Discussions By Condition: Medical Stories

thyroiditis

Posted In: Medical Stories 5 Replies
  • Posted By: Anonymous
  • November 8, 2006
  • 02:02 AM

I was diagnosed with hashimoto's thyroiditis about 2 months ago. My levels we at 80. So they started me at 75mcg. 2 weeks later I moved up to 112mcg. The dr gave me samples of synthroid. I started the new dosage and now I feel worse then before!! I have a lot of pain all over, and I have gained even more weight and am losing more hair. My skin started itching all over. Then I can't sleep at night anymore. I have to take tylenol pm most nights. I don't feel like I have gotten any sleep in the last month. I really do feel worse now then ever. I think that it maybe the synthroid. I had taken the generic kind first and did awesome, but once I stared the higher synthroid I went down hill. I have changed to the generic 112mcg now and hope I feel better. I was wondering if maybe it is the synthroid or maybe it's just that I my levels after I took the generic went down fast to 10 and now they are leveling off so I could possibly need an even higher dosage? Let me know if anyone else has felt like this on synthroid. THANKS

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5 Replies:

  • Hi,I was diagnosed with Hashimoto's about four years ago, and without a doubt those first few months are the worst. Some people do have a bad reaction to the "filler" material in Synthroid, so if you were doing better on the generic, definitely switch back to that. You should be able to get your doctor to write a prescription for the specific generic that you felt best on. Every time you refill your prescription, double check that the pharmacy hasn't changed the type on you.That said, you can't expect the thyroid medication to be a miracle pill. Thyroid hormone is needed in every cell in your body, and for months or more likely years before your diagnosis, every cell in your body was being denied the thyroid hormone it needs. It will take awhile for your body to heal from that. It usually takes between six months and three years of treatment to get the symptoms under control. Just stick with it, take your thyroid meds at the same time every day, without food or vitamins three hours before or one hour after, every single day. Consistency is key.As far as needing a higher dosage, you and your doctor will need to adjust your dosage off and on for the rest of your life. Expect to have your dosage changed several times during the first three years or so after diagnosis. But keep this in mind: the effects of the thyroid pill you take today can't even be measured by lab tests for another six weeks. According to the American Association of Clinical Endocrinologists (AACE http://www.aace.com), optimal TSH levels are between 0.3 and 3.0, so that is the range you should be shooting for, eventually. Especially during this first year, you need to keep in touch with your doctor and get your thyroid numbers retested every 6 to 8 weeks, and make sure your doctor adjusts your dosage in response to your lab results. Once your TSH is stable and between 0.3 and 3.0, you'll still need to have your TSH retested every six months. Hashimoto's can go into remission, which would require a lowering of your dose, and it can worsen, which would require an additional increase in your dosage. It's important that you keep tabs on your TSH at least twice a year for the rest of your life, even if your levels have been optimal and stable for a long time.While you're waiting for the meds to make a difference, read everything you can here: http://thyroid.about.com/ That is one of the most comprehensive and trusted webpages on thyroid issues around, and the message boards there are a great place to get support.~Ryot
    Anonymous 42,789 Replies
    • November 14, 2006
    • 08:28 PM
    • 0
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  • Hello, I thought I should share this for people who have Hashimoto's thyroid disease.I had it for 21 years.I was put on suppression therapy because I had a nodule that was a colloid type non-cancerous.I would go to the endocrinologist about every six months to a year.Then when I was around 47 years old I started having hyperthyroid symptoms.I went to my endo Dr and complained,He did bloodwork and said they were fine.I continued with symptoms of heart palpitations,couldn't sleep etc.Went to emergency room at least four times,when in emergency room told them I needed a new Endocrinologist.They directed me to someone.I went to him right away he did ultrasound,radioactive Iodine test with uptake test.I was told that it was certain I had a malignancy of the thyroid.I had a total thyroidectomy in April 2005.First they said I had multinodular goiter upon a frozen section of the thyroid after surgery.Then two weeks later the results were in.Ihad follicular derived carcinoma.Thyroid cancer.I had to have radioactive Iodine ablation,two body scans to see if it had spread to my body.Luckily it was contained in the thyroid.I had a nodule that was 5.6 centimeters and 2 smaller ones on the left lobe.That dr. I went to for fifteen years did nothing for me,I could have died If I hadn't been persistant complaining.We have to be our own advocates for health,and also the dr.needs to listen to us not just look at our lab values.Not everyone feels good at the same level of synthroid.I just had a body scan done 2 weeks ago and it was negative,no cancer recurrence.If I had known that Hashimoto would up the chance of cancer I would have had surgery 20 years ago.I would not want anyone to go through what I did.Ask your Dr.about risk of Thyroid cancer with this disease.My dr.said it increases the risk of cancer.summeri
