Discussions By Condition: Autoimmune Disease

Possible Schleroderma or WHAT ELSE?

Posted In: Autoimmune Disease 1 Replies
  • Posted By: starlitefairy
  • May 20, 2008
  • 03:23 AM

Hello everyone! I am new to this web site, particularly the boards, but thought I'd give it a try since I'm at a road block. Maybe you all can help me with my medical mysteries. So here goes...

I'm a 22 year-old female, clear of all STDs and other "age-related" diseases common to my age and gender. Everything has been fine in my health except the several seizures I have experienced since January 12, 2005. The first was a tonic clonic seizure, and the subsequent few have been complex partial seizures. All of my neurologic tests have come back normal, so my newest neurologist has referred me to a rheumatologist because of my positive ANA test. It was 1:320 but with a neucleoar pattern, which is unusual. I just had more blood work done as per the rhematologist's request, but haven't gotten the results back yet. I've read that the pattern is indicative of Scleroderma and Myositis, but I'm curious to know if it could mean anything else. Is it possible to have a false-positive at my age with such an unusual pattern? The symptoms I DO have don't seem to coincide entirely with either disease, and I'm SOOOO worried that everything will end up normal in my blood work. I have been to countless doctors my whole life and they all seem to get stonewalled and then refer me to someone else.

All I know is, I feel crappy. I'm tired a lot, am having these weird pains in my right leg (mostly in the front thigh, but spreads down to the shin area), I have poor circulation in my extremities and lose feeling often (and I am not staying in the same position too long or bending my joints severely either). I have chronic headaches every single day but have had my head checked out by multiple doctors with all normal findings) Right now I am just concerned about the positive ANA test result, particularly the nucleolar pattern that is not associated with lupus or other more commom autoimmune disorders.

Does anyone find themselves in the same boat? I just want them to find something already so I don't feel crazy or look like a hypochondriac, whiny person. Please Please help me if you relate to any of this!!

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