Discussions By Condition: I cannot get a diagnosis.

18yr Old Undiagnosed Leg/Foot Pain, Severe

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: Twistedben
  • April 30, 2009
  • 10:40 PM

I’m a 18 year old male, who has had 4 years of severe, chronic leg pain. Currently, I have seen over 19 doctors and not one can lay a single or even multiple diagnoses on. Right now, I sit at a neuropathy diagnoses, and a bunch of other random, none conclusive diagnoses.
My pain is in my left leg and only my left leg. It’s beyond severe now. A sharp pain can sometimes arise in my left buttocks. Constantly an aching, burning pain flows through the back of my thigh and as far as down to the back of my knee. The pain skips the top of my shin, but continues down the left side of my shin to my ankle. It then picks up to a burning/tingling sensation at the end of my heel/middle of my foot. It can go as far as my toes, but usually settles in the ball of my left foot, and this pain can be aching, burning or tingling depending on “God knows What.” I also, lately, have been having a new pain which arose in the entire bottom of my foot. it feels like a pool of blood is just resting in the arch of my foot. When I touch it or put pressure on it, my foot feels as if a cold wind suddenly is blowing on it. It’s a very strange pain but now has brought my to using my cane again, because once I put pressure on it, it hurts.
When I sit, my feet turn blue/purple, yes both of my feet, and though remember I only have pain in the left. Also, my knees turn blue/purple, and both my feet/knees are cold, freezing cold, always.
I have sensitivity in both sides of my buttocks, if someone was to poke my cheek, I would hit the roof.
This pain, at sometimes, especially when sitting, can spike to such a severity, that I would seriously rather prefer death.
At first they thought it was L5 herniated disc, or any disc above that. I’ve had over 4 MRIs, disproving any herniation, and also an EMG study, which came back extraordinarily good. Still though, I had a lumbar block, 3 of them for the L5 disc, which did nothing. So then I went onwards. I was then told that I was too skinny by a orthopedic and to do extensive physical therapy, well I was sorry that my metabolism was so extravagant, but I did enlist myself into physical therapy (for the third time.) Then again, it did nothing for me. I then went to a neurosurgeon, who thought that I may have a clear case of Piriformis Syndrome, which threw me, but after explanation, I believed that I may have had it. So I followed through with a series of Piriformis injections, which did very little. I also had a trigger point injection, which was terrible, but did nothing. So then I followed through with Piriformis surgery, in which they dissected my Piriformis muscle. They found a tethered nerve entrapment, (sciatic) and a small problem with the muscle, the surgeon then corrected it. The surgery was rough but I did it, and that was 6 months ago.
No positive reactions resulted from the surgery. I’m still miserable, if not worse.
I’ve also been in pain management all along this time, about 2 years. Since I didn’t get better, my pain management doctor thought maybe just maybe I had RSD, so we did a lumbar sympathetic block, which also, did nothing. I again recently had another one of these. Also I have done many steroid injections in all different areas. As well as acupuncture, all of this did not help.
My medications: I have done steroid schedules, I have done Lyrica/Neurontin which neither helped it almost seemed like the Lyrica made it worse, I am currently on: Valium (muscle), Oxycodone 5 mg, Percacet, Morphine (MS CONTIN),), and Tramadol. Pain killer’s help, but they don’t cure, we all know this…
RSD, Discs hierniations, Piriformis, and pretty much anything practical has been ruled out.
Please, if a doctor has any idea what I may have, I will worship the ground you walk on. I dumbfound doctors for some reason. My doctor thinks possibly a Spinal Cord Stimulator is my next step. I DON’T WANT THIS, I’M 18 YEARS OLD. Please help.
Thank you for reading, TwistedBen

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14 Replies:

  • Is it left or right leg? Are you male or female? Do you have any varicose veins?
