Discussions By Condition: Nerve conditions

Numbness and tingling all over

Posted In: Nerve conditions 148 Replies
  • Posted By: ang4short
  • December 4, 2006
  • 05:18 AM

About 2 months ago I began having a numbing feeling at the base of my neck and it would radiate over my entire head briefly. These feeling were odd and became more frequent. Soon my symptoms included head numbness, numbness in my shoulders, arms and hands. I even began experiencing numbness all over. I seem to have more numbness when I'm laying down. Very similar to RLS however feeling that way all over my body. I don't know if I would say numbness or pins and needles?? Very annoying! My PCP ordered blood work and a Cervical MRI. I was then referred to a neurologist. I have had a brain MRI to rule out MS and a brain wave scan EEP- I think is what it was called. Nothing. My cervical MRI showed nothing abnormal as well. I went to a chiropractor who took several xrays. His diagnonis was that my first vertibra were misaligned. He adjusted me 4 times and I felt 98% better and only had numbness in my hands. Then after my 4th adjustment he adjusted my 2nd vertibra, within hours my numbness came back. He adjusted me 2 more times and nothing, I'm back to feeling the same way again. He says that my 1st vertibra will not stay aligned due to stress. I don't feel like I'm stresses. I went to an ortopedic surgeon friday who viewed my MRI's and took more xrays. His diagnonis-nothing, my spine incl my cervical looks fine go back to the neurologist. GRRR I'm getting so frustrated. I wake up every day numb. I have extreme difficulty falling asleep as my numbness becomes worse while sitting in bed and then trying to lay down to sleep. I can not get comfortable. My PCP prescribed flexeril for me, but it doesn't seem to help. I plan to call my neurologist again tomorrow but he is also stumped. He is my 2nd opinion as a neurologist. Shall I get a 3rd one involved? I find it odd that I got relief from the chiropractor but all the other dr's claim nothing is wrong with my spine. I have been reading for weeks anything and everything I can find on the net. I feel as if I going crazy and don't know where else to turn.

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  • wow that has to be frustrating! Yes get another doc involved untill you get results. Do you have other health symptoms that you think are not conected? Some times we are suprised what is connected. I am lifting you in prayer!
    tam4givin 19 Replies
    • December 7, 2006
    • 08:27 AM
    • 0
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  • could be a borderline diabetic neuropathy-stop all sugar and gluten (wheat and other grains) products. Also, could be neurotransmitter problems-add essential fatty acids, esp fatty fish for the omega 3. Fish oil is great-get only a very pure type. Have a neurotransmitter saliva/urine profile done-L-tryptophan(now on the market and safe) will increase your serotonin-don't do this if you are on antidepresssants or are bipolar. Many medicines can damage the nervous system-ask any AIDS patient!-you can heal with Alpha Lipoic Acid (used in Europe for diabetic neuropathy-I know it works for all forms- and ALC (acetyl-L-carnitine)-this info is all over the internet and yet the docs never teel their patients-b ut also do the neurotransmitter testing-it is essential-most of what you are dealing with, esp the underlying anxiety can be fixed with the right amino acids-there are clinics that do this and you can do it thru email consult too-read Julia Ross-The Mood Cure-there is lots of hope..
    sylvester 2 Replies
    • December 11, 2006
    • 04:30 PM
    • 0
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  • im having that right now. i have anxiety so do you think that might be involved? i feel like my whole head is tingling or something. i often get dizzy when this happens too.
    Anonymous 42,789 Replies
    • December 21, 2006
    • 11:13 PM
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  • I too suffer from tingling in my back that started suddenly this past summer. I have found it is severely aggravated with caffeine and strive to eliminate it completely every day. This tingling feels as tho a rubber band has been stretched from my tail bone to the base of my spine and when I lay down it zings like crazy, especially with caffeine, crazy with something like Sudafed. After caffeine, the fingers, ears and lips even tingle. As a medical professional I have become very frustrated that I have not been taken seriously, as I see in the threads above, all tests come back "normal" so therefore nothing is "wrong." My patients expect better from me, I want to receive better from the persons from whom I look for answers. Any ideas?
    Anonymous 42,789 Replies
    • January 4, 2007
    • 07:33 AM
    • 0
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  • Have you gotten a Western Blot test for Lyme Disease??? Not everyone gets a rash or even knows they have been bitten by a tick. Have you Been checked for mineral levels??? Lyme depletes the body of many things, even minerals that other organs need to function well.. Lyme mimicks other things like MS, Fibro, CFS, Lupus, etc. Its very frustrating when the tests show normal, and no one believes you are in such bad shape. Best Wishes.
