going to put me on the depo lupron........I asked her about the side effects and I immediately told her NO there has to be something else! Well, she put me on depo provera and while I still have pain sometimes it is nowhere near what it was.....plus no periods!! I have spoken to a lot of people about depo lupron and everyone of them has said that it was ***l!!! Oh......you might want to ask about the cost of lupron if you do decide to go on it.........it is really expensive from what everyone has told me!
    flopette234 1 Replies Flag this Response
  • A good friend of mine was on depo provera and had a grand mal seizure and mini stroke at the age of 39...her docs never caught the connection, but looking this up I found it to be a possible side effect to this drug. Please just look up any drugs you are prescribed on www.drugs.com so you can be an informed consumer as to the drugs you are given. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • hello this is just a note to anyone who needs to talk at 25 i have had 7 laparoscopies including a full hysterectomy and STILL to this day have severe pain.... i tried ALL birth control options,i tried Danazol (male hormone) and lupron (female) NEITHER worked, i actually bled for 3 months straight while on lupron the first time. the one thing i can tell you, even with the best insurance out there i still had to pay $300 a month for my injections (i had 9) i have been to 3 different "endo specialists" in the state of Colorado and no one can help me out, they think i am just addicted to pain pills and thats why i'm "making this up" its frustrating but after 8 years or so you get used to it. i am here to help anyone that needs it-Cindycmgreene25@yahoo.com
    Anonymous 42,789 Replies Flag this Response
  • I have stage 4 endometriosis. I was also on lupron for 5 months to shrink the endo in my ovaries. The only side effect I had were hot flashes. It also shrank my endo. I am now proceeding with in vitro. Good luck to you!
    Anonymous 42,789 Replies Flag this Response
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  • hello this is just a note to anyone who needs to talk at 25 i have had 7 laparoscopies including a full hysterectomy and STILL to this day have severe pain.... i tried ALL birth control options,i tried Danazol (male hormone) and lupron (female) NEITHER worked, i actually bled for 3 months straight while on lupron the first time. the one thing i can tell you, even with the best insurance out there i still had to pay $300 a month for my injections (i had 9) i have been to 3 different "endo specialists" in the state of Colorado and no one can help me out, they think i am just addicted to pain pills and thats why i'm "making this up" its frustrating but after 8 years or so you get used to it. i am here to help anyone that needs it-Cindycmgreene25@yahoo.com Cindy,Have you considered trying acupuncture? Do you live near Boulder or Denver? There are many practitioners in CO, and I think it would help you - especially if you include acupuncture with Chinese herbs. I am so sorry you are in such pain. After all those surgeries it is horrible to get NO relief! Please just consider acupuncture. I have helped a few patients with endo, and they noticed it helped considerably. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • Hello everyone, Please know that you are not alone. I was diagnosed with endometriosis over 1 year ago, but I know that I had it before being diagnosed. I have been on many forms of birth control and even had a laparoscopy done. The lap was unsuccesful due to the severity of the disease and they were unable to do anything but close me up. I have then been to a gyn-oncologist and also other gyns who are afraid to operate until I go through lupron therapy. I have firmly decided that I would not until I moved. At this present dr. I was givn the prescription for lupron and was told to fill it and administer it to myself. Luckily the doctor did not want to call my insurance company to pre authorize the medication and therefore, I was unable to fill it. I saw that as a blessing in disguise. After reading about lupron and its side effects I can say that it was God working in the midst of everything so that the dr. did not preauthorize the medication. I have now decided to use natural and an alternative therapy to deal with my symptoms of endometriosis. I have started taking herbal supplements and also have changed my diet to alot of raw fruits and vegetables and have eliminated meats fom my diet. The blood in the meat allows the endometriosis to feed off of it. I am going to see a naturalist in a couple days and see what advice I can be given. All in all, medications such as birthcontrol and especially lupron, have adverse side effects. want to be able to have children someday, and I don't want all these medications to be the result of why I can't.
    Anonymous 42,789 Replies
    • September 10, 2007
    • 02:59 PM
    • 0
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  • I'm the original author of this posting. Just wanted to give an update of an ONGOING battle w/ endo. When I was 20, I had my first surgery (after 8 years of pain and NO diagnosis. I decided to find a 'specialist' in the area instead of the dr. who just wanted me to go on lupron. I went to a fertility specialist in the Tampa Bay area and had all my bloodwork and a saline ultrasound done the other day. I will meet with him soon to discuss treatment options. This is the second time I have had a dr. put so much effort into finding a treatment....as it would be nice to make the pain go away...but having a child one day is the ultimate goal! I will keep you posted on what he decides is the best treatment option.......anyways, after being to TONS of gyn., a fertility dr. is who first did my surgery and who may be doing my 2nd.
    Anonymous 42,789 Replies
    • September 13, 2007
    • 01:00 AM
    • 0
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  • Please do keep us updated!I first went to the ER with extreme pain in 1998. They thought it was my colon and ran tests and found nothing. While in surgery for cysts, they found the endometriosis and it extends back to my colon, which explains that pain i have had since 1998.I just turned 29. Today the doctor suggested Lupron. I get my first shot this Friday. I am a virgin (any vaginal penetration has been too painful) and obviously have no kids, but my boyfriend and I do want them some day. I, too, am very scared I wont be able to.I'm also a first year law student and afraid I will have to take a medical leave of absence since I have already missed so much school due to the surgery and pain.It does help to talk and to hear your stories, so please keep them coming!By the way, I tried homeopathic medicine as well as acupuncture, and while it helped my migraines and sinus infections (they are gone!), it did nothing for my endo pain or my rheumatoid arthritis.
