Discussions By Condition: I cannot get a diagnosis.

Twitching and Noises

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Psyluna
  • January 19, 2010
  • 10:21 PM

So, I'm a 22 year old female and I've been suffering from full body twitches (shoulder shrugs, head whips, pectoral twitching, etc.) for a long time. Sometimes I make a hiccup noise (sometimes this noise can be repeated for more than an hour which makes my throat very sore). Sometimes I can suppress the twitches but it makes it feel like I'm having chills (without the cold) and I just feel gross.

The head jerks started when I was a kid, but nobody really noticed them. Occasionally another kid would ask me what was wrong with me but I would just tell them I was having a muscle spasm or a chill. My dad had Scheuermann's disease as a child and whenever I mentioned the movements to him he said that he had similar problems but that they were rare and were probably related to his spinal condition. He grew out of the twitches and assumed I would too.

In the past 3 or 4 years (about the time I entered college) the twitches started becoming more frequent and harder to ignore. My best friend's little brother was diagnosed with Tourette's recently, and since he and I have similar symptoms, I thought I would finally get checked out.

So far I've had a CT scan (normal), an MRI (normal), and some basic blood work done (all normal). My regular doctor tried to put me on a powerful anti-psychotic but it had side effects that were the same as my symptoms (plus things like not being able to move my eyes) so I didn't take them. My neurologist recommended I see a motion disorder specialist.

The reasons they don't think I have Tourette's are:
1. I'm female.
2. I don't have ADHD, OCD, or any other learning problems
3. Even though I noticed the problem, my teachers and even my mother didn't notice (but I did complain to my Dad about it multiple times)
4. My Dad grew out of his problem (which I've read you can do with Tourette's but my Neurologist suggested mean't it wasn't genetic)
5. I have a long family history of cancer, heart disease, and stuff like that (I'm not sure what that has to do with my shaking... I have good blood pressure and I don't have cancer)

My Dad thinks I might have a stress conversion disorder. It does get worse when I'm stressed, tired, or sick, but if I'm focusing on something (like in class or listening intently) the symptoms stop or lessen. From what I've read about conversion disorders, usually they're things like pseudo-seizures or paralysis... I definitely don't suffer from anything like that. Usually the shakes are worse when I'm trying to unwind or stop focusing on stuff (like when I meet up with my friends of lunch or a movie).

Sometimes I have days or even full weeks where if you weren't watching closely, you'd never notice I shake at all. Other times, I've had professors ask me what kind of medication I'm on that makes me do that. I'm not on any medications, I don't smoke, and I stopped drinking 2 years ago.

I'm frustrated. The doctors told me I would probably be able to control it with "lifestyle." I got that part. I just want to officially know what it is. I'm a communication major (a great thing to be when you shake and make noises) and we are always taught we give names to the things that are important. I think it's important.

Any help?

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3 Replies:

