Discussions By Condition: Congenital conditions

Marfan.

Posted In: Congenital conditions 10 Replies
  • Posted By: Anonymous
  • January 30, 2007
  • 03:21 AM

On an off I have been worried that I have it. My symptoms include,
Long Fingers ( Although I don't pass the wrist and thumb tests)
Long Limbs
Minor Pectus Evac
Severe Myopia
Minor Astigmatism
I was flat footed, but I got it corrected young with soles I think.
I not sure if I have scoliosis, but I did break my back and when to a orthopedist and he did some pshycial tests and didn't mention anything about.
I asked my GP about it and she did the test and said I didn't have it, but I'm still paranoid about it.
I'm 5'9.5 and 150 pounds.
Armspan is 6 foot.
The dentist never mentioned a high arch palate, but I do have an overbite ( caused by a small jaw I believe.)
I also have had two ekgs, a holter, an event montior, an echo, and a stress test only to reveal I had Bicupspid Aortic Valve, not really a symptom but I'm sure it's associated.

Well I have been to all the doctors needed to diagnose it, not specifically for marfans but for other problems, ie I though I had a retinal tear but I was being paranoid, broken back, palipations. That's ortho cardio and opthmaligiost sp. Noone ever mentioned any other problems specified with marfans. Three doctors told me they didn't think I have it, an internal medicine specialst( my gp), my pediatrician, and my cardio still it worries me.,

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