Discussions By Condition: Autoimmune Disease

Auto-immune link in the women in my family???

Posted In: Autoimmune Disease 0 Replies
  • Posted By: hollywoods
  • December 30, 2008
  • 09:19 PM

My mother was diagnosed with Lupus when I was 15 after a misdiagnosis of RA. My sister has now been diagnosed with RA and I have recently been diagnosed with A.S. (Ankylosing Spondylitis.) I was tested (SED rate) every year for the last 8 to 10 years but nothing ever showed up. I was having symptoms that mirrored my mothers early onset though and was concerned. Now, I see her Rheumy and he has said that "AS OF NOW" I do not have Lupus but that I do have A.S. and I am Sero-negative (which means that there are no blood markers. I have a pretty serious case as I am in constant pain and stiffness leads me to believe that my hips, spine and neck are already attempting fusion. I have severe chest wall pain (unsure if it's my breast bone or not) and I howl at the slightest touch if you touch me on the shoulders, hips or back at any given time and occasionally (like today) EVERYTHING HURTS. That includes my skin! I feel like someone has beat the bejeezus outa me and left me for dead. My 13 year old daughter is suffering from chronic back pain and occasional joint pain and stiffness and has chest pains occasionally that knock her to her knees. Her PE teacher hates her because he (much like most of our doctors) sees her as nothing more than a chronic complainer. I truly believe that there is a link between all of our diseases and the possibility of my daughter having the same with her symptoms is huge. I currently take 8 Methotrexate pills each Tuesday along with 2 folic acid pills daily and 20 mg. of prednisone daily. It doesn't manage the pain though and I have errosion in my esophogus that I was taking Protonix for but have stopped because it no longer helps. I have a burning pain about 1 inch above my navel that is always there and is sensitive to the touch. My abdomen feels bruised all the time. I have occasional pain on the right side of my middle abdomen and sometimes swelling or bloating (not sure which) I can't take pain pills because they hurt my stomach and I really can't eat anything without pain anymore. I am so tired, and have a loss of sexual desire almost completely. I feel broken with no answers. Anyone relate or have any advice.:confused::confused:

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