Discussions By Condition: I cannot get a diagnosis.

All The Suffering Here Shows Our Medical System To Be Very Lacking

Posted In: I cannot get a diagnosis. 22 Replies
  • Posted By: Anonymous
  • December 13, 2006
  • 03:15 AM

no message - just a sad comment

Reply Flag this Discussion

22 Replies:

  • That was my first thought after finding this site!!!
    Anonymous 42,789 Replies
    • December 24, 2006
    • 05:05 AM
    • 0
    Flag this Response
  • And my second thought was thank God I'm not alone and not crazy. Other people are still hopeful and seaching for answers.
    Anonymous 42,789 Replies
    • December 27, 2006
    • 02:09 AM
    • 0
    Flag this Response
  • This is all too true. And, I am sad to say I even work at a hospital. I have been to their ER several times with no satisfaction. It seems like doctors now days are only out for the profit & not trying to really find out what is wrong with someone. I am sick & tired of going to the doctor & them just doing a few test or putting me on meds & telling me to come back in 2 weeks & so on. And I am tired of going to the ER & getting pain medicine without them even telling me what is wrong.Something has got to be done about this!!!!
    Anonymous 42,789 Replies
    • December 27, 2006
    • 02:23 AM
    • 0
    Flag this Response
  • You're right, this is ridiculous. I found this site a few nights ago, and was shocked to see how many people are turned away and still have no answers. This is all unnessary suffering. =(
    Anonymous 42,789 Replies
    • December 27, 2006
    • 04:35 AM
    • 0
    Flag this Response
  • The faith I have with my er where I live is nonexiestant. A few weeks ago I had to take my husband there. Nobody was at the desk, so we saw a button on the wall that told us to push if no one was presant. So a few minutes later someone finally showed up. She said, "I don't know why we have that button there, it's not like there is an emergency." What is up with that. Yes, the reason for our visit was not life or death, but a comment like that worries me. Is it not called the"EMERGENCY ROOM"?So shouldn't there always be a person to help? We were the only ones in there! What if in the future I really do have a serious accident, will they treat me in a timely manner?Or maybe there is something else, like a bit of gossip, that is more important. We went in at 9:30 pm and I left at 3 in the morning. That is horrible. It was at least an hour between each person saw us. There was like 3 different people that came in to see us. I can excuse other more important emergencies, but none? Come on. Sorry had to vent.
    Anonymous 42,789 Replies
    • December 27, 2006
    • 07:58 PM
    • 0
    Flag this Response
  • With regard to Emergency Room visits, unless it is a true emergency (chest pain, suspected stroke, broken bone, severe pain) or way after hours, it's the worst place to go for non life-threatening issues. It is much better to go to a walk-in urgent care center. The doctors there can easily deal with cuts, non displaced fractures, etc. If there is anything they cannot deal with, they make arrangements to send the patient to hospital, but will discuss it first with the appropriate specialist who will be accepting the patient. That cuts down on the many hours waiting to see the ER physician, who decides whether the patient needs to see a specialist.
    Anonymous 42,789 Replies
    • December 28, 2006
    • 01:55 PM
    • 0
    Flag this Response
  • Ughhh, tell me about it. When I had one of my first panic attacks, I went there thinking I was dying, and we were stuck in the waiting room for an hour. I was sobbing and everything and it was awful. I think my mom was almost as much of a nervous wreck as I was because I was like "aaagh nooo don't leave me". I think they should run ERs in a way where the people in the worst condition are the ones who are examined first. They didn't even know it was a panic attack, and I was there for five hours! What did I get out of it? A $1000 medical bill.
    Anonymous 42,789 Replies
    • December 29, 2006
    • 07:33 PM
    • 0
    Flag this Response
  • ive been to at least 7 doctors and they all dont know what is wrong with me. Most of them try to help, but most of them just say its nothing and send me away like im fine. I think turning purple is a major circulatory problem. Doctors these days are to conceded with there fancy houses and big paychecks. The more patients they see the more money they make. So the less time they spend on you is the more insurence money that gets collected troughout the day. Im telling you the truth ladies and gentlemen the only thing on that doctors mind is not in any way how he can help you its how your money is getting into his wallet
    Anonymous 42,789 Replies
    • December 29, 2006
    • 10:50 PM
    • 0
    Flag this Response
