Discussions By Condition: Autoimmune Disease

Need Help!!!

Posted In: Autoimmune Disease 0 Replies
  • Posted By: HContrer
  • April 3, 2008
  • 10:20 PM

My wife a 27 year old female, generaly healthy, used to work out everyday, but one day when we were on vacation in Brazil she started to feel weak on her legs, and something would shoot down her legs. We got back to the US. and I took her to the doctor, at first they thought it was a herniated disk which she does have but after a while she started to get weak all over her body; at that point they started to think it was something else because herniated disks do not cause weakness all over the body.

A couple of weeks passed by and they did not know what it was, and I took her to many different Docs. Finally she just would not hold her own weight so I called the Ambulance and they picked her up and took her to ER.

Initially she was treated for GBS (Guillian-Barre Syndrom) with Immune globulin Intraveneous. At first it appeared to work, but a week later after she started physical therapy, and right after her therapy she started to feel extremely tired, weak and also she would feel something running thru her body ( some type of tinggling sensation that would run back and forth thru her arms and legs, and also her head. She also, felt her head was extremely heavy.)

At this point she has been in the hospital for about a month and she goes from feeling much better(where she is able to hold her head, she can feed herself, sit up by herself and put herself on the wheelchair, to not been able to do all of the above plus feels tired when chewing her food she would chew two to three times and she needs to rest) and all this can happen in one day or even a couple hours. And lately she has been feeling burning feet, and legs, plus she has started to feel some pain of her legs.

Here are all the symptoms that she has been feeling for the past 3 weeks. Weak arms, and legs all the time, also, she feels fatigue all the time. She also gets more fatigue and weak if she walks a little bit, does not sleep, talk for a while, or does not eat for a long time. Also, when she is extremely fatigue, and weak she gets paralyze from all of her lymbs and face for about 30 minutes or sometimes it could last 4 to 5 hours.

At this point the Doctors have done so many test and they do not know what she has. If someone know anything or can think of anything we would greately appreciate any feedback. Thank very much in advance

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