Discussions By Condition: Congenital conditions

monosomy 21 baby boy

Posted In: Congenital conditions 0 Replies
  • Posted By: Anonymous
  • November 14, 2009
  • 06:58 PM

hi i have our baby boy with partial monosomy 21 and a ring 21 chromosome,he is now 6 months old,but has problem after problem since he was born,hes never taken to the bottle or even known how to feed or sleep,he has a ng feeding tube since he was born he is awaiting to go into hosp for the peg.he is so fussy and irritable all the time.now we live in uk and have been told he is only 1 in uk with this,now dont no if there is anyone outside of uk with same but could do with some answers or help,as noone nos here how to help him as they dont understand his chromosome problem,and i no he shouldnt be here with it.

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.