    summeri 2 Replies
    • November 16, 2006
    • 03:00 PM
    • 0
    Flag this Response
  • Years ago, I was diagnosed with Thryroid Disease. Initially, a specialist failed to properly diagnose me and I went without treatment for over a decade. Later I found Dr. Parks, a former medical professor who recommended taking Armour Thyroid made from pigs. It comes in milligrams and must be taken at the same time each dayto be effective. It's an old time remedy and many doctors have strayed away from it because they say it can be inconsistent in its potency. I am sure pharmaceutical companies play into this as well. Took Synthroid and experienced upon rising in the morning, pain in my legs, joint pain, tiredness and dryness in my skin, hair etc. It was like having another illness. Thryoid symptoms didn't improve much either. Even with Synthroid, needed monitoring every 6 months, dosage changes. An acquaintance taking Synthroid has many of your symptoms. Her doctor refuses to change her meds. Medicine is not a concrete science--many times doctors can be wrong at our expense. We are still discovering things like Pylori bacteria which cause peptic ulcers. About tweny years ago, a doctor in Australia noticed his peptic ulcer patients recovering after being treated with high dosages of antibiotics for another illness. Then thought that stress, poor diet, spicy foods brought on peptic ulcers. Incorrect but it took years before scientists and med profess. accepted this new discovery. Armour works for me. Find a doctor who will work with you. Good luck
    Anonymous 42,789 Replies
    • December 6, 2006
    • 00:39 AM
    • 0
    Flag this Response
  • Hello, I thought I should share this for people who have Hashimoto's thyroid disease.I had it for 21 years.I was put on suppression therapy because I had a nodule that was a colloid type non-cancerous.I would go to the endocrinologist about every six months to a year.Then when I was around 47 years old I started having hyperthyroid symptoms.I went to my endo Dr and complained,He did bloodwork and said they were fine.I continued with symptoms of heart palpitations,couldn't sleep etc.Went to emergency room at least four times,when in emergency room told them I needed a new Endocrinologist.They directed me to someone.I went to him right away he did ultrasound,radioactive Iodine test with uptake test.I was told that it was certain I had a malignancy of the thyroid.I had a total thyroidectomy in April 2005.First they said I had multinodular goiter upon a frozen section of the thyroid after surgery.Then two weeks later the results were in.Ihad follicular derived carcinoma.Thyroid cancer.I had to have radioactive Iodine ablation,two body scans to see if it had spread to my body.Luckily it was contained in the thyroid.I had a nodule that was 5.6 centimeters and 2 smaller ones on the left lobe.That dr. I went to for fifteen years did nothing for me,I could have died If I hadn't been persistant complaining.We have to be our own advocates for health,and also the dr.needs to listen to us not just look at our lab values.Not everyone feels good at the same level of synthroid.I just had a body scan done 2 weeks ago and it was negative,no cancer recurrence.If I had known that Hashimoto would up the chance of cancer I would have had surgery 20 years ago.I would not want anyone to go through what I did.Ask your Dr.about risk of Thyroid cancer with this disease.My dr.said it increases the risk of cancer.summeriI too have Hashimotos and it looks like I am heading in the same path as you. I am now taking METHIMAZOLE to prepare for my thyroidectomy. I only wish the doctor would have done this surgery years ago to save me from the horrible hyper/hypo rollercoaster! My doctor sounds very similar to yours. I am very anxious about my surgery, any advice? I am very anxious about the nodule and what might come out of it.
    Anonymous 42,789 Replies
    • December 17, 2006
    • 08:08 AM
    • 0
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  • I had severe thyroiditis symptoms in my twenties. What happened as a result would be considered a thyroid storm. I had a stroke. The doctor missdiagnosied my thyroid problem. An ultra sound showed a very heterogeneneous pattern of echogenicity. This I had confirmed in my 2003 ultra sound. The think I have come to learn about doctor is they don't listen to patients. When you have everything consistant with a disease why don't they do the right test. I have almost died twice now because of doctor stupidy!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    Anonymous 42,789 Replies
    • February 15, 2007
    • 00:13 AM
    • 0
    Flag this Response
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