    Anonymous 42,789 Replies
    • January 4, 2007
    • 03:29 PM
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  • The fact that the chiropractic alignment helped you likely indicates that you have a slight compression of a cervical nerve root or even the spinal cord, which is also what your doctor was looking for (among other things) with the mri. The reason the chiro helped at first and then the effect dissappeared is because he first took the pressure of the root and then put it back after allignment. Here are some things you should consider:1) you should get a repeat mri and have it read by a spine specialist2) people are going to push you to get surgery if they do find something on mri but there are other way to improve like: -"decompress" your spine by hanging buy your arms off a chin up bar -exercises that work your cervical spinal muscles and stretch out! -less pressure on your neck, back and head - change your posture, sleeping, sitting positions.3) anti inflammatories might help, steroids will have the strongest effects but they also have the worst side effects if you take them for a long period of time-Good luck
    Anonymous 42,789 Replies
    • January 12, 2007
    • 02:47 AM
    • 0
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  • I have the same problem. I have numbness in my arms and it seems to be starting in my legs now. I experience the numbness primarily at night, and it wakes me up. I also thought I had numbness in my head as well. I will be going in for a physical this week and a nerve damage test the first part of February. Please let me know how you are doing Ang, and if you get any answers.
    Donna/VA 1 Replies
    • January 21, 2007
    • 07:08 PM
    • 0
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  • I can't say we have exactly the same symptoms, because everyone's body is wired a little bit differently, but I can definitely commiserate. I have been experiencing numbness/tingling (annoying! and sometimes undescribable) feelings in the left side of my scalp/head for over a year now. I have been to every doctor in every field... (general practioners, neurologists, chiropractor, ENT, pain management...) you name it, I've been there, and not ONE of them knows what is wrong, or what it is. I have had brain MRIs, neck MRIs, X-rays, CAT scans, etc. Again, nothing. 50% of the doctors I saw wanted to prescribe me an anti-anxiety, or anti-inflammatory, none of which I took because I thought their "solution" was preposterous. I have also been to a physical therapist because I thought it had to do with neck/shoulder tightness from stress as well. It may be, but the PT didn't help much. I started exercising more, and using weights (with guidance from a personal trainer) this past Fall, and each and every time I came home from the gym the numbness would be that much more prevelant and aggravating. I stopped lifting weights, and instead stuck with normal cardio routines. The ONLY relief I got in the past was laying down on my left side while sleeping. Now I get relief through acupuncture and massage. It has done wonders for me. I take herbs prescribed by my acupuncturist, and I go for treatments once a week. I get a massage once every 2 weeks now. They are both the only way I have gotten any type of hope left. I am very grateful to these unconventional methods, and I wish more people would try them out and not just force medicine that usually won't help into their body. It gets pricey, yes, but it is worth it! I would much rather spend money on helping myself and quelling the anxiety from the pain, than go shopping for clothing (which is only temporary therapy!!) If this IS all coming from stress, I would be surprised because I am only 25, but according to my masseuse, I have more knots/tightness in my back than any other patient he has (and he has patients well into their 60's). I have also been an avid skiier/snowboarder for my whole life, so that could have something to do with my tightness and constant dull aches in my shoulders/neck area...which in turn could be causing the numbness in my head. Who knows, but all I know is that I will share my story because I looked far and wide on the internet when this first started happening and became more and more discouraged when I could not find any answers. I hope you have some more answers now and you are feeling better in the future!!
    Anonymous 42,789 Replies
    • February 15, 2007
    • 00:09 AM
    • 0
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  • I also have had basically the same problem for over a year. I basically woke up one day with tingling/ numbness all over. I have been to numerous doctors. Have had head MRI's of the spine , neck, brain, every blood test imaginable and all have come up Ok. The numbness never goes away and is extremely aggravating. I also get tired very easy. I never get sick and have never had any significant health issues. I had many Lyme tests and all were negative. I finally went to a Lyme specialist and they found out I have had Lyme for a very long period of time. I went on intervenes antibiotics for two months and it did no good. I have no idea what the problem is, and the frustration is unbeleviable. All i can say is to get a major Lyme work up. If anyone else has a sugestion, I could also use the help
    Anonymous 42,789 Replies Flag this Response
  • I had tingling in my right arm, them I develped tingling in my left arm. A few months later I woke up and had tingling throughout my entire body. Also numbness and sweats. It's now been two years. I have been to every kind of Dr. you can think of and had every test - all are clear. I have tried supplemments - no change. Massage and streaching makes me feel better for the moment. My neurologist started me on gabbapentin. I take 300mgs. four times a day. It's been a lifesaver. I doesn't cure the problem but it takes the edge off and allows me to function. No real side effects. I would like to believe this condition will disappear but I haven't found the cure - yet.
