Discussions By Condition: Cancer

Need Advice - Carcinoma in Situ

Posted In: Cancer 0 Replies
  • Posted By: Anonymous
  • July 15, 2010
  • 03:33 PM

Hi everyone, I'm hoping someone will be able to shed some light and give me some advice on this situation and a little background of my health history:

I was diagnosed with HPV and low grade dysplasia in 2004. I was monitored with regular PAPs and colposcopy/biopsies every 6 months for 4 years. It stayed low grade. At the end of 2009, I was diagnosed with Lyme disease, Anemia, and Epstein-Barr virus. I went on IV antibiotics and became very run down and sick. The doctor said my white blood cell count was 14 (which I don't know what that means). I was let go from my job and for a brief period I was without medical insurance and did not get any PAPs or other testing done. I recently had a PAP that came back abnormal with a low grade squamous intraepithelial lesion. I went to a gyno to get a colpo and biopsy done and he said that it will probably come back as low grade and will probably never progress to anything more serious. A few days later when my biopsy results came in, it was actually carcinoma in situ (non-invasive cancer) and they set me up with an appointment to discuss treatment.

Current symptoms that I've been experienceing for some time:
Stabbing and pinching pains in my pelvic area (not a UTI) very often and frequently
Continuous cramps that are different from menstrual cramps (also not pregnant)
Bleeding during and after sex
Low back pain
Very tender abdomen
Very tender on my left leg/pelvis where my underwear line is (possible lymph node? also, my underwear is not too tight)
Arm pit has been tender as well (location not related, but there is a lymph node up there)
Irregular periods
Achey when I have to pee (again, not a UTI. I was tested for that already)

So, given my health history with 2 cancer causing viruses (HPV and Epstein-Barr), an immunodeficiency disorder, and my symptoms shouldn't I be concerned that when they do a LEEP or Cone biopsy that they may find out that the cancer is now invasive? My gyno said "don't worry, it's CIS, not cancer. It takes many years to progress to cancer." How is it not cancer if CIS is non-invasive cancer!? And yes, it does take many years to progress to cancer in a healthy individual, but when you have an immunodeficiency disorder, the progression increases 4 fold (and he has all my health history info)! Not to mention the Epstein-Barr that is and will always be in my system. I've also read that birth control is a risk factor in cancers. I've been on birth control for 7 years and started it when I was 19. I'm very stressed out and people keep telling me that it's probably nothing and that I'm reading too far into things, but when you factor my current and past health condition into it, it makes sense to worry and be concerned! Sorry this is so much info!!! I just want someone who is not a friend/family member to tell me what I should expect straight up without coddling me. Or if anyone has had similar diagnoses. Thanks so much!

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.