    Felsen 510 Replies Flag this Response
  • Lyme Disease? I always have had burning/stinging/aching/stabbing/throbbing/tingling hip and leg pain. It changes all the time! It can be incredibly annoying sensation or so intense I start to panic. This has been a problem for me for 17 years. I went to 30+ doctors. Then I figured out I have Lyme. Got properly tested and started treatment.My feet and knees are always cold. My legs get purple blotches, and so do my feet, but they never turn entirely purple. Lyme disease causes Nuropathy. The Lyme disease causes this sort of pain. They seem to know what is going on, but they dont know what it causing it? Please check out Lyme Disease. For me, I had a whole ton of symptoms, but my leg pain overshadowed almost all of them.4 (or more) years ago, when this started, did you notice being bit by a tick, a bulls eye rash, or possibly any flu like symptoms? I never noticed getting this with my own case, but it is a first sign of lyme.As for meds, I have done the same as you. Lyrica/Neurontin did nothing, and you are the only oother person I have found that Lyrica made things worse. It made my pain SO much worse. Other pain meds tend to help me, but tramadol makes things worse for me also. The only thing I have found that gets rid of the pain entirly is a shot of morphine, and the pain for me goes away for days after that. But, really, who can function on that stuff. I was in Lala Land. The percocett makes my pain manageable for the most part. Its pretty clear, your pain is MUCH worse than mine.Whatever you do, Dont give up hope. You will find out whats wrong. Just stick with it. It took me 17 years. It will not take you as long! You are here on this site, looking for answers, doing everything you can. Things will get better.PLEASE look up Late Stage Lyme Disease. And Look up the website Lymenet.com. Best resouce by far on how to explore the Lyme Disease possibility.The problem is finding a doctor to listen that it could be lyme. Then getting the right test. The test almost all doctors run is one that only catches lyme from about 2 weeks to a month after exposure. After that point, the test is usless. You need to have a blood test run that looks into the DNA in your blood. IgenX Labs runs this test.Things are going to get better, Ben. Don't give up hope.If you have any more questions, its best to reach me at skyler.june@gmail.com. Feel free to e-mail me about this.
    soltice57 18 Replies Flag this Response
  • Did your PT try any deep ultrasound?Have you tried using a TENS unit? Have you consulted a second neurologist? Has anyone tested you for vascular problems/conditions?Take a real hard intense medical history on both sides of the family, write everything down that you know. There may be a clue there, don't feel like you can't call and ask relatives questions, this is your life. Also ask about genetic testing. This can uncover a lot of information for individuals having medical issues with no diagnosis.Have you been ruled out for MS and other similar conditions?Any other symptoms at all such as digestive problems, dietary, allergies, fever, chills, headaches, ringing in the ears, vision, swallowing, balance, sleep, attitude, worse in the am/pm, fatigue, ......?Family history you can share at this point?
    Anonymous 42,789 Replies Flag this Response
  • Is it left or right leg? Are you male or female? Do you have any varicose veins? All the pain is in my LEFT leg. I have sensitivity to touch in my LEFT foot only. The coldness and purpleness is in BOTH my knees and feet, and the sensitivity to touch or poking is in BOTH sides of my buttocks.I am a male, 18 yrs. old.And I have no Varicose viens but I have a very, unusually prominant vein in my left foot that trails about 4 inches along myy ankel, this vein is not visible in my RIGHT foot. But on my RIGHT leg, on the back of my knee, underneath the leg (lower thigh), there is a Venise Malformation there that I've had since I was born. They first called it a stork bite, but after further investagation (Ultrasound and a renowned Vascular Surgeon) they say that its not anything to fret about, they reccommend that I get a shot in there though that supposibly will stop the clotting. It's not much pain but in the past for like 2 weeks I had a strong pain in the malformation. I'm getting this shot in June. Mind you this is on my RIGHT leg not my LEFT where I have the nerve pain. Lyme Disease? I always have had burning/stinging/aching/stabbing/throbbing/tingling hip and leg pain. It changes all the time! It can be incredibly annoying sensation or so