I am 40 years old, and have had epilepsy for over 20 years. Early tests showed that I have gray matter on my right temporal lobe. I have been on many different AED's over time. I just started researching new stuff, contemplating surgery. 20 years ago, my doctor told me I was a good candidate for it. I am wondering what other people have experienced. I just looked up subependymal gray matter heterotopia, and it sounds like it describes me well.
As a baby, I had my MMR shot, and reacted to the red measles part of the shot. I went into convulsions, had a grand mal seizure and stroke and was paralyzed on my whole right side. I did not have any seizures my whole life that we know of until the first month I started college.
My last prescribed medicine was given to me in 1995. I have had seizures off and on during the course of the last 13 years, particularly after I had each of my 3 children. As far as I can tell, it has been maybe a year since my last episode. I have temporal lobe seizures. I am at a point in my life that I do not want to deal with this anymore, and now that I have this small understanding of subependymal gray matter heterotopia, I am wondering if this is something that can help me figure things out. Is there anybody that can give me any thoughts?
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