    Anonymous 42,789 Replies
    • October 17, 2007
    • 09:49 PM
    • 0
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  • Hello, I was diagnosed with mild endometriosis last month after having a laporoscopic surgery. I have suffered with BAD cramps since I was 15. My husband and I were also trying to conceive for about 2 years then my other health issues surfaced. So eventually we want to start trying again. My doctor is now suggesting Lupron, but I am very affraid of the side affects this could bring as I have had a really bad health year as it is...im not sure I can take on yet more of not feeling well. Im just wondering if anyone has had any luck with alternative medicines when it comes to endometriosis? I just dont want to NOT treat it and have it eventually spread. ~Stacky
    stacky 52 Replies
    • December 16, 2007
    • 02:19 PM
    • 0
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  • Had endo since age 10. Was put on hormonal pills, not sure what it was. 5x surgeries since age 22. Did the alternative therapies thingy and lucrin (product in south africa) for 3x months. Only thing that worked was lucrin. I was also terrified of the side effects and only got the hot flashes and a bit of weight gain. Pregnancy does not take endo away, in some cases it aggravates it. My one friend had hysterectomy and ovaries removed and after years when she was complaining about pain, they found endo. My advise:1. Get a doctor who specializes in endo AND fertility. You might need the fertility part later as with me. With every surgery they do, they decrease your fertility.2. Arm yourself with info as there are a lot of lies going around on how to zap endo.3. What works for me might not work for you, but you can at least try everything avail until something works. 4. See a psychologist - this illness can take a lot from you and you will have to learn how to deal with it.Hope next year will be much healthier!
    Anonymous 42,789 Replies
    • December 30, 2007
    • 06:19 PM
    • 0
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  • After my appendectomy in Oct 07, the pain increased a great deal (every day, many hours/day instead of just around my period before). I have urges to go to the bathroom constantly while I'm in pain. My OB/GYN doc suggests Lupron, (if not succeeds, then surgery) but I have been hesitating reading about the side effects. Please tell more about Lupron (side effects, help with the pain) if you had it before. What else to to to alleviate the pain? Someone suggests seeing a psychiatrist...thank you. Really, it takes a lot of you; Sometime, I just feel too depressed with this constant pain. I also want to make sure I will be able to have children someday.Thanks for all the info.Kate
    Anonymous 42,789 Replies
    • January 3, 2008
    • 08:59 PM
    • 0
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  • I had my 4th Lupron shot today, I found out in sept of 2007 , that I have endo. So far I haven't had problems. I seem to feel pretty good, my hot flashes aren't so bad, they only last for a couple of mins. I think its worse at night, I also have leg pain and cramping at night too. But my pelvic pain is gone. I'm 26 years old and I really want to have kids when I'm done with this mess. I really didn't know how many women deal with this every day. I so glad I'm not alone and I can get so good information. My doc isn't any help at all, so if your starting out with this, get a good Doctor. This is a condition that some doctors can over look, mine did. With the help of the internet I pretty much diagnosis my condition and told her what I had (how sad is that) she didn't want to hear what I was going through. She just wanted to put me on different birth control pills. I had been on birth control for along time, I noticed that I was on deporavera for 4 years straight, and went off it and started with my endro problems. I also learned that my aunt had endo too, and you have a close relative, in the family you are most likely to have endo. If any one has any other information about endro please share . Thank Mandi
    mandi 1 3 Replies
    • February 20, 2008
    • 05:21 AM
    • 0
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  • I had my 4th Lupron shot today, I found out in sept of 2007 , that I have endo. So far I haven't had problems. I seem to feel pretty good, my hot flashes aren't so bad, they only last for a couple of mins. I think its worse at night, I also have leg pain and cramping at night too. But my pelvic pain is gone. I'm 26 years old and I really want to have kids when I'm done with this mess. I really didn't know how many women deal with this every day. I so glad I'm not alone and I can get so good information. My doc isn't any help at all, so if your starting out with this, get a good Doctor. This is a condition that some doctors can over look, mine did. With the help of the internet I pretty much diagnosis my condition and told her what I had (how sad is that) she didn't want to hear what I was going through. She just wanted to put me on different birth control pills. I had been on birth control for along time, I noticed that I was on deporavera for 4 years straight, and went off it and started with my endro problems. I also learned that my aunt had endo too, and you have a close relative, in the family you are most likely to have endo. If any one has any other information about endro please share . Thank Mandi Thanks for the feedback you gave above. Have you by chance had any of the anxiety or depression they say could be a side effect? I am STILL debating to do the Lupron or not I seem to be so sensitive to meds it just freaks me out (especially since Im borderline osteoperosis at the age of 28), plus we decided to start trying to conceive for a few more months. In the mean time I have been trying these drops from a company called Native Remedies, and they are called Endo-Ex. You take several drops in water 3 times a day and its just natural herbs, I noticed some difference in my cramps this month as I have been taking the drops for about 3 weeks now. You can find them online if you want more info. The cramps were still intense since I just barely just got back off the pill since I started them up again right before my lap surgery. I will keep you all updated if they work or not, they can help you conceive with endo as well, per the testamonials. My doctor is really urging the Lupron though and said im avoiding the obvious treatment. My mom had TERRIBLE cramps and ended up having a hystarectomy in her 30's, not sure if they knew as much about endo back then as they know now....pretty sad. Thanks all, keep the info coming! ~Stacky
    stacky 52 Replies
    • February 20, 2008
    • 02:32 PM
    • 0
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