I am 40 years old and have SMA Type 11. Born in Liverpool, UK and now living in South Africa as a Water Engineer. This note is written as hope to anybody who has a child with this disease, or living with the disese, to inspire and motivate that things don't have to be so bad with this disease - remember challenges can be turned into opportunities, and a disability doesn't necessarily have to become a handicap! I have had the most wonderful life so far, and I have achieved things that I would never have done had I been able bodied. I have actually written a book which can be found on the following website www.trafford.com/05-2889 - a copy of the book can be purchased on the website. I hope it inspires you - life is a gift - enjoy it!