intense I start to panic. First, I want to say thank you for such a long and helpful reply. And thanks for the words of reassurance. I did research into the subject of Lyme disease rather extensively, well as much as I could accomplish through the internet. My next appointment with my two primary doctors I will bring up the possibility of Lyme disease and see what they have to say. After looking into this disease, I have to say that I can probably rule it out. Of course, I cannot be sure. I have had blood tests that have comeback negative, but I don't think I've ever undergone a DNA blood test. It is very strange that we BOTH have had negative and even a bad response to Lyrica/Neurontin. Maybe that's a link, but again I can't be sure. The reason I believe that I don't suffer from this is because most of my pain is burning pain. I didn't see much writing about burning types of pain. Also the information I researched didn't include thigh pain or sensitivity in the buttocks (extreme sensitivity, even sheets that brush across my skin can make me jump.) Also I only have the problem in the one leg it seems... Often, my left foot is a different color from my right and most the time it's even colder than my right, but both are alarmingly freezing. The reason I bring this up is because I didn't see if Lyme affected only one leg/foot/hand or both. I don't think Tramadol makes my pain worse, but I do avoid taking it because I mostly rely on Morphine and percocet now. My doctor just perscribed me to Methedone in hopes possibly it would take my pain away more efficiently, for not even 120mg's of morphine did. I also was just recently perscribed to Prednisone, in hopes that it will address this new, terribly intense (menthol type) burning pain in my foot. It seriously feels like I broke my foot with constant burning underneath it. I'm not sure if the prednisone is helping, but this new pain seems to be changing (less broken bone feeling, more burning) and I can also walk on it easier now. My doctor doesn't want to jump into the stimulator, for I am very skinny and he believes it may cause more problems than it's worth. I am on a road to seeing another specialist in terms of alternative help for pain (PT, Meds, Physc., Acupt. Massage). I've tried all this, but it seems like I have nothing left to try, I've ran into the brick wall that seals off the road for me to get better...Thanks so much for your time and help Soltice Did your PT try any deep ultrasound? Thanks for your reply and questions Rebel,I've never had deep Ultrasound therapy, I have had two tests for Ultrasound and the only diagnosis I got was that I had thick artery walls in my left leg and they saw clots in my right leg in my Malformation, these are superficial clots though and supposibly not threatening besides some discomfort, I am having these taken care of in June... I have used TENS unit, both proffessionally and at home. It never seemed to help my pain, at all. The pain seemed to TRUMP the sensation.I have seen about five neurologists, half of which are very renowned. And the head of the Cleveland Clinic Vascular department. Most of my treatment has been at the Cleveland Clinic, but I have gone to EVERY hospital in the area.I've never gone through a extensive vascular test, I mean from what I know of. I've been through every practical test out there, MRI, US, XRAY, EMG and a bunch of Diagnostic tests.MS seems to have been ruled out, for I have no debilitationg conditions besides MORE AND MORE PAIN. There is no clear and present danger that has been in my family, no problem or disease that really sticks out and throws up a red flag, besides arthritis, but i've tested for that.I have digestive problems, constipation because of pills, I can't sleep because of worry and anxiety, I am tired a lot but nothing that's prominantly a problem, I get bad headaches (pressure headaches, migrains) almost every day. Sometimes I get Cluster Headaches which for over 30 minutes feels like someone is drilling into my right side of my skull (I assume all of these symptoms are from pills).Thanks a alot,Twistedben:)
    Twistedben 5 Replies Flag this Response
  • My pain problem is mostly burning pain. But, you know, I don't think its lyme with you. Still, if you can not figure out what it is, you should get tested with the right test. The other test will always be wrong. Its always worth a shot. Late State Lyme can do all sorts of weird things to the body. I REALLY hope you figure out what this is. Please keep me posted on how you are doing. I can't wait to hear from you that things have been figured out and you feel better. :)