    Anonymous 42,789 Replies Flag this Response
  • I am 20 years old. I have never experienced any health problems. Until I recently started feeling numb all over. It is not all the time. Just once in a while but if I start to worry about it, then it will occur more often. I first experienced the numbness all over my whole body after smoking marijuana in November. It was not my first time although I had not done it since about 16. I had experienced nothing similar to that since November until February. I decided to lay on my bed and watch tv when my legs fell asleep so i sat up to rub them and my arms were numb then my chest and stomach. If i touched my legs the tingling intensified where my hand was. I thought I was dying. After about 5 minutes (it felt like 45) passed it was over. I only felt a little nausea and nervousness from it for about an hour. SoI went for a walk, to help me relax and get my blood flowing. I jogged about ten yards and felt a sharp pain in my back like a bone was out of place on the left side..even though the vertebrae is in the middle I couldnt stand up and it was painful to move my left arm, and hard to breathe. I thought I was having a heart attack. Uncomfortable as it was I walked a little further and decided I needed a ride I sat down and waited to get picked up.I decided I was dying and had them take me to the hospital.On the way there the shortness of breath subsided, and the back pain was not killer like before. So I got in got an EKG and bloodwork all came back normal. When the doctor came in I told him what happened, when I mentioned the numbing he didnt even say anything about it and told me I pulled a muscle and prescribed muscle relaxers .Which i did not fill because I had no pain and no need for them when i got home...Then no more symptoms for another month till now. Last week it started again like every two or three days. Then yesterday it happened 3 or4 times. then when i tried to go to sleep it was hard because of the tingling. Then when i woke up this morning it started again. Sorry so long I just figured I'd give as much info as possible . Oh and I have a heart murmur. something with a valve. I was diagnosed last year in may but hadnt had any problems, so i blew it off. I don't know now maybe its the cause? I am really afraid that I maybe dying but noone seems to think anything of it. I told my older sister the symptoms and she said I am a hypochondriac, so now I don't know if I am only feeling this way because of that or what, but I do know that I don't sit there and think about it before it happens it hits me out of the blue. Anyway ..thanks for reading my post:D Thanks a lot. Vicky
    vicky1986 3 Replies Flag this Response
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  • Your story sounds a lot like mine ang4short, I to have a tingling sensation on my back, just below my right shoulder blade, every now and then all my upper extremities will go almost completely numb, and I will have painful, annoying pins and needles, which is followed by itchiness. I am getting my vitamin B12 tested tomorrow, which sounds like a likely colpurate to my symptoms. You might want to check that out too.
    JustinSP 8 Replies Flag this Response
  • I am 16 years old. I am having the exact same problem. I used to smoke pot as well, but that was a year ago. I thought it was due to that but like you it came back. Stayed for a bit then went away. Now i have the tingeling feeling all over my body. And it drives me insaine. I'm sorry I know what your going through. Also sorry i have no information but thought i would let you know your not alone, for I got very afraid as well.
    Anonymous 42,789 Replies Flag this Response
  • Glad to hear you managed to get the Lyme diagnosed - even that part is not easy. Are you still taking antibiotics? the spirochete is a slow grower and hides, is not easily eliminated, so a lot of people have to take antibiotics for years. Good news is, it seems that oral is probably as good as iv, so it's not as intrusive or dangerous as it could be. The next problem is getting the antibiotics prescribed - Lyme medicine is dominated by a very opinionated group that is heavily pushing the idea that all Lyme is easily detectable by ELISA (error #1, as you know) and then that 1 month of antibiotics is guaranteed to kill all the organisms, and any symptoms after that are residual damage, so antibiotics will do no good. This is obviously not the case, and I don't really know why they're so eager to push these mistakes onto the entire medical establishment via the CDC guidelines on Lyme they published fall 2006. It doesn't really matter why - what matters is you (and the rest of us) finding a way to get good treatment in spite of them. Good luck and good health.
