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  • Anti Phospholipid Syndrome (Hughes Syndrome)

    Anonymous 3 Replies
    Posted in: Autoimmune Disease March 17, 2007 07:46 PM

    Hello...I was just recently diagnosed with Anti Phospholipid Syndrome (Hughes syndrome) I am looking to speak to someone with this syndrome. Could you please tell me your experience with this disease, the symptoms you experience etc. Thank you so much and God Bless

  • Feeling Worse after 3yrs Levo: What is causing Hashimoto's?

    Anonymous 30 Replies
    Posted in: Autoimmune Disease March 14, 2007 12:54 AM

    I'm going to scream. I can't take one more light consideration of this. I feel as though I'm falling apart and I'm tired of the presumption that I'm too stupid or unreflective to distinguish between depression and physical need. I need medical help and despite many reachings out, I have not been...

  • Hashimotos and Pregnancy

    vsbgarcia 2 Replies
    Posted in: Autoimmune Disease March 13, 2007 04:31 PM

    Hey everyone! Thought I might be able to get some insight from people who may be in the same boat as me. Sorry for the length! I am (almost) 31. I was diagnosed with Hashimotos in 2000 and started taking 100 mcg's of Synthroid daily. I remained on that dose until August of this year when I was...

  • autoimmune and hives/rashes

    m starr 43 Replies
    Posted in: Autoimmune Disease February 25, 2007 10:37 PM

    Have had problem with sudden an unexplained rashes/hives for over 2 yrs. Usually rash looks like bad bout with poison ivy on front of shins. Itches like crazy. Then something more like hives...red, sandpaper like skin on chest, armpit area, chin and face appear. Also itches like crazy. Allergist...

  • Could be HIV? HELP

    Anonymous 0 Replies
    Posted in: Autoimmune Disease February 23, 2007 03:53 PM

    Last slept with a woman, protected 2 times, once in november of 06, once in december 06, got herpes from her the second time, didn't climax the first, though the second time I did. In january I started to feel fatigued or else weak. This february I have been feeling more so, have hotflashes...

  • could this be anything

    Anonymous 3 Replies
    Posted in: Autoimmune Disease February 15, 2007 04:29 PM

    hi been having pins and needles weak arms pricking sensation in legs and back vertigo and fatigue went to doctors and was told to early to do anything come back in a month if symtoms persist ,already been having symptoms for well over a month now also my speach is starting to get muddled up ...any...

  • What kind of Autoimmune Disease is this?

    erobbins 13 Replies
    Posted in: Autoimmune Disease February 12, 2007 07:01 PM

    Hello. I am a 30 year old female who has been mostly healthy my whole life (aside from bad asthma and frequent colds, chronic sinus infections) until 5 months ago.I started getting terrible headaches behind my eyes, pain burning and numbness in my arms and legs sometimes very severe, constant...

  • unknown blood disease??

    Anonymous 0 Replies
    Posted in: Autoimmune Disease February 9, 2007 11:19 PM

    Hello... I am writing on behalf of my boyfriend and the love of my life. He is 26 yrs. old and was diagnosed with non hodkins lymphoma, now they think he has a blood diesease. His blood is not producing the right proteins but they are puzzled and still doing testing meanwhile we feel helpless. Are...

  • joint pain 7 plus months, 3 docs, no answers

    Anonymous 3 Replies
    Posted in: Autoimmune Disease January 26, 2007 10:50 PM

    About 9 months ago my knees and ankels started hurting terribly and swelling so bab I thought the skin would pop. It came on virtually over night. I didn't have health insurance at the time so I went to the local clinic. One of the first things the doctor noticed was my clubbing fingers. I have...

  • many auto immune symptoms! Help? Anybody?

    Anonymous 4 Replies
    Posted in: Autoimmune Disease January 24, 2007 03:35 AM

    I have a long story. But I'll try to keep it short. Got ill in 2000 with a fibrosis tumor near jaw. One surgery and 2 years of steriods felt better(but lost hearing). Then off steriods. But in 2003 had bad back pain. Fibrosis tumor grew ontop of my kidneys. Lost my left kidney. Had 2 surgerys and...

  • backspasm, neck, shoulder, buttock aches >ankylosing spondylitis

    sinned69 13 Replies
    Posted in: Autoimmune Disease January 23, 2007 12:27 PM

    Hi there all.I'm a NZ'er working in Mainland China, been here 4yrs now, have had an interesting time of it. For those of you who've never been, throw all your pre-conceptions away, this place ranges from very developed through to underdeveloped and everything in between. OK, so what about me & my...

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  • hiv?

    Anonymous 1 Replies
    Posted in: Autoimmune Disease January 13, 2007 02:12 AM

    --------------------------------------------------------------------------------ok so ive had a runny nose for about 4 months now and i sneeze every so often... i lost some weight but i have been working out alot i just started having tingling like in different areas of my body my lymp nodes in my...

  • ANA testing???

    mforbes1974 14 Replies
    Posted in: Autoimmune Disease January 11, 2007 05:01 AM

    Hi, I'm a 32 yr old female with almost all the symptoms of lupus. However, when I first went for bloodwork for autoimmune disorders, I had only a couple of the symptoms, joint pain, swelling, hypermobility and some skin problems. I didn't have a follow-up appt until 5 weeks later, which is now.I...

  • pain all over always weak

    zillapower500 2 Replies
    Posted in: Autoimmune Disease December 29, 2006 10:55 PM

    26y/male for the last two years i have been having extreme muscle pain in random parts of body.just by doing simple task such as picking up my son or taking out the garbage has pulled muscle in shoulders back ,legs neck.theres not a day that goes by that im not in pain even if i do nothing at...

  • baby sick with recurrent infections. autoimmune??

    ddmayx 4 Replies
    Posted in: Autoimmune Disease December 16, 2006 10:32 PM

    My son will be 1 at Christmas. We have spent the last year living in ***l. His ex PCP continued to tell us for the 1st six months of his life that he had a virus at each visit to his office. We had started breast feeding at birth which he weighed 6#9oz by the time we had left the hospital he was at...

  • Fearful!!

    Anonymous 1 Replies
    Posted in: Autoimmune Disease December 8, 2006 03:01 AM

    I don't have a cold but I have had stuffy nose and sinus pressure for weeks. Now I am getting headaches and my left eye hurts and swells from time to time. The left side of my abdonmen also hurts. Does anyone have any idea why this could be happening????

  • Crest VS MCTD

    Anonymous 9 Replies
    Posted in: Autoimmune Disease August 7, 2006 04:52 AM

    3 Dr.'s said they felt that I had MCTD with the multitude of syptoms I Have. I have had 2 diff/ ANA test and they were both positive. I went to see a Rheumatologist and he ran some tests, the tests did not show any inflamation so he says that I have Crest syndrome, but from what I have read,...

  • uveiyis

    Anonymous 3 Replies
    Posted in: Autoimmune Disease July 22, 2006 08:11 PM

    can any one tell me what tests ara available for autoamune disease.thanks

  • autoimmune disease

    Anonymous 26 Replies
    Posted in: Autoimmune Disease June 12, 2006 04:27 PM

    What a group of disease! Apparently, I have several. It's very difficult to understand the "overlap" of this group of illnesses. I do know I have a SKY HIGH SED RATE. It's 135. WAAAAAAAAY over the norm. I have lots of symptoms but not definitive diagnosis. Last Call was Sogrens Sydrome with Lupus...