Discussions By Condition: I cannot get a diagnosis.

Please Help, so desperate. Life being ruined.

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: bennett0119
  • June 1, 2010
  • 10:06 PM

Hello,

I am a 24 year old female living in Pennsylvania. I am a little bit overweight 5 foot 7 weighing 174lbs but otherwise healthy, until recently. On feb 1st I woke up and my knee was swollen, I had an x-ray done 5 days later that showed nothing abnormal. By 2 weeks later I could not walk and was in the hospital having my knee drained. The fluid was tested for septic, lymes, and gout. I also had blood drawn, had a full blood panel among other things. Nothing came back on my tests, everything normal. About every ten days my knee would swell up like a melon and I would be unable to walk. Then my heel started to do the same thing. This stopped about a month ago, my knee feels strange and looks funny now but doesnt blow up the way it used to. But now, the same thing is happening to the large joint on my big toe. It has progressively been getting worse over the last 5 days, now almost the whole inner side of my foot as well as the area surrounding that joint it grossly swollen and so painful i can hardly walk. Since Feb I have seen doctors in the ER, a joint specialist, a rhuematologist, a gastrointestinal specialist and a regular family doctor. I had a colonoscopy and endoscopy. They found only 2 gastric ulcers and no signs of crohns disease. I am now seeing a family doctor who ran tests to check my levels of vitamins and minerals, hormone levels and some test looking for celiac diesase. The only thing she found was that I am extremely vitamin D deficient. I am at a loss that nobody has been able to diagnos me. This is ruining my life, there are days i cant work because the swelling gets so bad. The swelling is often accompanied by bathroom troubles, severe irritability and crying fits, as well as really bad night sweats. The obvious diseases that could cause these things are Celiac, Crohns, and Lyme but i tested negative for all of them so far. Please help.... anybody somebody. I now have a debt of about $6000 for just the past 3 months and i am scared to see anymore doctors who have no idea what is wrong with me.

-Sincerely,
Danica

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8 Replies:

  • Dear DanicaIf your Vitamin D is low you almost certainly have a condition known as Osteomalacia and this would have been picked up on your xray if the doctors were thinking about it.Osteomalacia usually causes bone pain rather than joint swelling; but it seems to me that the abnormal finding of low Vitamin D and your bone mineralisation is the cause.This issue to discover is why you are low in Vitamin D and to correct this.Vitamin D problmes can sometimes be associated with lack of uv light on the skin (which activates Vitamin D) and also kidney problems (the kidney also activates Vitamin D)There are other rarer causes of Osteomalacia which your doctor may be able to advise you.The main thing is that your doctor has found something wrong and is doing something to correct the problem.I hope this information is helpful and I wish you a speedy recovery.Keep in touch with your Doctor and he will help you all he/she can.Ninian PeckittOral and Maxillofacial Surgeon / Facial Plastic Surgeon (Australia)A/Professor of Engineering Assisted SurgeryHello, I am a 24 year old female living in Pennsylvania. I am a little bit overweight 5 foot 7 weighing 174lbs but otherwise healthy, until recently. On feb 1st I woke up and my knee was swollen, I had an x-ray done 5 days later that showed nothing abnormal. By 2 weeks later I could not walk and was in the hospital having my knee drained. The fluid was tested for septic, lymes, and gout. I also had blood drawn, had a full blood panel among other things. Nothing came back on my tests, everything normal. About every ten days my knee would swell up like a melon and I would be unable to walk. Then my heel started to do the same thing. This stopped about a month ago, my knee feels strange and looks funny now but doesnt blow up the way it used to. But