    soltice57 18 Replies Flag this Response
  • I know you said you ruled out RSD with the spinal block but I really wouldnt just let the possiblility of it being RSD go just yet. I have RSD and have had since age 16 and most all the symptoms you discribe is every thing I went through and still am going through. Can I ask what the name is of your pain doctor? Why I say not to let it go is its not at all easy to diagnose I myself went through 56 doctors even the mayo clinic and had every test in the book and they couldnt diagnose me, finally we found one doctor that could not by ***g tests just by my history and symptoms, like color changes, temperature changes ect. There are a few out there with RSD that the spinal block just doesnt help or prove they have RSD, they have what they call "Sympathetically Independent Pain" and it just doesnt respond to any kind of blocks. I know how you must be feeling with the idea of a spinal cord stimulator, I felt the same way I was 20 when they wanted to put it in but I eventually gave in as I was very dissabled so we started with a 4 week trial. The trial stimualtor I actually had put in at the cleveland clinic and they did a very good job and the best thing was it actually help, my pain wasnt all gone at all but I went from a wheelchair to walking. Putting in the permanent if the trial works will be even a harder desicion as sometimes it keeps helping and sometimes after awhile the pain like finds its way around it. I know how fusturating and discouraging all this can be when your in so much pain and no doctor seems to know whats wrong. In the last 2 years I have seen now more than 135 doctors from the diagnosis and treatment and I am only 21. One treatment you could look into and its used mainly for RSD but I have met others with different conditions using it and thats the Ketamine Infusions. I am doing this now as I went through every other treatment out there blocks, pumps, stimulator, meds, PT, OT, pain programs and none help. The ketamine has helped a lot, before my RSD was so bad I would end up in the ER 2-3 times a week because of flares but now its like only once a month. One thing you want to prevent is any spreading, that was my problem mine started in my foot but by the time I was diagnosed it had gone full body and internal, which doesnt always happen but it can. I hope that whatever your pain is that you find what your looking for and get some relief real soon. Niki
    nikiski1 35 Replies Flag this Response
  • Twisted Ben, I think that you should be evaluated by e good vascular surgeon, to be sure that you don’t have deep vein thrombosis or compression (or both) of left common iliac vein or lower vena cava. There is a condition called May-Thurner syndrome. It is when the right iliac artery compresses the left iliac vein against the spine. This causes the blood to congest in the left leg because it can not normally pass the compression on its way back to the heart. It does not necessarily results in the pain at the compression site (if it does it gives a lower back pain); most often it causes pain or swelling or both in the left leg and/or buttock. (Sometimes the anatomical structures are different and this can happen on the right side or on both sides). If you have a compression like this, after a while your circulatory system is trying to develop alternative veins. They are called collateral veins. Most often there are transpelvis collaterals (horizontal ones from left to right in pelvis), but some patients can develop them near the spine or even inside it. Then it can give pressure on nerves and give numbness and tingling sensation in legs. Another typical symptom is ambulating pain, the pain moves around depending on where the pressure is high at the moment. Also, the pain subsides when you lay down. This condition is vastly underdiagnosed. It is impossible to discover with ultrasound and even difficult to discover with venography (phlebography). The only certain way to discover it is by means of intravascular ultrasound (IVUS) where the probe is inside the vein. The best research has been done by Neglén and Raju in Jackson, Miss. The treatment is to put a stent inside the vein at the site of the compression. The typical patient is a young – middle-aged woman (30 5 of the patients are men), previously healthy where the doctors have not found other explanation for the symptoms. If left untreated, there is a big risk of thrombosis either at the compression site in the left common iliac vein or in the left leg. Could this possibly help? The best of luck!