    Anonymous 42,789 Replies Flag this Response
  • Wow, some of these stories are just like mine!I first experienced this tingling/numb sensation all over when I smoked pot a handful of times. It's been many many many years since I have done this, but it came back only in my hands. I was diagnosed with carpal tunnel. I wore braced and had coritozne injections in my wrists. It went away in my hands, but came back in my hands and arms in a couple of months. And now it's ALL over. Hands, face, feet, legs, back, you name it. The weird part is, it's only when I touch things with movement. It's fine when I'm still and nothing is touching me. But as soon as something touches me and moves, or if I move my hand over something, it feels like it's asleep, and it kinda hurts.
    Anonymous 42,789 Replies Flag this Response
  • Wow you guys!, Well after my post the tingling and numbness continued daily for a week. Then it kinda stopped. I haven't had any for a while. BUT I have noticed that if i sit at the computer for long periods of time I feel as if it is starting again so I just get up and do something. I did have it last night but it was only a little and when it started I just didnt move or let anything touch me. Good Luck Everyone and Thanks for the replies.:D bye
    vicky1986 3 Replies Flag this Response
  • I have also had many problems with a type of tingling in my head. It is hard for me to describe, bc it feels like a flashing/floating nerve feeling. It is not visual...as is not flashing lights. More of a welling up and dispersing nerve feeling in my head. I actually have had 2 neck MRI's, a brain MRI(that was clean) and several other tests done. I have Rheumatoid Arthritis and a herniated disc at C5-6. I have been on many meds, done months and months of PT, seen several Rheumatologists, neurosurgeons and neruologists. I was getting severe migraines that came with an aura. I went on Topomax which gave me pins and needles in the back of my head, hands and legs. I have stopped all my medsat one point or another to make sure it was not medications making me feel this way. It is still happening and it is NOT the same pins and needles feeling I got on Topomax. I am on Keppra now which stopped the severe migraines, even though I get headaches sometimes. The doctors insist Keppra won't give me the side effects I am having. I stopped it, and headaches returned, and the weird nerve feelings still stayed. I havent' had a migraine in 4 months. I have tried 4 RA meds and have been on Enbrel now for several months. My RF and inflimation levels have returned to normal on Enbrel, however, I still have pain and stiffness. I have a constant ringing in my ear as well. I have positive tests, but I still have not found out why I am having the "nerve-type" problems. The herniated disc is supposed to cause arm pain and tingling, NOT floating head tingling. Sometimes positive tests don't help to fix a problem! Surgeons don't think surgery will help the weird feelings. I hate to have surgery on my spine that might not be the answer. It is so frustrating!!! I wish insurance helped pay for massage and accupuncture. I can't afford it right now. I have major knots up and down my back and arms. I have had trigger point injections, accupressure and nothing helps. Massage therapists have said I had deep muscle problems too. Does anyone have a weird problem like mine? I am a 31 year old female, 125lbs, art teacher.
    Anonymous 42,789 Replies Flag this Response
  • im 16 years old im really creaped out by this numbing feeling all over my body it happend onece b4 after smoking marajuana also as i see it has happend to others but now i have stop and it still came back i dont know why this happens and i really wanna know why and how can i make it stop
    Anonymous 42,789 Replies Flag this Response
  • ok... here's my version...I am 21, from Saco, MaineMonday i woke up and my feet felt like they were asleep, i thought nothing of it... later that day the tingling moved up to my legs... Tusday, i woke up and all of my legs and my lower stomach/back was tingling... i went to the ER, they told me i bruised a nerve and not to worry about it... This morning i woke up and my feet, legs, chest and arms were tingling and after i came to work, it spread to my hands. i feel like my whole body is asleep. I feel like I'm cold and sweating and it won't go away. I went to a chiropractor hoping that maybe i had just pinched a nerve in my spine and she said it could be food poisoning...No one has given me a straight answer. What is going on?I want this to stop
    Anonymous 42,789 Replies Flag this Response
  • i had something similar. had flu symtoms at first and then i had an attack in the night and it felt like i couldnt breath and also had bad chest pains. that lasted about two months. doc told me that i worry to much and take some anti acids. chest pains went away but got a strong head pressure like my head was going to explode.got a mri on my head and said i have sinisitus. a month or two later another doc said mono was responsible. still got problems with breathing normal, some pains in my left side, feel jittery some times. and now i have numb or tingling in my hands and feet.
    Anonymous 42,789 Replies Flag this Response
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