now, the same thing is happening to the large joint on my big toe. It has progressively been getting worse over the last 5 days, now almost the whole inner side of my foot as well as the area surrounding that joint it grossly swollen and so painful i can hardly walk. Since Feb I have seen doctors in the ER, a joint specialist, a rhuematologist, a gastrointestinal specialist and a regular family doctor. I had a colonoscopy and endoscopy. They found only 2 gastric ulcers and no signs of crohns disease. I am now seeing a family doctor who ran tests to check my levels of vitamins and minerals, hormone levels and some test looking for celiac diesase. The only thing she found was that I am extremely vitamin D deficient. I am at a loss that nobody has been able to diagnos me. This is ruining my life, there are days i cant work because the swelling gets so bad. The swelling is often accompanied by bathroom troubles, severe irritability and crying fits, as well as really bad night sweats. The obvious diseases that could cause these things are Celiac, Crohns, and Lyme but i tested negative for all of them so far. Please help.... anybody somebody. I now have a debt of about $6000 for just the past 3 months and i am scared to see anymore doctors who have no idea what is wrong with me. -Sincerely, Danica
    Anonymous 42,789 Replies Flag this Response
  • Dear Danica If your Vitamin D is low you almost certainly have a condition known as Osteomalacia and this would have been picked up on your xray if the doctors were thinking about it. Osteomalacia usually causes bone pain rather than joint swelling; but it seems to me that the abnormal finding of low Vitamin D and your bone mineralisation is the cause. This issue to discover is why you are low in Vitamin D and to correct this. Vitamin D problmes can sometimes be associated with lack of uv light on the skin (which activates Vitamin D) and also kidney problems (the kidney also activates Vitamin D) There are other rarer causes of Osteomalacia which your doctor may be able to advise you. The main thing is that your doctor has found something wrong and is doing something to correct the problem. I hope this information is helpful and I wish you a speedy recovery. Keep in touch with your Doctor and he will help you all he/she can. Ninian PeckittOral and Maxillofacial Surgeon / Facial Plastic Surgeon (Australia)A/Professor of Engineering Assisted Surgery Hi Dr Peckitt, im wondering if you know about other issues other than kidney ones which can cause normal D2 levels but very deficient D3 levels.. this is happening in my case. Would the normal biochem. blood tests show up kidney issues if i had them?? My test there is normal except my cholestrol. My D2 was 72pmol/L (normal 50-160) (im well tanned and get outside) ... with my D3 getting down as low as 31nmol/L (normal 60-160) that was AFTER taking 2000IUs a day of D3 supplementation for a mth (my previous test the month before was 32nmol/L so it went DOWN one more number after a month of supplementation). I ended up telliing a specialist i was seeing at the Royal Adelaide Hospital for some of my other conditions (i dont see him no more).. and the hospital gave me, i think it was 50,000IU of vitamin D3 to take in one go (in a powdered form). I took it but never have had my D levels check again but as they keep falling in the past when supplemented and this was a while ago now, i assume mine would be very low again. i did note on my biochem. blood tests done last week that my Bicarb is at 33 mmol/L (normal 20-33) i from my own research saw that if that went out of normal range and became abnormally high, that that can indicate kidney issues as kidneys control bodies pH levels. Do you think i have anything i should be worrying about?? Thou i used to get bone pain years ago (long before i found out i had low D3) i dont get bone pain any more so havent been really worrying about my D3 issues (i have too many other health issues to worry about). Should i be asking that my GP retest my D3 and demand to be sent to a specialist or something?????? (ive got heaps of other general health issues and CFIDS).
    taniaaust1 2,267 Replies Flag this Response
  • My test there is normal except my cholesterol. correction to my last post, it isnt just my cholesterol which is abnormal. cholesterol 6.5 (normal 2.0-5.5) Each year my cholestrol goes up more, im taking fish oil and fibre supplements both which are meant to lower cholestrol and having a strict cholestrol diet didnt get it into the recommended/normal range, didnt help much so it seems to be something other than what i eat causing it. I just looked at my last weeks blood biochem. results and saw my anion gap is also out of the labs normal range (a couple of numbers under normal level). It is low. i thou havent got issues with my Albumin as its within normal range at 40 (normal 35-52), so my low anion gap isnt due to hypoalbuminemia whichi i read is most common cause of low anion gap and goes with kidney damage. i suspect one of the reasons my anion gap is abnormal and low is cause my Bicarb level is at the highest level of being normal (one more number and that would be out of normal range). thanks for reading this.. hoping for reply
    taniaaust1 2,267 Replies Flag this Response
  • You have ceratinly been doing your homework.....Vitamin D3 is made in the skin when 7-dehydrocholesterol reacts with UVB ultraviolet light in the skin. Whether it is made in the skin or ingested, vitamin D3 is hydroxylated in the liver to 25-hydroxycholecalciferol by an enzyme produced by liver cells. The hydroxylated D3 is stored in the hepatocytes until it is needed and then can be released into the plasma where it will be bound to a protein.It is then transported to the kidneys where it can be hydroxylated by one of two enzymes to different forms of vitamin D, one of which is active vitamin D and another which is inactive vitamin D. The enzyme is activated by parathyroid hormone, produced by the Parathyroid Glands in the neck.Low blood levels of Vitamin D can result from avoiding the sun although it is also found in those with abundant exposure to bright sunlight. It would appear that you may fall into this latter group.In sunny countries low dietary calcium intakes are characteristic of cereal-based diets with limited access to dairy products and this can give rise to problems. You therefore need to examine your diet - phytic acid present in flour used to make chipatis for example chelates Calcium and prevents its absorbiton from the gut.There are associations between low Vitamin D levels and a very wide range of disease including several autoimmune disease. However this is not conclusive evidence of a causal link (correlation does not imply causation); and there may be little / no effect of vitamin D supplements.What needs to be determined is the the nature of the low Vit D3.To my mind there are four questions to consider?1. Has vitamin D been formed in the skin? 2. Is this Vit D been hydroxylated in the liver successfully?3. Has this hydroxylated Vit D been hydroxylated in the kidney successfully?4. What is the status of your parathyroid Glands (which mobilise Calcium from Bone)Your GP is the best port of call first I think.I would not demand a second opinion from a specialist - but ask for one.Disorders of Calcium can cause mood swings - Medical Students are taught it can be the disase of "Moans Groans and Bones....."Finally I would suggest that if bone pain is reduced then this is a sign of improvement. This could be checked for confirmation.Hope this helps.Above all try to keep on good terms with your doctors. They are there to try to help you. In some difficult cases this can be difficult and frustrating.Remember doctors are human too!Kind RegardsNinian PeckittHi Dr Peckitt, im wondering if you know about other issues other than kidney ones which can cause normal D2 levels but very deficient D3 levels.. this is happening in my case. Would the normal biochem. blood tests show up kidney issues if i had them?? My test there is normal except my cholestrol. My D2 was 72pmol/L (normal 50-160) (im well tanned and get outside) ... with my D3 getting down as low as 31nmol/L (normal 60-160) that was AFTER taking 2000IUs a day of D3 supplementation for a mth (my previous test the month before was 32nmol/L so it went DOWN one more number after a month of supplementation). I ended up telliing a specialist i was seeing at the Royal Adelaide Hospital for some of my other conditions (i dont see him no more).. and the hospital gave me, i think it was 50,000IU of vitamin D3 to take in one go (in a powdered form). I took it but never have had my D levels check again but as they keep falling in the past when supplemented and this was a while ago now, i assume mine would be very low again. i did note on my biochem. blood tests done last week that my Bicarb is at 33 mmol/L (normal 20-33) i from my own research saw that if that went out of normal range and became abnormally high, that that can indicate kidney issues as kidneys control bodies pH levels. Do you think i have anything i should be worrying about?? Thou i used to get bone pain years ago (long before i found out i had low D3) i dont get bone pain any more so havent been really worrying about my D3 issues (i have too many other health issues to worry about). Should i be asking that my GP retest my D3 and demand to be sent to a specialist or something?????? (ive got heaps of other general health issues and CFIDS).
    Anonymous 42,789 Replies Flag this Response
  • Thank you greatly for the reply dr peckitt. You have ceratinly been doing your homework..... lol.. my doctors hate me due to it I think. I ask too many questions and they tell me they dont have time to research things to answer them. I've gone throu doctor after doctor, as Im being told my case is too complex and hence they say they dont want to take me on as a patient, I have too many unusual conditions for them to deal with.. they tell me they dont have time to deal with my case. Im currently at risk of loosing the GP (yet another one :( ), I have now as he's said if I cant get another specialist involved he dont feel comfortable treating me... For past 2-3 years, Im getting severe mood swings on top of every thing else I have and currently are trialing serquel to try to stablise the moods (which isnt working...**sighs** but im desperate and need SOMETHING to work) and he hates me being on those kinds of drugs under his care but without a psychriastrist but I dont qualify for the free mental health services (thou im on a disability allowance for the CFIDS) as i dont have what they call an actual mental health condition. My mood swings thou are so severe, that Ive got in trouble with the law and was jailed due to them!!! (so now im on bail and still going throu court stuff). Ive even halluncinated when Ive gotten too stressed (yet are classified as not having a mental health condition!..work that one out..it's stupid). Im finding it interesting what you said as I was on calcium and when I'd taken it for a couple of mths.. my premenstral dysphoric disorder wasnt so bad (but now Ive got mood stuff which is more than just the PMDD). But I dont really get how that helped..as my calicum levels arent showing me deficient so why did the calicum help some??. (Im currently back on calicum and a heap of other things with also the prescription drugs Im trialing. Im also trialing progestrone for my mood swings and also taking xanax for anxiety attacks. My doctor isnt happy Im taking xanax as Im getting it from a friend...but Im so so desperate and my anxiety gets severe but my doctor wont give me anything for it as I cant get a psychriatrist). ohh your post has made me aware that Im a little confused about the vitamin D process. Unfortunately even thou Im confused about it.. Ive found my doctors know even less on it. I so wish I knew of one who had a good understanding of vitamin D. (Its my 25-hydroxy vitamin D which is still?/was very deficient and my 1-25 dihydroxycholecalciferol which is normal levels) The lab due to my very low levels recommended that I be tested for parathyriodism issues so I did have a blood test for that but it showed my parathyriod was fine. I had to have an ultrasound yesterday (for my menstrational problems, I previously was diagnosed with polycystic ovulation syndrome..but are getting bleeding between periods now) and when they did that they took pics of my kidneys too.. they appeared fine on the ultrasound. What I thought is strange?? is my polycystic ovulation syndrome seems to have cleared up with my ultrasound not showing I have it now more thou it was on my last ultrasound a couple of years back. (so it seems some of my issues are clearing up while others are getting worst and more). My menstrational cycle thou is still all over the place and not normal. Ive got an appointment with a gynocologist next week i think it is. thanks again. I'll ask him nicely and sweetly :) if he can send me to a specialist for the D issues if my next vit. D tests are deficient still. Ive got a ton of specialists Ive seen for my different problems or are under but dont have an endocrinologist.. It's an endocrinologist I need to see for D vitamin isnt it????? or would it be a Nutritionist?? or another specialist???. I also dont seem to be healing well.. I injured my shoulder 3 mths back and are still on anti inflammatories for it, my tendon ended up tearing, I've lost my full shoulder movement and seeing a physiotherapist weekly. Doctor wants me to have another cortisone injection for it. For some reason it isnt settling down. Doctor keeps saying he's probably going to have to send me to another specialist due to my shoulder. Im having 1-2 medical appointments a week as I have so many issues.
    taniaaust1 2,267 Replies Flag this Response
  • I hope you are feeling better, but if you're not, and if you are still alive, as I hope, I think I have some answers.You're probably suffering from a vitamin A excess. Vitamin A triggers the retention of water. I looked at the formula for "anion gap". Did you know that chloride is a synergist to Vitamin A? That means that it increases its effectiveness or levels. And sodium also triggers water retention, through its low level. In fact, hyponatremia is basically water toxicity. The formula?Salt minus (chloride plus carbonate)Thus it would seem to me that a low level of salt plus a high level of chloride, and thus a high level of effectiveness of vitamin A, would cause swelling and a low anion gap result.As to why you need vitamin D so much? I suspect the issue is the fact that a high amount of vitamin A leeches calcium from the bones and gets it into the blood, hence osteoporosis sets in. You always need vitamin D because vitamin D is always binding to the calcium that is in your bloodstream.And don't be surprised at all about the hallucinations. That is definitely an issue of high calcium.I suppose it is now time to point out to you that medicine is not a matter of absolute numbers but of balance. The RDA is practically useless usually: it is ratios that matter most in these things, and the effect of synergists and antagonists on each other. I doubt your doctors actually bothered to test you for every nutrient--that would have been, at twenty dollars a test or so, over $400 to charge to insurance, and they get penalized by insurance for such things, probably economically--, and, moreover, each lab uses their own arbitrary system of standards about what the "average" person should be. You should study medicine in depth and prescribe according to the symptoms that appear. Do you really thing your doctors, will all the empathy they have been showing you, ever bothered to study these things in depth to help their patients? They get paid the same either which way.Calcium balances out with magnesium. Magnesium blocks calcium channels, thus preventing the flow of adrenaline which requires calcium to be released. Adrenaline causes panic attacks. The reason why you felt better with calcium is because it decreases heart sensitivity. It does this through pushing sodium out of heart cells and entering instead: since a potassium deficiency in the heart causes excessive activity, I assume that a sodium deficiency causes lack of activity, comparatively; incidentally, potassium and sodium are the big forces in the body's electrical system.But taking calcium is only a short-term solution. You need to increase the magnesium to counteract the adrenaline, which causes panic attacks. You need to then increase your salt uptake--which will help in that it will reduce the secretion of aldosterone, which is caused by a deficiency in sodium relative to potassium and which I believe is associated with anxiety and hypertension--if you don't have the latter, other issues may be covering that up. Taking water usually helps to increase vasodilation and calmness through inhibiting the secretion of renin and so catecholamines (flight or fight response)--but don't do that, as you're suffering from excess!I suppose here that I should note that hallucinations are not necessarily a sign of high calcium, but that they are a sign of calcium imbalance, which in your case is probably high.High manganese can also cause hallucinations. Manganese triggers adrenaline and noadrenaline and also triggers insulin production. If you're a vegetarian like me, this will be bad for you if you don't get cholesterol (changes into cortisol) in your diet, as it will cause hyperinsulinemic hypoglycemia, which triggers triggers neurological issues along with other things. If you have nightmares at night and wake up with sweat on your clothes or blanket, that could be you having a hypoglycemic attack at night.If you had bad breath along with mental disturbances, I would have immediately mentioned niacin deficiency, as these are classic symptoms. Basically, you need all the b-vitamins and vitamin K to develop myelin sheaths, which are necessary for good brain health.And did you know that cholesterol (again, made into cortisol in the body) is necessary for short-term memory, but that an excess of it hurts long-term memory?And my recommendation to you is to get off those medications. You must understand that the body is the basis of all things. All that any medicine can do is influence what is already there. You need to correct your nutrient imbalances and restore yourself to health. If you have panic attacks, take bitterroot (otherwise known as calamus): it was used by the American Indians and was one of their staple herbal treatments. It will cause a slight headache and a slight sensitivity to light, but it is a powerful anti-anxiety herb and will last for about three hours--I have taken various herbs to see their effect and so know. This is impressive in that it clears out the mind while leaving the thoughts behind: you actually think clearer and can think normally with this. The problem with you is you might have withdrawal from those drugs, so you should perhaps simply try to ease off them. I want to point out to you that your ultimate solution is in balancing your body's chemical reactions and repairing what of it you can--and the way you can do this is through nutrients.Thank you greatly for the reply dr peckitt. lol.. my doctors hate me due to it I think. I ask too many questions and they tell me they dont have time to research things to answer them. I've gone throu doctor after doctor, as Im being told my case is too complex and hence they say they dont want to take me on as a patient, I have too many unusual conditions for them to deal with.. they tell me they dont have time to deal with my case. Im currently at risk of loosing the GP (yet another one :( ), I have now as he's said if I cant get another specialist involved he dont feel comfortable treating me... For past 2-3 years, Im getting severe mood swings on top of every thing else I have and currently are trialing serquel to try to stablise the moods (which isnt working...**sighs** but im desperate and need SOMETHING to work) and he hates me being on those kinds of drugs under his care but without a psychriastrist but I dont qualify for the free mental health services (thou im on a disability allowance for the CFIDS) as i dont have what they call an actual mental health condition. My mood swings thou are so severe, that Ive got in trouble with the law and was jailed due to them!!! (so now im on bail and still going throu court stuff). Ive even halluncinated when Ive gotten too stressed (yet are classified as not having a mental health condition!..work that one out..it's stupid). Im finding it interesting what you said as I was on calcium and when I'd taken it for a couple of mths.. my premenstral dysphoric disorder wasnt so bad (but now Ive got mood stuff which is more than just the PMDD). But I dont really get how that helped..as my calicum levels arent showing me deficient so why did the calicum help some??. (Im currently back on calicum and a heap of other things with also the prescription drugs Im trialing. Im also trialing progestrone for my mood swings and also taking xanax for anxiety attacks. My doctor isnt happy Im taking xanax as Im getting it from a friend...but Im so so desperate and my anxiety gets severe but my doctor wont give me anything for it as I cant get a psychriatrist). ohh your post has made me aware that Im a little confused about the vitamin D process. Unfortunately even thou Im confused about it.. Ive found my doctors know even less on it. I so wish I knew of one who had a good understanding of vitamin D. (Its my 25-hydroxy vitamin D which is still?/was very deficient and my 1-25 dihydroxycholecalciferol which is normal levels) The lab due to my very low levels recommended that I be tested for parathyriodism issues so I did have a blood test for that but it showed my parathyriod was fine. I had to have an ultrasound yesterday (for my menstrational problems, I previously was diagnosed with polycystic ovulation syndrome..but are getting bleeding between periods now) and when they did that they took pics of my kidneys too.. they appeared fine on the ultrasound. What I thought is strange?? is my polycystic ovulation syndrome seems to have cleared up with my ultrasound not showing I have it now more thou it was on my last ultrasound a couple of years back. (so it seems some of my issues are clearing up while others are getting worst and more). My menstrational cycle thou is still all over the place and not normal. Ive got an appointment with a gynocologist next week i think it is. thanks again. I'll ask him nicely and sweetly :) if he can send me to a specialist for the D issues if my next vit. D tests are deficient still. Ive got a ton of specialists Ive seen for my different problems or are under but dont have an endocrinologist.. It's an endocrinologist I need to see for D vitamin isnt it????? or would it be a Nutritionist?? or another specialist???. I also dont seem to be healing well.. I injured my shoulder 3 mths back and are still on anti inflammatories for it, my tendon ended up tearing, I've lost my full shoulder movement and seeing a physiotherapist weekly. Doctor wants me to have another cortisone injection for it. For some reason it isnt settling down. Doctor keeps saying he's probably going to have to send me to another specialist due to my shoulder. Im having 1-2 medical appointments a week as I have so many issues.
    Anonymous 42,789 Replies
    • October 12, 2010
    • 09:54 AM
    • 0
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  • Oh, and I have heard that omega-3 is helpful with memory, although I only know about it through it's anti-cholesterol effect.The irritability is caused by the calcium imbalance, but it can also be caused through b-vitamin issues. The bathroom issues are controlled by a few things: calcium, magnesium, potassium, and sodium.Generally speaking, calcium controls constipation, magnesium diarrhea, salt excessive urination, and potassium deficient urination. But this is a gross simplification. Salt, for example, stimulates the body's retention of water, and it's low relative level stimulates urination, but high calcium can cause diarrhea, which would itself lead to water loss. And epsom salts, high in magnesium, are used as laxatives, which would also cause diarrhea.In other words, investigate chemical pathways. That is the key to success.Let me leave you with two sites to help.http://www.acu-cell.com/dis.htmlhttp://www.acu-cell.com/acn2.htmlThese two links are one site and the first one I'm showing you. One shows disorders, the other explains nutrients, and they will help you with this, although they are not sufficient alone. You need to look on Wikipedia and elsewhere for chemical pathways.http://holisticonline.com/Herbal-Med/hol_herb.htmThis site has a list of over 2,000 herbs from various medical traditions. If you need help but can't pay too much, herbs are very effective--but potent, so don't take too much and look up the dosage first.How do I know so much about nutrients? I, a year younger than you, suffered a heart attack (in the most technical sense, as no part of my heart tissue died, it might be classified as "a severe angina"; but its length and symptoms and severity match a heart attack) from a severe magnesium deficiency. I was bedridden and couldn't be up for more than an hour a time because of severe palpatations and even had things like my limbs going numb. I had to cure myself through spending few minutes of health, what few I had, researching, something I am very good at. When I had recovered my health enough to move around a bit--thankfully, I had some green peas, a high source of magnesium, around--, I went to some doctors to get some tests done. They were as petty as the ones you describe, and I knew they would be so. So I have just been researching and researching everything since this happened August and have figured out that, aside from the issue of connective tissue all having to do with my severe magnesium deficiency, I have, perhaps not only mitral valve prolapse, the theory that initially set my investigations forward, but more probably damage to my kidneys and their connective tissue through magnesium deficiency, which explains why I am always so sensitive to chemicals and slight changes in nutrient levels nowadays (the latter is a more recent develop of this period of ill health). But I suffered quite a few things and have nursed myself to a pretty good state of health. I now just have to increase my body's collagen level and supplement proteins--the word "hypoalbuminemia" is what made me find you. Hopefully I'll be one to recover.By the way, the recovery of the muscle injury process is supposed to be accelerated by taking sulfur, in the form of MSM. Make sure you research dosage for everything and take a small amount first.If you are still reading these things, please post a reply if you read this or this helps.By the way, here is the site I found out about bitterroot from. It is written by a practicing herbalist. http://www.herbcraft.org/calamus.html. It describes the experience in depth and explains the herb. I mainly post this lest you think the bitterroot I referred to was dogbane: the bitterroot that I am referring to is also known as "sweet flag". Although both herbs are bitter roots, obviously they are two very different things.Again, I hope you get well soon. Please make some reply post on your progress.Thank you greatly for the reply dr peckitt. lol.. my doctors hate me due to it I think. I ask too many questions and they tell me they dont have time to research things to answer them. I've gone throu doctor after doctor, as Im being told my case is too complex and hence they say they dont want to take me on as a patient, I have too many unusual conditions for them to deal with.. they tell me they dont have time to deal with my case. Im currently at risk of loosing the GP (yet another one :( ), I have now as he's said if I cant get another specialist involved he dont feel comfortable treating me... For past 2-3 years, Im getting severe mood swings on top of every thing else I have and currently are trialing serquel to try to stablise the moods (which isnt working...**sighs** but im desperate and need SOMETHING to work) and he hates me being on those kinds of drugs under his care but without a psychriastrist but I dont qualify for the free mental health services (thou im on a disability allowance for the CFIDS) as i dont have what they call an actual mental health condition. My mood swings thou are so severe, that Ive got in trouble with the law and was jailed due to them!!! (so now im on bail and still going throu court stuff). Ive even halluncinated when Ive gotten too stressed (yet are classified as not having a mental health condition!..work that one out..it's stupid). Im finding it interesting what you said as I was on calcium and when I'd taken it for a couple of mths.. my premenstral dysphoric disorder wasnt so bad (but now Ive got mood stuff which is more than just the PMDD). But I dont really get how that helped..as my calicum levels arent showing me deficient so why did the calicum help some??. (Im currently back on calicum and a heap of other things with also the prescription drugs Im trialing. Im also trialing progestrone for my mood swings and also taking xanax for anxiety attacks. My doctor isnt happy Im taking xanax as Im getting it from a friend...but Im so so desperate and my anxiety gets severe but my doctor wont give me anything for it as I cant get a psychriatrist). ohh your post has made me aware that Im a little confused about the vitamin D process. Unfortunately even thou Im confused about it.. Ive found my doctors know even less on it. I so wish I knew of one who had a good understanding of vitamin D. (Its my 25-hydroxy vitamin D which is still?/was very deficient and my 1-25 dihydroxycholecalciferol which is normal levels) The lab due to my very low levels recommended that I be tested for parathyriodism issues so I did have a blood test for that but it showed my parathyriod was fine. I had to have an ultrasound yesterday (for my menstrational problems, I previously was diagnosed with polycystic ovulation syndrome..but are getting bleeding between periods now) and when they did that they took pics of my kidneys too.. they appeared fine on the ultrasound. What I thought is strange?? is my polycystic ovulation syndrome seems to have cleared up with my ultrasound not showing I have it now more thou it was on my last ultrasound a couple of years back. (so it seems some of my issues are clearing up while others are getting worst and more). My menstrational cycle thou is still all over the place and not normal. Ive got an appointment with a gynocologist next week i think it is. thanks again. I'll ask him nicely and sweetly :) if he can send me to a specialist for the D issues if my next vit. D tests are deficient still. Ive got a ton of specialists Ive seen for my different problems or are under but dont have an endocrinologist.. It's an endocrinologist I need to see for D vitamin isnt it????? or would it be a Nutritionist?? or another specialist???. I also dont seem to be healing well.. I injured my shoulder 3 mths back and are still on anti inflammatories for it, my tendon ended up tearing, I've lost my full shoulder movement and seeing a physiotherapist weekly. Doctor wants me to have another cortisone injection for it. For some reason it isnt settling down. Doctor keeps saying he's probably going to have to send me to another specialist due to my shoulder. Im having 1-2 medical appointments a week as I have so many issues.
    Anonymous 42,789 Replies
    • October 12, 2010
    • 09:57 AM
    • 0
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  • completely off the original subject thread but the OP (Danica) seems to be no longer about and I'd like to respond to the posts here I just saw to me (from some time ago) and update what I'd said in this thread. Danica, if you do still see this thread, I really hope things are better for you now...........Update to what i'd previously said here Im also trialing progesterone for my mood swings That progesterone trial was a complete failure... with no changes in my mood swings BUT it was finally worked out the cause of the mood swings which had gone from being just around the time of menstration to happening all the the time (but with far worst around mentration). It turned out I had hyperinsulinemia.. and that gives me mood swings. Now i dont get mood swings unless i break the special low carb diet as specialist now has me on.. or its around the time of my period (i still have severe premenstral dysphoric disorder.. actually I just got out of hospital due to it.. as I tried to kill myself when I got my period last time and so overdosed on yet another drug Im trialing and ended up almost dying and in the ICU at the FMC for 4 days.. in hospital longer).I had to have an ultrasound yesterday (for my menstrational problems, I previously was diagnosed with polycystic ovulation syndrome..but are getting bleeding between periods now) and when they did that they took pics of my kidneys too.. they appeared fine on the ultrasound. What I thought is strange?? is my polycystic ovulation syndrome seems to have cleared up with my ultrasound not showing I have it now It turned out that the one who did the ultrasound report ended reading it wrong (sighs..same one who previously did a report on my shoulder and missed the tear in it first time round.. I think they must have someone who cant see well, currently doing the ultrasound reports). Anyway.. I took the ultrasounds to my latest gyno.... who was very very annoyed at how the report on my ovaries had been written out wrong when it clearly showed i have PCOS after all.. so yeah.. it showed the same things as these reports had done in my case in the past after all that................I wish i was up to studying up on the biochemical pathways more to sort out what is going on for me as far as the mood swings I still have at the time of my periods as they are life threatening in my case (lastest period suicide attempt also had me get double pnemonia as I was lying unconsious in my house on floor before I was found and taken to the ICU.. so im now on antibotics for that too). Im too overwhelmed on all the medical stuff (and its hard to think when one has CFS even when I do have medical interests and are intellegent in that area).... so I'll save the link of this thread and go throu that last posters posts to me when hopefully Im more able.Thanks (my latest questions are... seeing i have been diagnosed with hyperinsulinemia now and that gives me bad mood swings when i eat carbs.... could that somehow affect me around the time of my periods even when i dont break the low carb diet ive been put on??? or is my issue there at that time of month PMDD?? ...) My own gyno wouldnt believe how bad my PMS gets... **wonders what he is going to think when he hears I had to be incubated, unconscious for several days and in hospital for almost a week... due to my last period and what i did due to it*** :( (I think one of the nurses said they had me on dialysis to save my kidneys at one point). My life is at severe threat every mth (thou not all periods do i go off.. only about every 3rd one I'll get symptoms.. severe!) so I NEED to find a specialist who understands what is going on with me before this happens again and I possibly end up dead. If anyone knows of a PMDD specialist in Adelaide Sth Australia.. please email me at taniaaust1@hotmail.com Im truely scared, i have 3 weeks or so till i get my next period and dont want to be at risk then. (hospital has just told me to ring ambulance every time PMDD happens.. but the police are then called as its a routine thing.. ambulance wont come out without the police when someone is having mental health issue... and the police told me I cant use the ambulance service in such a manner)
    taniaaust1 2,267 Replies
    • January 8, 2011
    • 08:14 AM
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