Discussions By Condition: Congenital conditions

Looking for people with KFS who have children

Posted In: Congenital conditions 8 Replies
  • Posted By: ksuzanne
  • April 7, 2008
  • 04:50 PM

My husband has Klippel-Feil Syndrome. His neck vertebrae are fused so from what I have read, it looks like Type I.

I am looking for thoughts and experience from people who have KFS and have had or are thinking about having children. We are looking to have children soon, and his condition is a concern of mine.

There seems to be little information on the web about the defect, and there seem to be conflicting opinions about whether it is genetic or not. Even if it is genetic, I'd like to know the incidence rate.

If anyone has information or resources that I can have regarding whether KFS is or is not genetic, I would appreciate anything. I would also like to hear from those with the disorder who have children or have spoken to a doctor about the possibility of the condition being passed on.

Thank you!

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