  • I too feel like the doctors only care about the money. I remember the days when you went to one doctor & they did everything. They took the time with you. The doctors I have been too are just way too busy. They work at 2-3 different offices & they are on call at the hospital. Now, how do they have the time to spend quality time with a patient in that scenerio. I have had some good doctors lately (The funny thing is that one of them was at a clinic---he said he could not refer me---my primary care doctor was the only one that could do that). Another doctor was an ER doctor & he (NO LIE) was only in maybe his 40's. There were a few other doctors. I have also tried to get second opinions only to find out that the doctor I went to for the second opinion (& this has happened several times in the town that I live in) knew the doctor that I got the first opinion from & would not give me a second opinion. Now that stinks. What a cruddy medical system we have. Luckily I have PPO & because of that I ended up having to even going out of state one time to get away from all the crap. I know the ER is supposed to be for True Emergencies, but there are times when those of us are in horrible pain (& we feel like it is an Emergency---especially when I was having my pain with my Endometriosis) & we want to be treated with respect too. I have been to the ER TOOOOOOOO many times with misdiagnosis's & causing me even more ER visits & more misdiagnosis's & pain. They are just trying to rush you out of there too quick I guess. I do not know. There are some good ER's out there though. I hope (those of you that do have children that want to be doctors, nurses, etc.) you tell your children not to do this & to please be in this for the compassion & not the money. Hopefully the next generation will be the complete cure of all this destruction. Sorry, I could go on & on about this!!!
    Anonymous 42,789 Replies
    • January 6, 2007
    • 01:11 AM
    • 0
    Flag this Response
  • The faith I have with my er where I live is nonexiestant. A few weeks ago I had to take my husband there. Nobody was at the desk, so we saw a button on the wall that told us to push if no one was presant. So a few minutes later someone finally showed up. She said, "I don't know why we have that button there, it's not like there is an emergency." What is up with that. Yes, the reason for our visit was not life or death, but a comment like that worries me. Is it not called the"EMERGENCY ROOM"?So shouldn't there always be a person to help? We were the only ones in there! What if in the future I really do have a serious accident, will they treat me in a timely manner?Or maybe there is something else, like a bit of gossip, that is more important. We went in at 9:30 pm and I left at 3 in the morning. That is horrible. It was at least an hour between each person saw us. There was like 3 different people that came in to see us. I can excuse other more important emergencies, but none? Come on. Sorry had to vent.Oh my- I tell my bf to be careful when chopping vegetables as we know exactly who are the 2 jerks who work at the emergency room- I even told him that if something really bad happens to me- to drive out of the county.These people treated me like I was a sad lunatic when I have all kind of weird symptoms. My weird symptoms: chest pressure, inflamation all over for no reason, tingling in the muscles, nausea, constipation, chemical sensitivity, female problems, extreme thirst, strawberry tongue, flue symptoms in the middle of the night, dizyness, fainting, feel of doom, etc.All the alternative stuff is helping me-Only a few doctors are aware and are willing to connect the dots.
    Anonymous 42,789 Replies
    • January 6, 2007
    • 02:42 AM
    • 0
    Flag this Response
  • Luckily I have found acquaintances that have directed me to alternative methods that have seemed to help. An alternative book dealing with diseases that are present as a result of parasites, molds, fungus, bacteria and harmful chemicals has made all the difference. The above offenders seem to weaken the body thus allowing the body to harbor the offending chemicals that the body tries to build a resistance to by encasing or capsuling it for the bodys protection. The body is a magnificant living machine but too often we forget that we like our pets are subject to parasites. Check it out.... I know that it would be against the rules to advertise on this site but self help just could be the only answer for a good many people. Having had a lot of operations and a lifetime of good intentioned treatment thus makes me aware of the medical care as being often lacking. It is a relief to hear the problems and know that I am not alone and hopefully to encourage those that have not found the answer to their diffidulties to seek a little longer. Don't be satisfied with it is in your head when the doctor is too confused to make heads nor tails about your medical difficulty. This is your life and you have every right to demand the best informed information you can get. Remember that books can make a big difference. Arm yourself as best you can and remember that you were created by the same creator that made the universe and the stars. You have as much right to be here as anyone or thing else. So stand proud and demand answers to your questions in terms that you can understand. "There are only two things. You can cry in the name of man; or you can sing in the name of God". Even those that haven't put form to their thoughts of God are protected by the Almighty.
    dismissed 11 Replies
    • January 6, 2007