    Felsen 510 Replies Flag this Response
  • Soltice - Thanks for your care and compassion, I really appreciate it. I agree with you, I will investigate it further. but it is unlikely. Thanks for your opinions. nikiski1 - Thanks Niki for your concern and ideas. I tend to agree with you, I may very well have RSD. It sure seems like it. And recently my foot has been so purple and blotchy compared to my right that it makes me wonder if I may be suffering from it. The blocks didn't help like I said, they made it worse. And you could be right, Sympathetically Independent Pain, is a big possibility. I am going to bring that up to my doctor next time I see him. A PA I saw recently said that since the pain got worse after the Sympathetic Block that possibly it means the injection hit the right nerve (the Sympathetic nerve). The only reason why I and my doctor have trouble commiting to RSD is the fact all my history doesn't exactly line up with that diagnosis. Only recently, when my pains been changing, has it seemed a lot more like RSD. Though my doctor does admit it could possibly be the EARLY stages of RSD, therefor the disease had a very slow onset (4 years). Also, I have done soo many treatments that should help RSD and with no relief, so it's strange.Some questions I have for you:Do you still have the stimulator in? And does it help you? What do Ketamine Injections treat, only RSD?My main doctor is Dr. Cheng at the Cleveland Clinic, he's my pain management doctor.Thanks for everything, I'll keep your suggestion in mind. Felsen - I don't believe that I suffer from the syndrome that you described. Though I do agree with you on the terms that I have to see a good vascular surgeon. I will be seeing my old one again soon, but I'm going to make another appointment with a different one for a second opinion. Just in case, I want a different set of eyes, for I havent seen nearly as many as VAscular specialists as others.Thanks for everything. Twistedben
    Twistedben 5 Replies Flag this Response
  • I am now going through exactly what you are talking about my left leg also hurts badly all the time if i could, i would have already cut it off.my doctors are stupted also, i am currently seeing a rhuematologist to be worked up for arthritis, my pain started about a year ago and i have not found anything that helps, I am a 27 year old female so i don't think it matters wether you are male or female but ask your doctor about getting the blood test HLA B27 done I’m a 18 year old male, who has had 4 years of severe, chronic leg pain. Currently, I have seen over 19 doctors and not one can lay a single or even multiple diagnoses on. Right now, I sit at a neuropathy diagnoses, and a bunch of other random, none conclusive diagnoses. My pain is in my left leg and only my left leg. It’s beyond severe now. A sharp pain can sometimes arise in my left buttocks. Constantly an aching, burning pain flows through the back of my thigh and as far as down to the back of my knee. The pain skips the top of my shin, but continues down the left side of my shin to my ankle. It then picks up to a burning/tingling sensation at the end of my heel/middle of my foot. It can go as far as my toes, but usually settles in the ball of my left foot, and this pain can be aching, burning or tingling depending on “God knows What.” I also, lately, have been having a new pain which arose in the entire bottom of my foot. it feels like a pool of blood is just resting in the arch of my foot. When I touch it or put pressure on it, my foot feels as if a cold wind suddenly is blowing on it. It’s a very strange pain but now has brought my to using my cane again, because once I put pressure on it, it hurts. When I sit, my feet turn blue/purple, yes both of my feet, and though remember I only have pain in the left. Also, my knees turn blue/purple, and both my feet/knees are cold, freezing cold, always. I have sensitivity in both sides of my buttocks, if someone was to poke my cheek, I would hit the roof. This pain, at sometimes, especially when sitting, can spike to such a severity, that I would seriously rather prefer death. At first they thought it was L5 herniated