All eye problems occur during sleep-
So sensitive to light that I can't bare to have any light source on at all. I use sunglasses in front of the computer screen.
Walking outside is torture (even with several pair of sunglasses).
I have Narcolepsy/ hypersomnia and sometimes sleep with my eyes half-open. Stands to reason I'm injuring my eyes (have been treated for corneal abrasions, etc. at the E.R. numerous times)whilst asleep.
There are other times (often) I literally have to peel my eyelids from my eyes. They seem to become glued to my eyeballs during sleep. It's like ripping away a layer of skin it's so painful.
Other times it feels as though my eyelids are curving into my eyes and stuck there.
The inner corners (and inner corner lids) are so painful-- like battery acid painful.
I used to have a tiny bit of Psoriasis above one eye only (eyebrow) but that's gotten far worse in the last 2 years (extended to the other eye/ eyelid/ eyebrow and down the nose/ under both eyes. I'm wondering if the Psoriasis hasn't extended into the eyes themselves.. or maybe into the inner lids?
The ONLY relief is from E.R. treatment of Tetracaine, which they rarely allow me to take home (and they refuse to write a Rx for). They'll hand over antibiotic eye ointment (Ethromycin).
I have been treating with Ethromycin on a constant basis (day and night)for many months. It doesn't do anything for pain, though. I use glycerine eye drops constantly (still doesn't help). I keep my eyes covered all of the time.
I'm on Medi-Cal and no eye specialists take Medi-Cal. (that's why I have to keep going back to the E.R.)
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