Discussions By Condition: I cannot get a diagnosis.

22 and desperate

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 8, 2009
  • 04:17 AM

I am 22 i have been "sick" for 4 years now. I always had difficutly with physical activites and sensitivity to medications and pain. Never really anything until right after my 18th birthday that was dibilitating.
My sypmtoms have multiplied over the years. Starting out with chest pains with numbness in my left arm and face. I also seemed to have "heartburn" with these syptoms. After many test done on my heart and esphogus i was told my heart was okay but i did have a hypersensitive esphogus.
I have devolped pain and numbness in all extremities.
I have seen 30+ doctors over the years and have multitudes of tests done.
My condition whatever it may be is degenertive and gets worse month after month. I was diagnosed with fibromyalgia although that never seemed right and it turns out it is not fibromyalgia. I was told that i might have an undifferantied connective tissue disease. I have been told that whatever i have it is rare, and will never be pin-pointed.
My bloodwork shows elevated levels in CRP and ESR.
All MRI's have ruled out Muliple Sclerios.
My ANA's in bloodwork were normal as well.

My symptoms are the following:

Extreme pain mostly in my legs
Numbness in all extremities at random and with pressure
I have the sensation of rubberband on my legs, it feel as if there is no circulation...(no swelling tho)
I have the sensation of vibrating on my the back of my thighs, spine, and back of my head at random
Chest pains
Cold legs and feet always
Vision blurrs when i look to the sides and causes headaches
My muscles are very weak, and i cannot lift even an gallon of milk
My back muscles are also very weak and cannot hold my spine place, i have to go the chiropractor on a regular basis or else i will get pinched nerves
Also i get frequent pelvic pain (endometriosis was ruled out)
Heat sensitivity as well

The pain is horrible i had to quit college and work years ago, i have a hard time walking and am not able to do very much. I cannot even bursh my hair well it is to hard to do.

Oh and i should mention that i often feel bruised on my legs.

Does anybody else have these symptoms? Or advice? Or direction?
I am seriously desperate...

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