disc, or any disc above that. I’ve had over 4 MRIs, disproving any herniation, and also an EMG study, which came back extraordinarily good. Still though, I had a lumbar block, 3 of them for the L5 disc, which did nothing. So then I went onwards. I was then told that I was too skinny by a orthopedic and to do extensive physical therapy, well I was sorry that my metabolism was so extravagant, but I did enlist myself into physical therapy (for the third time.) Then again, it did nothing for me. I then went to a neurosurgeon, who thought that I may have a clear case of Piriformis Syndrome, which threw me, but after explanation, I believed that I may have had it. So I followed through with a series of Piriformis injections, which did very little. I also had a trigger point injection, which was terrible, but did nothing. So then I followed through with Piriformis surgery, in which they dissected my Piriformis muscle. They found a tethered nerve entrapment, (sciatic) and a small problem with the muscle, the surgeon then corrected it. The surgery was rough but I did it, and that was 6 months ago. No positive reactions resulted from the surgery. I’m still miserable, if not worse. I’ve also been in pain management all along this time, about 2 years. Since I didn’t get better, my pain management doctor thought maybe just maybe I had RSD, so we did a lumbar sympathetic block, which also, did nothing. I again recently had another one of these. Also I have done many steroid injections in all different areas. As well as acupuncture, all of this did not help. My medications: I have done steroid schedules, I have done Lyrica/Neurontin which neither helped it almost seemed like the Lyrica made it worse, I am currently on: Valium (muscle), Oxycodone 5 mg, Percacet, Morphine (MS CONTIN),), and Tramadol. Pain killer’s help, but they don’t cure, we all know this… RSD, Discs hierniations, Piriformis, and pretty much anything practical has been ruled out. Please, if a doctor has any idea what I may have, I will worship the ground you walk on. I dumbfound doctors for some reason. My doctor thinks possibly a Spinal Cord Stimulator is my next step. I DON’T WANT THIS, I’M 18 YEARS OLD. Please help.Thank you for reading, TwistedBen
    Anonymous 42,789 Replies Flag this Response
  • I wonder if it is sciatica. Check out this link:http://www.wrongdiagnosis.com/s/sciatica/intro.htm
    gr8tful 175 Replies Flag this Response
  • Ben, I am not a doctor by any means, but I have learned in life that some of the things you think do not matter do, like a symptom, even a reaction can be a symptom, you said thatthe Lyrica seem to make it worse? Which gives you a direction, Lyrica directly effects your nerves, Lyrica changes the signal that goes to your brain, more pain or worse pain still an effect. means your touching the right spot. It lets you define what kind of pain it is. muscle, nerve.... you also described headacks, discoloration of the skin, I would have your doctors recheck your MRI for Spinal Stenosis just my thought, the skin discoloration has to do with the oxygen in your blood, you ever feel asleep on your arm and it hurt after you got off of it, the blood runs back into it. either your body is not making enought red blood cells or they are not getting through, or even a bad blood cell disorder which all could cause never pain. but it sounds like the nerve is where I would start.
    Anonymous 42,789 Replies
    • January 20, 2010
    • 03:59 AM
    • 0
    Flag this Response
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  • A few years ago I had a similar experience starting with both feet, traveled up to my lumbar and then into my fingers. Pain was unbearable. I was tested for everythign under the sun with no diagnosis.Eventually, the nuerologist suggested a heavy dose of Tamiflu becuase he thought that I may have picked up a virus that settled in my lumbar. On the third day of Tamiflu I developed a golf ball size knot in the crease between my upper right thigh and pelvis. The next day it was gone and so were all the symptoms. To this day no one has been able to explain it, but regardless life is back to normal.It's worth a try.