    • 02:59 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Luckily I have found acquaintances that have directed me to alternative methods that have seemed to help. An alternative book dealing with diseases that are present as a result of parasites, molds, fungus, bacteria and harmful chemicals has made all the difference. The above offenders seem to weaken the body thus allowing the body to harbor the offending chemicals that the body tries to build a resistance to by encasing or capsuling it for the bodys protection. The body is a magnificant living machine but too often we forget that we like our pets are subject to parasites. Check it out.... I know that it would be against the rules to advertise on this site but self help just could be the only answer for a good many people. Having had a lot of operations and a lifetime of good intentioned treatment thus makes me aware of the medical care as being often lacking. It is a relief to hear the problems and know that I am not alone and hopefully to encourage those that have not found the answer to their diffidulties to seek a little longer. Don't be satisfied with it is in your head when the doctor is too confused to make heads nor tails about your medical difficulty. This is your life and you have every right to demand the best informed information you can get. Remember that books can make a big difference. Arm yourself as best you can and remember that you were created by the same creator that made the universe and the stars. You have as much right to be here as anyone or thing else. So stand proud and demand answers to your questions in terms that you can understand. "There are only two things. You can cry in the name of man; or you can sing in the name of God". Even those that haven't put form to their thoughts of God are protected by the Almighty.Hello!Could you please tell us the name of the book on bacteria, mold, etc?I have no medical insurance, I have been forced to drop college (and abandon my scholarships and grants), and tons of emergency rooms bills. No diagnose and no treatment.I am being the doctor of me until my next doctor's appointment- (which my bf is going to finance with his credit card).Thanks- I can probably try to drag to borders and read it. Hehe.
    Anonymous 42,789 Replies
    • January 6, 2007
    • 04:46 AM
    • 0
    Flag this Response
  • i agree with doctors only concerned with money and how much of it they can get in one day. that is why this country has such a high c-section rate. because doctors get more money from a surgery, plus the hospital gets more money, plus the epidural doctor gets more money, plus the NICU nurses get more money and so on. OB doctors have to pay so much in malpractice insurance they are too afraid to let a woman try a vaginal birth, cause if they got sued for something, then they would lose pretty much everything. anyways, i have no faith in ob doctors anymore. i don't believe anything they say anymore. i have been lied to and mistreated by one and so it turned me against them. but i have also lost faith in my other doctors since they aren't helping me find an answer either. plus, it took me 3 weeks to get my newborn son help he needed for pyloric stenosis. they finally sent him for an ultrasound 3 weeks after i said he was projectile vomitting. they didn't believe me when i told them that he was projectile vomitting. they thought it was just spit up and told me that spit up was normal. duh!!!!!!!!! he is my 3rd baby so i knew something was wrong. they just don't listen. they just don't care. i sure wish there were doctors who cared and even called patients at home to see how they were doing. that would be nice. but it will never happen. money money money!!!!!
    Anonymous 42,789 Replies
    • January 6, 2007
    • 05:36 AM
    • 0
    Flag this Response
  • Actually there are a number of books that have influenced my approach to self help and healing. The Cure for All Diseases and several others by the same author are invaluable in preparing for steps toward health. Since ill health often prevents exercise I would suggest a very moderate form of yoga. Just sitting up straight can make a difference in allowing your lungs to take in more oxygen and thus allowing your body to function better. Most any library can be a resource. Just remember to taylor your program to your level and speed and not try to match the TV ads. If only sitting with back straight and deep breathing for 5 minutes ... you have accomplished a lot. A slow stretch is more helpful than jumping up and down for most people. With children you already have the active phase of taken care of. The Cure for All Diseases gives many patient histories of successes and progress. The above book takes into consideration primarily the sick and focuses on measures to improve your chances of your body healing itself. Doctors do have some powerful RX that can make a difference between life and death. Diagnosing must be an art rather than an occupation. Even they are handicapped by lack of first hand experience. I can't leave out vitamins/minerals and nutrition. A person can live on beans and cornbread an awfully long time. Variety and leaving off junk food is a major change that can help your chances to prosper. Most health food stores have personnel that are more than ready to help and even guide you to their library of health guides. Half price book stores are great sources for material. Some can be obtained for $1 or a little more. When children are present your responsibility is for their benefit as well as yours. Keep looking and never give up. Life is worth the battle. My grandmothers on both sides had 12 and 13 children. It has always been an inspiration for me to think of them. I sometimes wonder how they survived into their mid 80s.
