Discussions By Condition: I cannot get a diagnosis.

I know this is my 3rd post but im really getting desprate

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Kurtis18
  • November 9, 2008
  • 06:31 PM

So i went to get another opion the other day,once again stress.the doctor tried to shuffe me of with the tension headache diagnosis again.i told him clearly my headache was not tension reletated and if he would send me for a CT and a MRI. he simply refused told me he will only do this when he thinks nesccary for a paitent.so he sent me on my way with Amatripline and Codeine for my headaches.i cant really tell if they have worked because my headaches are reccuring. for sevral days ill be fine then ill have a terrible headache for a day. some more sympyoms have gone yet more have started

Jolting in lower body ( seems like im juping when im sitting down)
When i put pressure on any part of my head it gives me a small headace like pain in the area

what feels like tiny lumps under skin..Docotor said this is muscle tissue as i do have soft muscle tissue and is common to get wastage
Eye floaters have gone.but now metalic taste in mouth
Heavyness in legs
dont feel unwell just the pain thats getting me
can see my heartbeat on my face chest abdomen penis and both arms also if i concentrate in vison


i know youve already heard this all before and im very sorry for posting again

im going for a 5th opion and my new aquired docotr in a few weeks time

i just hope he more considerate in this time of need

Thank you all for your support

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10 Replies:

  • If you don't mind me asking, what is it you are seeking to find with respect to wanting an MRI or CT scan? If you don't mind, please describe the headaches; do they come on suddenly or gradually, is there a focused pain or does it occur all over the head, do you experience visual disturbances during the headaches, are there other symptoms that occur which alert you that a headache is about to occur? How long have you had the headaches and is there anything you take which reduces the pain? Do you feel washed out or sluggish following the dissipation of the headache? Realize that these diagnostic imaging studies are not magical tools of some type that reveal the nature of symptoms being expressed by the patient, in your case headaches. We specifically use MRI and CT imaging to confirm rather than search for a cause. There is little to be gained by obtaining either of these imaging studies in the presence of pain symptoms expressed by the patient. Realize that pain from things like tumors cause a variety of symptoms well before any pain is experienced. It's important to understand that demanding a test can be frustrating if your idea of what the test is utilized for is far different than your physician's. As for the tiny lumps under your skin, I'm not certain what the statement by your doctor suggests, but the lumps are most likely lipomas, which as simply benign cysts composed of adipose tissue. They are typically firm to the touch but moveable under the skin and range in size from small nodules to growths sometimes quite noticable and cause raised areas on the smooth surface of the skin. They typically appear on the torso and arms, rarely the legs. If you have a good many of them, then it's possibly a condition known as familial multiple lipomatosis. It is harmless and is caused by a mitochondrial defect. A metallic taste in the mouth is not suggestive of any type of disorder or disease, regardless of what you may hear or read from folks in the alternative or holistic practice arena about heavy metals, etc. This is entirely false. Bacteria can produce this type of taste in the mouth, as well as certain foods previously eaten. Concerning the "jumping" sensation while attempting to sit down, I'm afraid you'll have to be a bit more descriptive. Are you experiencing muscle spasms in your legs or elsewhere, or does the sensation feel more like a pulsing effect in your head and chest when you try to sit down? Observing your pulse in the places noted is not uncommon and would not constitute a sign of trouble. Overall, you seem to be rather hypervigilent to your general physiological status. What do you think is wrong with you? Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • November 9, 2008
    • 10:11 PM
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  • Thank you for your reply.The headahes ussuasly start gradually and i have no visual disturbances while i have them and no dizzyness or nausea. i was expericning eye floaters and stars which have no subsided. the headache is all around my head also there are parts of my head which i can press and feel a pinching tightness at the top of my scalp it dosnt hurt but i know its there.and i get pressure in my nose and under under the eyes.the jumping sensation is a body jolt.i dont think its pulsating. and i get this jolts all the time when sitting. they seem to becoming from the lower back but other times i get them on my upper back.doctor said these could be nerves or a muscle spasumi also get a dull pain in my chest when i apply pressure to it i am experincing muscle spasums in my arms. As for what i think i have im not eniterly sure my blood works all came back fine and a chest Xraw showed no problems with the heartOnce again thank you dearly for your post any adive information is gratfully apprciated
    Kurtis18 15 Replies
    • November 9, 2008
    • 10:24 PM
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  • if several conventional doctors (including specialists) don't know, you may have an unknown medical condition or a rare condition that probably can't be treated. you may want to look into alternative medicine or find a naturopath. they may have answers but beware there are plenty of quacks out there (if they practice homeopathy, stay away).
    stanleybrown 29 Replies
    • November 9, 2008
    • 10:39 PM
    • 0
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  • if several conventional doctors including specialists dont know, you may have an unknown medical condition or a rare condition that probably cant be treated. you may want to look into alternative medicine or find a naturopath. they may have answers but beware there are plenty of quacks out there. if they practice homeopathy stay away.
    stanleybrown 29 Replies
    • November 9, 2008
    • 10:41 PM
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  • also taking Codeine and amatrpyine they seem to have helped the headaches and genral body pain
    Kurtis18 15 Replies
    • November 9, 2008
    • 10:46 PM
    • 0
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  • Should also mention that i had Gladular fever or Mono i think its called over there. had about 2 days of feeling well before this kicked in the veins on around my head also feel quite sore My main opion on why the Doctors keep putting this down to stress is because of the recent passing of my farther from a injury cause AAA. i told them yes obviusly very stressfull times but these symtoms are to phyical to be stres..they all keep there diagnosis as this i am genrally a Hypocondriact but i seriously think im dying :(
    Kurtis18 15 Replies
    • November 9, 2008
    • 11:14 PM
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  • Don't know your history, but have you seen a neurologist? If not you really should. Just watched an episode of Medical Mysteries this evening. A woman had extremely severe headaches and a metalic taste in her mouth. She also had a drippy noise. Her headaches were worse when sitting or standing but improved lying down. If this sounds like you, get to a neurologist ASAP. I feel for you as I am having severe headaches and other medical problems and basically being ignored too. It is rough when you know something is terribly wrong but doctors won't listen.
    halal37 96 Replies
    • November 10, 2008
    • 00:30 AM
    • 0
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  • "Just watched an episode of Medical Mysteries this evening. A woman had extremely severe headaches and a metalic taste in her mouth. She also had a drippy noise. Her headaches were worse when sitting or standing but improved lying down. " I watched the same esipode... I hope that yu can find the help that you need.
    safe_meyersestate 1 Replies
    • November 10, 2008
    • 01:11 AM
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  • i havnt seen a neuroligst no doctor told me if i thought you needed one id send you to one right away My headaches arnt worse sitting down or standing.my headaches arnt what i would call serve just a dull ache i get this headache for about 2 days of the week the rest i feel ok and it ussualy responds to the medication im taking best wishes to you as we are both in the same boat here hopefully we can get the diagnosis and treatment we deserve
    Kurtis18 15 Replies
    • November 10, 2008
    • 01:17 AM
    • 0
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  • You may want to see an eye doctor I also have had terrible headaches but no one could help, then I went to have my glasses updated and BAM it was my eyes... Kinda, my optic nerve is much smaller and squiggaly were I was told that the average person theirs is stright and the blood flows evenly and mine does'nt, which causes such bad migraines that I need to sit in a completly dark and quiet room. I'm not sure if this will help but have your eyes checked just to rule out the optic nerve.
    Anonymous 42,789 Replies
    • November 10, 2008
    • 03:03 AM
    • 0
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