Discussions By Condition: Autoimmune Disease

autoimmune or kidney?

Posted In: Autoimmune Disease 4 Replies
  • Posted By: knoxmom
  • April 27, 2008
  • 11:09 PM

:confused:My 13 yr old son has been to numerous drs over the past 2 years. He has undiagnosed recurrent fevers (99-102). 2 weeks ago, he had an episode which we thought was a severe allergic reaction. He had hives all over his body, itching, swelling, body pain and fever. After 3 days of treatment with Prednizone(steroid) and benadryl, his hives began to disappear but the swelling was getting worse. Ended up back in the E.R. and the dr ran blood & urine tests. These both came back abnormal and he was admitted to the hospital. There was protein in his urine, and his albumin(protein blood level) was low. The dr was concerned that he could be developing nephrotic syndrome which is a kidney disease. We had a team of drs in the hospital (kidney, autoimmune, infectious disease and cardiologist) He was on a very high dose of steroids thru IV, which can mask some symptoms. It came down to an argument between the kidney & autoimmune drs. The kidney dr (which only did ONE urine test after the ER and never did a 24 hour testing) says he thinks this could have been serum sickness or an autoimmune disorder. The autoimmune dr disagrees and thinks there is something going on with the kidneys. He is doing further testing to make sure his immune system is functioning like it should be. That will take 6 weeks to determine. In the meantime, my son has missed 2 wks of school. He still has a fever daily, headache, fatigue, paleness and now his urine is cloudy. Again, we've been dealing with the fevers for 2 years! I'm ready to take him to Vanderbilt for studies!!!!!! Does this sound like autoimmune or maybe a kidney complication has been developing?? But would that cause a fever?? He never complains about painful urination or back pain. I'm SO FRUSTRATED. I worry about him constantly. I have missed alot of work to be with him and when I am at work, I feel guilty for not being with him. Sorry this was so long and complicated but would appreciate any feedback. Thanks!

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