    dismissed 11 Replies
    • January 6, 2007
    • 01:31 PM
    • 0
    Flag this Response
  • Actually there are a number of books that have influenced my approach to self help and healing. The Cure for All Diseases and several others by the same author are invaluable in preparing for steps toward health. Since ill health often prevents exercise I would suggest a very moderate form of yoga. Just sitting up straight can make a difference in allowing your lungs to take in more oxygen and thus allowing your body to function better. Most any library can be a resource. Just remember to taylor your program to your level and speed and not try to match the TV ads. If only sitting with back straight and deep breathing for 5 minutes ... you have accomplished a lot. A slow stretch is more helpful than jumping up and down for most people. With children you already have the active phase of taken care of. The Cure for All Diseases gives many patient histories of successes and progress. The above book takes into consideration primarily the sick and focuses on measures to improve your chances of your body healing itself. Doctors do have some powerful RX that can make a difference between life and death. Diagnosing must be an art rather than an occupation. Even they are handicapped by lack of first hand experience. I can't leave out vitamins/minerals and nutrition. A person can live on beans and cornbread an awfully long time. Variety and leaving off junk food is a major change that can help your chances to prosper. Most health food stores have personnel that are more than ready to help and even guide you to their library of health guides. Half price book stores are great sources for material. Some can be obtained for $1 or a little more. When children are present your responsibility is for their benefit as well as yours. Keep looking and never give up. Life is worth the battle. My grandmothers on both sides had 12 and 13 children. It has always been an inspiration for me to think of them. I sometimes wonder how they survived into their mid 80s.Thank you so much-You do also show great compassion.God Bless.
    Anonymous 42,789 Replies
    • January 6, 2007
    • 02:51 PM
    • 0
    Flag this Response
  • You are welcome. I have just found this website and have found it helpful as well. Sure glad I have access to the internet. For me the battle continues.
    dismissed 11 Replies
    • January 6, 2007
    • 03:15 PM
    • 0
    Flag this Response
  • I agree our medical system is lacking, and the many stories on here support that-- sorry to hear about all these terrible experiences.I'm not going to excuse how you've been treated in any way, but I do want to shed some light on the other side of the story.Most doctors are not overpaid-- many make about $80K a year for working 60 hrs/wk or more. Some specialists make a lot more, but they work very hard as well. In some specialties, costs of malpractice insurance can be 30% of the yearly salary. If you want big bucks, don't go into medicine.The reason doctors can't spend more time with you is that they have rules imposed by HMO's/PPO's, and the fact that our health system is overburdened. In a clinic environment, packing a lot of pt's ino one day doesn't mean more $$. Most doctors would much rather spend more time with people than hurry through the day.It's got to be VERY frustrating to go back over and over again and spend a lot of money for no answers and no relief. Medicine is not perfect, there are a LOT of things we don't understand, and most times in a healthy person the body will heal itself eventually and you never find exactly what's wrong. However, it doesn't help to automatically blame the doctor.I find the premise of this site to be a little confrontational. I think the best medical care happens when both the doctor and the patient work together... if the doctor is disinterested or condecending it doesn't work, and if a patient is jaded and skeptical it doesn't work. If you have a chronic condition, shop around for a doctor you connect with. If they are doing something you don't like, let them know in a polite way, and if they don't change go to someone else. When you find someone you like, let them know what your thoughts are about what's wrong... they may not completely agree, but they should respect what you think and respond to it. If you aren't seeing results, seek alternative treatments and see if they help, and tell your doctor what you're doing.Finaly, emergency rooms always suck... go to one if you've been shot or are having chest pain, otherwise it's better to go to an unrgent care clinic or make an appt with yor regular doctor... they can "grease the wheels".
    Anonymous 42,789 Replies
    • January 6, 2007
    • 11:41 PM
    • 0
    Flag this Response