  • So, I'm a 22 year old female and I've been suffering from full body twitches (shoulder shrugs, head whips, pectoral twitching, etc.) for a long time. Sometimes I make a hiccup noise (sometimes this noise can be repeated for more than an hour which makes my throat very sore). Sometimes I can suppress the twitches but it makes it feel like I'm having chills (without the cold) and I just feel gross. The head jerks started when I was a kid, but nobody really noticed them. Occasionally another kid would ask me what was wrong with me but I would just tell them I was having a muscle spasm or a chill. My dad had Scheuermann's disease as a child and whenever I mentioned the movements to him he said that he had similar problems but that they were rare and were probably related to his spinal condition. He grew out of the twitches and assumed I would too.In the past 3 or 4 years (about the time I entered college) the twitches started becoming more frequent and harder to ignore. My best friend's little brother was diagnosed with Tourette's recently, and since he and I have similar symptoms, I thought I would finally get checked out.So far I've had a CT scan (normal), an MRI (normal), and some basic blood work done (all normal). My regular doctor tried to put me on a powerful anti-psychotic but it had side effects that were the same as my symptoms (plus things like not being able to move my eyes) so I didn't take them. My neurologist recommended I see a motion disorder specialist.The reasons they don't think I have Tourette's are:1. I'm female.2. I don't have ADHD, OCD, or any other learning problems3. Even though I noticed the problem, my teachers and even my mother didn't notice (but I did complain to my Dad about it multiple times)4. My Dad grew out of his problem (which I've read you can do with Tourette's but my Neurologist suggested mean't it wasn't genetic)5. I have a long family history of cancer, heart disease, and stuff like that (I'm not sure what that has to do with my shaking... I have good blood pressure and I don't have cancer)My Dad thinks I might have a stress conversion disorder. It does get worse when I'm stressed, tired, or sick, but if I'm focusing on something (like in class or listening intently) the symptoms stop or lessen. From what I've read about conversion disorders, usually they're things like pseudo-seizures or paralysis... I definitely don't suffer from anything like that. Usually the shakes are worse when I'm trying to unwind or stop focusing on stuff (like when I meet up with my friends of lunch or a movie). Sometimes I have days or even full weeks where if you weren't watching closely, you'd never notice I shake at all. Other times, I've had professors ask me what kind of medication I'm on that makes me do that. I'm not on any medications, I don't smoke, and I stopped drinking 2 years ago.I'm frustrated. The doctors told me I would probably be able to control it with "lifestyle." I got that part. I just want to officially know what it is. I'm a communication major (a great thing to be when you shake and make noises) and we are always taught we give names to the things that are important. I think it's important.Any help?You will not believe it but it could be a simple Vitamin or Mineral Deficiency.check out the below thread and evaluate yourself.http://forums.wrongdiagnosis.com/showthread.php?t=62327ThanksArya
    b12_UnDiagnosed 110 Replies
    • January 20, 2010
    • 07:45 AM
    • 0
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  • You will not believe it but it could be a simple Vitamin or Mineral Deficiency.check out the below thread and evaluate yourself.http://forums.wrongdiagnosis.com/showthread.php?t=62327ThanksAryaThanks for the reply. No one ever even suggested that it might be a deficiency! You'd think they'd check for something like that...Other than the shaking, though, I don't really have any of the other symptoms. (I'm tired a lot and under stress all the time, which makes me moody and sometimes give me nightmares. But I'm also about to graduate in May, my parents live 1,000 miles away, my mother's liver failed a few years ago from alcoholism, and I just started an internship... I come by it honnestly.)Cafeteria food could easily cause a deffiency, but the eggs are the only good things to eat in the morning so that's usually my breakfast. Also, I worked as a cook at a summer camp for handicapped children the last two summers and about 85% of our food was from scratch and it was all very well balanced... even the specialty diets. My twitching got worse there, not better, but I also sometimes worked 14 hour days off only a few hours of sleep doing nothing but manual labor.
    Psyluna 1 Replies
    • January 20, 2010
    • 05:31 PM
    • 0
    Flag this Response
  • You will not believe it but it could be a simple Vitamin or Mineral Deficiency.check out the below thread and evaluate yourself.http://forums.wrongdiagnosis.com/showthread.php?t=62327ThanksAryaHiI have been suffering like this since I was 14, I twitch, shake etc especially when under stress, nothing to do with vitamins, what a ***k idea. This is the mind being bloody cruel, I have tried to get help over the years but never found one person that understands. I am 53 now and I have gone through grinding my teeth even though it was turning me over at the time. I cannot sit still, nor sit and cuddle someone as I twitch and do so many other different things. I even do it if I am looking forward to something, this is the first time I have looked on the internet to see if there are more like me, the first one I read is just like me. I am so sick of it now, Citalopram helps but when I am bad under high stress it I cannot see anything past the present moment. I find when I am tired it is worse. Regards, Robert.
    Anonymous 42,789 Replies Flag this Response
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