Discussions By Condition: I cannot get a diagnosis.

The system

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • August 10, 2009
  • 01:05 PM

Hi I have been reading with interest how many people on this forum are coping with sometimes terrible and debilitating symptoms, and still not being diagnosed, is the medical system letting many of us down?

I am getting sicker by the day and do not know which way to turn, I have used my saving up seeing private specialists and am now left with the emergency room, if I go there I am given meds and sent home.

I am now unable to eat anything without nausea or vomiting and this has been going on for 8 months but getting worse.
I have had many blood tests, scans etc, and all that was found was fatty liver and mildly elevated ALT, this has been the case for 10 years!

I have seen a GI doc and a Liver specialist both privately and all they can say is it could be NASH but your results are not conclusive, I can not afford to go back to them as I have no insurance and NO money after the last visit. Apart from my LFT being mildly high all other bloods have been normal.

This has got so bad that I feel the system has let me down and if I don't eat soon I will die before a diagnosis is found.


How do you make a GP understand that you need help?

Thanks for listening, Ian

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5 Replies:

  • I wish I had an answer for this too :o I have to agree the Medical Sysytem is letting alot of us down, but it's up to us to push until we get results. No one understands until they go through something that is (undiagnosed) put into the too hard basket and we are left to suffer.All I can say is keep pushing, and pushing, hopefully you'll find one Doctor who thinks outside the square and works it out :DSamanthahttp://www.undiagnosedillness.org
    Anonymous 42,789 Replies
    • August 10, 2009
    • 11:40 PM
    • 0
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  • I feel you. And I'm sure about 90+% of the people on this site have the same opinion. The system is horrible. I've had problems going on for over 4 months now and that pales in comparison to some of the other stories that I have read on this website....including yours. What do you do though? Unlike every other profession or business, you still have to pay without any results or final product coming from there work and the bills are usually pretty massive. I have a hard time understanding why every Doctor I see decides to give me another blood test after the first 10 didn't help figure anything out. It would be a little different if they were taken over a lengthy period of time, but they weren't. And also, why do I need a different blood test every time they have a different idea? I don't get it. Why is it so hard to ge admitted to a hospital when you feel like absolute crap? Also, why does every doctor that can't figure out a diagnosis say "You have anxiety problems." Well of course I have anxiety....I feel like crap and am sick of coming to hospitals only to be further away from a diagnosis than before I came here. Sorry, I'm done. Just wanted you to know that you are not alone and I'm sure most of the people on this site agree.
    Anonymous 42,789 Replies
    • August 11, 2009
    • 04:31 AM
    • 0
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  • You made a mistake thinking the medical doctors are healers. Sorry you are going through this. Do you have anything left for a few acupuncture treatments? Give it a try to calm down your digestive system. You may want to check into alternative healing sites, such as herbal research and homeopathy:http://abchomeopathy.com/go.php eft:www.emofree.com try to keep your spirits up...
    Monsterlove 2,921 Replies
    • August 11, 2009
    • 07:03 AM
    • 0
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  • There is a lot in what people have said.Trust me I have pushed so hard, the doctors are just not interested. Oh yes they will treat the symptoms without knowing what the disease is. The way I c it if it is not an infection, or a broken bone forget it. Drs can treat infections with antibiotics and set bones but thats about it.I seem to remember Dr used to have EXPERIENCE not always have to rely on tests, they are little more than clinicians these days.It strikes me as strange but most of the doctors I see never get up from there desks to examine you. You would have think a physical exam could tell a lot, it is almost as though they feel the don't want to find anything as it would mean they have to do something about it.Well my option at present is the er, but how bad do you have to be to get help, at least dead I would expect, it would be funny if it wasn't true:eek:
    Anonymous 42,789 Replies
    • August 11, 2009
    • 01:08 PM
    • 0
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  • I have suffered a hysterectomy, brain lesions that come and go, a mild heart attack, severe headaches, debilitating fatigue, 'brain fog, high blood pressure, gall bladder and liver symptoms and lots of other wierd symptoms. I have seen my share of E.R. doctors, neurologists, cardiologists, eye doctors, psychiatrists- the list goes on. No one seems to have the answer and my family doc thinks I'm crazy. I'm not crazy though and niether are you.I remember when I first started getting sick, I felt so alone. Now it seems like so many people are sick with something that doctors either don't know about or don't care to know about. There are lots of theories about why conventional medicine is failing so many people- I say follow the money. The dirt's out there and you don't have to dig far to know that it's really "Big Pharma" who is making health care decisions for us. Anyway, that's off the subject. What I really want to tell you is that when my M.D. failed to do his job, I turned to alternative therapies. I started seeing a D.O. who diagnosed Chronic Lyme, and I read everything I could about Lyme Disease and Chronic Lyme Disese. I see a really good chiropractor. I save and pay out of pocket for accupuncture and massage when I can. I get as much sleep as I can, avoid 'fake' foods and artificial surgar and drink plenty of water. Above all else, I supplement with Life Force International's Body Balance. It is liquid based and ionically charged and is readilly absorbed by the body. It is an amazing inflammation eater and boots the effectiveness of the herbs and homeopathic medicines that I take. It even tastes good. I would never be without my Body Balance and would strongly encourage you to start with that or some comparable whole food supplement. Remember absorbtion is key. So, those are my suggestions. You are the only one you can count on when it comes to your health. We are all in this together though and you are not alone. To your health.P.S. Life Force, Int. also offers an excellent busieness opportunity and membership is free. I have made a moderate amount of money just referring those I love. With a little effort on someone's part, it could probably pay some bills.
    Anonymous 42,789 Replies
    • August 12, 2009
    • 02:23 AM
    • 0
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