  • I think your reply has gone to the wrong person. I am very indebted to physicians but at the same time I have been aware of the many abuses that are overlooked because a patient that really needs help is at their mercy. Doctors are no better than anyone else. The universities are maintained by taxes and subsidised by large investor groups and pharmacy companies that in the long run you the patient are paying for with your hard earned money and taxes to boot. There are some free clinics in Texas that are run completely by volunteers. All the doctors volunteer as do the nurses, receptionist, bookeepers, aids, etc. Even RX and operations are without cost. I myself have helped in our local clinic for several years keeping records. The one stipulation to qualify for this clinic is that the patient not have insurance. There are some good doctors around... it is just a matter of finding her or him. I do not qualify for this clinic because I am covered by insurance as a part of my retirement benefits. It is when the HMOs that are part of the retirement package are not taking care of business when the medical benefit is useless. Even those that have insurance are vulnerable to abuse from doctors that don't care.
    dismissed 11 Replies
    • January 7, 2007
    • 01:36 AM
    • 0
    Flag this Response
  • I understand what you are trying to say. But the problem here is that many of us are forced to go to the ER even if our problem is not emergency related (Gunshot wound, Chest pain, etc.). We have to work & cannot miss time from work. Even as sick as I am (I am a VERY sick person) I work my butt off. TOO many doctors will not see patients after 4:30PM (& for some reason as much as I have tried over the years they cannot ever see you late in the afternoon---those appointments always seem to be booked) which sucks. You would think that the ER doctors would have a little more compassion. I have been treated so bad from so many ER rooms that it is pitiful. I really think that sometimes it does have to do with me being a woman. I think that they think we are emotional hypochondriacs (even my husband thought that is what I was until he saw my tests & got to really know me well). One time I was in one ER & they asked me how many partners I had been with. I was infuriated & told them only my husband. They said, then your husband must have been with several women. I told them he has not & why would you insinuate as such. They said due to my symptoms I must have an STD. They put me on meds & did testing & told me that my test results would be back in a few days. Well, of course years later I found out my problems were related to Endometriosis. I have had NUMEROUS (about 50-100) STD tests over the last 2 years. All came back negative of course. I told one of my OB/GYN doctors (I think I am seeing my 5th or 6th right now---I have had so many I lost count) that I think I have Endometriosis & if he could test me for it. His response "If you had Endometriosis you would have never had been able to get pregnant". I had gotten pregnant 2X & miscarried both times. And he said "Also, if you had Endometriosis your pain you are having would only be during your period". I was having pain at other times of the month too. Boy, was he wrong. I was having so many problems one time that I asked my Family physician to do some testing because I am just tired of being sick & fatigued all the time. He did not want to do anything & just asking me if I wanted an excuse to miss a few days of work to recouperate. I was so steaming that I told him NO & just walked out of his office. I just wanted an answer, not an excuse from work. I have had so many ER doctors (before I was diagnosed with ENDO) just do tests & when they find nothing ask me if I want pain medicine. I tell them no. I tell them I want them to find out what is wrong with me.I did have one ER that was worth going to. SHANDS AT JACKSONVILLE. I saw a young ER doctor there who did testing & found nothing wrong with me. He was wonderful & told me it looked like I might have ENDO & I would have to get a doctor (since they are an ER & cannot do such things) to do a Laparoscopy on me to diagnose it for sure.I finally had one specialist ask if I wanted to me admitted to find out what was wrong with me. I agreed (& of course missed time from work that almost got me fired---I will never do that again). They admitted me. Did an Ultrasound, CT scan & a few blood tests. Of course, they had to keep giving me an IV because my infection would not go away. They discharged me about 3-4 days later with no diagnosis. I was back in the ER 2 weeks later with pain. Now that is disgusting.I could go ON AND ON.This is what our medical system has become.
    Anonymous 42,789 Replies
    • January 14, 2007
    • 08:50 PM
    • 0
    Flag this Response
  • I found this site too the other nite and am too amazed how I can relate to everyone on the years spent suffereing with no end in site till for a diagnosis come so many years later and for some still not yet. Even with a diagnosis so many conditions are not with a cure. Just more years of searching and hoping. Glad I found this and intend to give support to others.
    nccarol28732 44 Replies
    • January 15, 2007
    • 00:26 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

Safe Sex With Hepatitis C

Prevent the spread of the hepatitis C virus.

Preventing Lung Infections

With COPD, it’s important to protect your lungs.

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement