Discussions By Condition: Autoimmune Disease

Information on Pyroderma Gangrenosum

Posted In: Autoimmune Disease 9 Replies
  • Posted By: Anonymous
  • July 23, 2007
  • 03:43 PM

I have just found out in the last few months that I have an autoimmune disease called Pyroderma Gangrenosum. It causes my body to attack itself if I have any trama to my skin. In February I had a cat claw me on my chest and because of what i have my skin all came off down to my tissue. At the time I did not know that I had pyroderma and I spent a month in pain before a specialist found out what I have.
Since then it has been a constant stuggle trying to get my skin to grow back. I am on Predisone and Cylcyclosproin that is keeping my immune system at bay. The side affects from these pills are crazy. Sometimes I swell up so much that I cant really move.
I am hoping that someone out there is able to give me some information about how to deal with the side affects. If anyone else has been on or is on these pills, I'd love to hear from you.
This disease only affects 1 in 100 000 people and it would be nice to talk to someone that knows what I'm going through.
Thank you for your time, and sorry for the long message :)
Mona

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