AML relapse after BMT

Question

I have a 12 yr old daughter who was diagnosed with AML in 03/06...she went through 2 rounds of chemo without going into complete remission...she then underwent a BMT with my 10 yr old son being the donor...he was a perfect match...she relapsed on 12/27/06..with 60% in blood and 90% in bone marrow....she just completed a 5 day round of chemo with a new drug called clolar....we don't know if she is in remission or not....the docs said that since she relapsed after BMT...then her prognosis for long term survival is very poor....they said that they could get her into remission probably, but were not going to be able to keep her from relapsing again....does anybody have any suggestions as to what we need to do as far as further treatment...i.e., where to take her, hospital referrals, etc......

panhandle · Accepted Answer

Hi Tatesmom,  My sis just finished round down at MD Anderson in Houston for Hodgkins.  Had stem cell transplant and is in remission.  They seem to know what they are doing.  Hope this helps and keep on looking. Bob

Anonymous · Answer

My 8 year old niece was diagnosed with AML Nov. '05, received a BMT (brother was perfect match donor) in May '06.  She just relapsed this week Jan 23 2007. They plan to get her a second transplant.  She has been treated at CHOP - Childrens Hospital of Pennsylvania.  That is the number one childrens hospital in the country with the leading AML experts.  That is where your daughter should be.  If I can be of any help to you - post a message to my niece's carepage at:www.carepages.comlook up patient name - MiaJulietteor email me at bridgetmc@hotmail.combest wishes to your daughter.sincerely,bridget

Anonymous · Answer

We are concerned that our daughter (dx AML 3/20/06 BMT 10/5/06 perfect sibling match) may be relapsing. Re: Pallor it seems, decrease in energy, slight increase in some of her sub labs and fainting. All these were her early symptoms prediagnosis. Can anyone tell me what they saw in the labs that indicated relapse. Thank you,Debora

Anonymous · Answer

I have a 12 yr old daughter who was diagnosed with AML in 03/06...she went through 2 rounds of chemo without going into complete remission...she then underwent a BMT with my 10 yr old son being the donor...he was a perfect match...she relapsed on 12/27/06..with 60% in blood and 90% in bone marrow....she just completed a 5 day round of chemo with a new drug called clolar....we don't know if she is in remission or not....the docs said that since she relapsed after BMT...then her prognosis for long term survival is very poor....they said that they could get her into remission probably, but were not going to be able to keep her from relapsing again....does anybody have any suggestions as to what we need to do as far as further treatment...i.e., where to take her, hospital referrals, etc......How is she now?  Did they get her into remission?  My 15 yr old daughter was diagnosed 5/2006, got a bone marrow transplant 10/2006 and relapsed 3/2007.  They will try another BMT with her sister (we had 2 perfect matches in the family)  I'm curious to see outcomes and options...

Anonymous · Answer

We have heard about Mylotar being a smart chemo that only goes after cancer cells for AML relapse.

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