Discussions By Condition: Blood conditions

calling other neutropenic folk

Posted In: Blood conditions 2 Replies
  • Posted By: Anonymous
  • July 15, 2006
  • 09:45 PM

Hello, this is my first time using a forum and also this site. I am 35 and was diagnosed with cyclical neutropenia 8 years ago. I have tried unsuccessfully to link up with other people who have this condition. I've been told I have this condition for life, but as it arrived spontaneously, I'd like to believe that it could leave the same way. I manage it as best as I can with Neupogen and good humour, but of course it does get me down. I am interested to hear about other people's experiences and how they cope. Also, I am writing a book about the subject and would be nice to have some neutropenic company along the way. Also, I can't think of a title for it, which irritates me on a daily basis. So, if you fancy a chat about this unusual condition, drop me a line!

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