Discussions By Condition: Allergies

Does anyone have any information about Gleich Syndrome? Please tell me im not alone in this!

Posted In: Allergies 0 Replies
  • Posted By: Anonymous
  • April 21, 2016
  • 02:23 AM

I was diagnosed 3 years ago when I was 24. I also have idiopathic angioedema (no known triggers it just happens) and asthma related to all of this. I was on prednisone for the first 2 years but for the last year I have not been on it. I had surgery to have my tonsils and adenoids removed which helped drastically to open my air ways. My throat tissue is now permanently enlarged and there is nothing they can do to remove or reduce that tissue without the danger of possibly damaging my voicebox. My eyes, upper lip tongue, and throat swell even my ear canals swell which causes me to frequently have double ear infections and sinus infections. I get these blister looking hives on the palms of my hands, wrists, soles of my feet as well as the tops of my feet, my genitials, my buttocks, and my stomach. They itch and hurt a lot. I am no longer taking steriods because of lack of insurance currently. It seems like I flare up mainly when the seasons change. I just want to learn to better manage this so I can live a fairly normal lifestyle. It is so uncommon that no one can relate to what I am going through. Please tell me I am not alone. I just want to understand what I am going through and to know I am not alone.

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