I was dx with Behçet's Disease over a year ago. I have been hospitalized a couple times with severe flares. I just was released again and was told they didn't know what was going on. All my MRI, LP, PET scan and labs look ok. But continue to have weird symptoms. I am completely exhausted everyday. To the the point I can't do the basic things. I have leg and arm deep pain that pain medications don't touch. I can not sleep because of the pain. I was extremely dizzy and had horrible headaches. My normal symptoms from Behçet's are gone but these other symptoms continue.
I'm struggling with seeing the light on the other side. Anyone have Behçet's or any ideas of what to do?