Weakness has spread up into my abdomen. Have to use wheelchair to get around. No other symptoms but now feeling weakness in arms and lost hearing in one ear.
very healthy lifestyle - just retired from engineering job- used to run-
6 neurologists just repeat the same tests and say peripheral neuropathy.
Have sent 1 inch thick paper with gene testing, blood tests, MRI of spine.....no indications.
one doctor( not a neurologist) had blood test performed that indicates a peroxylmal defect and too much long chain fatty acid in red blood cell...but no diagnosis.