I really really need your input on this topic! I am about to be 50 years old and have had problems since I was about 13 years old, with only being able to be awake for about 9-10 hours a day before I feel like I am going to literally die if I don't fall asleep before I reach the 11th hour of being awake.
I have spent tons and tons of time and money on every kind of Doctor there is to only be put on antidepressants of some sort. I have been dx with mild sleep apnea with no help from a sleep machine. Also dx with fibromyalgia many many years ago and have been living on pain medication for about the past 20 years which helps with the pain but not the fatigue.
I heard this Non -24 thing on the radio and thought wow that kinda sounds like me! The only difference is I can only be awake for no longer than 11 hours at a time and I take a nap for about 2 hours and then go back to bed for the night in a few hours after my nap. And I feel like a zombie after my nap but I don't feel like I am going to die anymore. Then in the morning when I get up I don't feel refreshed and I am foggy headed all day and it is really hard to concentrate and I feel like I am stupid because my mind feels like it is full of clouds.
It has always been a struggle to work but I must because we cannot survive on one income. Everyday on my drive home (if I have been up for at least 9 hours) my body is trying to fall asleep and I have to give everything to not let it and if I pass up my opportunity to sleep then that's when I feel like I am going to die, my throat gets real tight, I clench my jaws and grit my teeth and my heart beats funny even though I take heart meds for that problem.
This is and always has ruined my life for the most part. If I take my nap at the time my body tells me I am fine (except for the foggy headness and fatigue the next day) or should I say I don't feel that dying feeling anymore!
My husband and I moved in with his sister a few years back and she had two little children at the time that of course didn't nap so I pushed my self for about 4 months with no naps and I came down with tons of muscle pain so bad that it felt like I had millions of knives stabbing me in the back and shoulders and that's when I was first dx's with fibro and I feel its because I pushed my body past its limit and it fell apart.
Is there anyone out there that can give me some insight on whether this sounds like it could possibly be Non 24 that is my problem or if this sounds similar to anyone out there?
Thank you so much for taking the time to read this let alone respond!!
Sincerely Exhausted and would like to give up sometimes!