    Anonymous 42,789 Replies Flag this Response
  • Just found your comment. I too have been going through foot pain, going on three years with this past year being the worst. The pain is in one leg and for me is worse in my foot. I have always wore good shoes, but when the docter told me i had Planters Facisitis it just did not make sense. I went through tons of testing and therapy including a cortizone shot which did nothing but make it worse. I finally started looking out what might have changed in my diet in the last 3 years and remembered i changed to diet sodas when i went on weight watchers.( mostly diet coke and diet pepsi) I even notice i tended to drink more of it since it was zero calories. I stopped drinking it about a month ago and now finally feeling relief. I can now go on long walks with little to no pain at all. To think of the thousands of dollars on medical bills i have wasted for a professional medical help. So for me, the resolution was removing Diet Coke/ Diet drinks from my diet. Best wishes and good luck!I’m a 18 year old male, who has had 4 years of severe, chronic leg pain. Currently, I have seen over 19 doctors and not one can lay a single or even multiple diagnoses on. Right now, I sit at a neuropathy diagnoses, and a bunch of other random, none conclusive diagnoses. My pain is in my left leg and only my left leg. It’s beyond severe now. A sharp pain can sometimes arise in my left buttocks. Constantly an aching, burning pain flows through the back of my thigh and as far as down to the back of my knee. The pain skips the top of my shin, but continues down the left side of my shin to my ankle. It then picks up to a burning/tingling sensation at the end of my heel/middle of my foot. It can go as far as my toes, but usually settles in the ball of my left foot, and this pain can be aching, burning or tingling depending on “God knows What.” I also, lately, have been having a new pain which arose in the entire bottom of my foot. it feels like a pool of blood is just resting in the arch of my foot. When I touch it or put pressure on it, my foot feels as if a cold wind suddenly is blowing on it. It’s a very strange pain but now has brought my to using my cane again, because once I put pressure on it, it hurts. When I sit, my feet turn blue/purple, yes both of my feet, and though remember I only have pain in the left. Also, my knees turn blue/purple, and both my feet/knees are cold, freezing cold, always. I have sensitivity in both sides of my buttocks, if someone was to poke my cheek, I would hit the roof. This pain, at sometimes, especially when sitting, can spike to such a severity, that I would seriously rather prefer death. At first they thought it was L5 herniated disc, or any disc above that. I’ve had over 4 MRIs, disproving any herniation, and also an EMG study, which came back extraordinarily good. Still though, I had a lumbar block, 3 of them for the L5 disc, which did nothing. So then I went onwards. I was then told that I was too skinny by a orthopedic and to do extensive physical therapy, well I was sorry that my metabolism was so extravagant, but I did enlist myself into physical therapy (for the third time.) Then again, it did nothing for me. I then went to a neurosurgeon, who thought that I may have a clear case of Piriformis Syndrome, which threw me, but after explanation, I believed that I may have had it. So I followed through with a series of Piriformis injections, which did very little. I also had a trigger point injection, which was terrible, but did nothing. So then I followed through with Piriformis surgery, in which they dissected my Piriformis muscle. They found a tethered nerve entrapment, (sciatic) and a small problem with the muscle, the surgeon then corrected it. The surgery was rough but I did it, and that was 6 months ago. No positive reactions resulted from the surgery. I’m still miserable, if not worse. I’ve also been in pain management all along this time, about 2 years. Since I didn’t get better, my pain management doctor thought maybe just maybe I had RSD, so we did a lumbar sympathetic block, which also, did nothing. I again recently had another one of these. Also I have done many steroid injections in all different areas. As well as acupuncture, all of this did not help. My medications: I have done steroid schedules, I have done Lyrica/Neurontin which neither helped it almost seemed like the Lyrica made it worse, I am currently on: Valium (muscle), Oxycodone 5 mg, Percacet, Morphine (MS CONTIN),), and Tramadol. Pain killer’s help, but they don’t cure, we all know this… RSD, Discs hierniations, Piriformis, and pretty much anything practical has been ruled out. Please, if a doctor has any idea what I may have, I will worship the ground you walk on. I dumbfound doctors for some reason. My doctor thinks possibly a Spinal Cord Stimulator is my next step. I DON’T WANT THIS, I’M 18 YEARS OLD. Please help.Thank you for reading, TwistedBen
    Anonymous 42,789 Replies
    • November 5, 2010
    • 05:16 PM
    • 0
    Flag this Response
  • Im seeing this very late and I hope you see my reply. I had the same thing happen to me 8 years ago. No doctors could my problem. It got to the point that I couldnt walk, my family thought I was crazy and the pain was unreal! Then I found a doctor in Tampa FL. I did have RSD. Doctors do not understand RSD. Dr Anthony Kirkpatrick is the head chair and research doctor for theRSD foundation. I have undergone a ketamine coma and now pain free for the first time in 8 years. Dr. Kirkpatrick is known all over the world and is an expert in his field please look into him. He holds the key to all your answers. 1910 Busch Blvd Tampa FL. In my book this doctor is a god, he helped me when no one else could. Don't waste years like I did suffering!
    Anonymous 42,789 Replies Flag this Response
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