Discussions By Condition: I cannot get a diagnosis.

Urinary and genital problems. Docs can't work this out! Is this an STD?

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: Jamie123
  • July 21, 2008
  • 01:28 AM

First post, so here goes...

My name is Jamie and around 4 months ago I started getting sporadic pains in my genital/scrotal area. This developed pretty rapidly into the sensation of needing the toilet very frequently (pretty much as soon as I've urinated). I have sometime very intense rushes down the urethra to go along with this. I also have had testicular pain throughout the last 4 months along with pain when I urinate and a pressure sensation in my right hand side of the abdomen. To accompany this is a clear thick discharge (rather like pre-ejaculation) that coats the inside of my penis, sometime this is more plentiful than others. I have had an ultrasound on my testcles and there is signs of some imflammation due to some kind of infection.
I have visited our local Genito Urinary clinic probably around 8 or 9 times now. All the major players have been eliminated ie: Chlamiydia, Gonnareha, Sifilis, Hepatitis, HIV. The only thing they sporadically find is bacteria and imflammation on the swab test. I have taken 4 weeks of Ciprofloxacin (nothing) and 3 weeks of Doxcycleine (nothing). Both have not changed this situation in any way.

The first diagnosis was Prostatitis, but due to the clear discharge..the doctor now thinks this is an incorrect diagnosis and I have been referred to a Urolagist (waiting time before even a consultation is 8 weeks ;-(Meanwhile life is almost unbearable.

Now, I'm not sure if this is unrelated but at the same time as these problems, I have been having sporadic pains in my neck and shoulders (sometimes debilitating). Then the pain/tenderness becomes quite specific (seems like it's in the tendons in the neck) so much that I cannot touch the area. When this occurs, the problems in my genital area seems to subside a little. This cycle has been going on for the last 3 months yet no doctors can give me any explanation as to how this could be connected. I also feel like i'm full of cold and totally exhausted pretty much every other day!

My concerns are that I have caught some kind of sexually transmitted virus which the GUM clinic is not testing for. Something that moves around my body and my immune system is not fighting properley. I went to America last November and I remember that when I came home I had the sensation of needing the toilet frequently for about a week, then it seemed to go away. I did have sexual encounters with two girls whilst over there and this is my worry. One was with a condom, the other wasn't.

I have a girlfriend here and this is putting enormous strain on our relationship, however she doesen't seem to be having problems at all and we have had sex at least 5 times since I got back from America. Sex is obviously not so much on the agenda due to the psychological issues I have with the whole area down there.

I am totally at my wits end, fed up and very concerned.

Any advice or help/connection would be hugely hugely appreciated!!


Jamie.

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17 Replies:

  • Jamie,,, Mycoplasma genitalium Arthritis, chronic nongonococcal urethritis, chronic pelvic inflammatory disease, other urogenital infections and diseases, infertility, Mycoplasma pneumonia Pneumonia, asthma, upper and lower respiratory diseases, heart diseases, leukemia, Steven-Johnson syndrome, polyarthritis or septic arthritis, CNS disorders and diseases, urinary tract infections, Crohn's and Irritable Bowel Syndrome, Guillain-Barr syndrome, polyradiculitis, encephalitis, and septic meningitis, autoimmune diseases. Mycoplasma incognitus andMycoplasma penetrans AIDS/HIV, urogenital infections and diseases, Autoimmune disorders and diseases check out mycoplasma infection as a cause for your symptoms. You will be suprised that you will test positive for something you've never heard of before. mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Ah, I have heard briefly of this but know that it is not tested as a rule in most clinics. Thing is it says in most of the articles that the effective treatment for Mycoplasma genitalium is azithromycin, which I forgot to mention..I had a round of (1g) around 2 months ago when they were presuming it was Chlamiydia so I'm not sure if that means I can rule Mycoplasma genitalium out? I'm thinking of sending off for one of the urine tests anyway as I'm losing all faith in the local clinic and gues that they wouldnt even offer the test anyway. Thanks for your help so far.
    Jamie123 5 Replies Flag this Response
  • try a blood test for specific herpes 2..
    Monsterlove 2,921 Replies Flag this Response
  • Go do a bleed test
    Anonymous 42,789 Replies Flag this Response
  • try a blood test for specific herpes 2.. Thankyou for your post Monsterlove..it is appreciated. I'm not sure that this could be Herpes 2 as I have no blisters on the penis, also the symptoms have been constant for the last 4 months. Where as (from what I have read) Herpes comes and goes with the primary outbreak being the worst and lasting for around 2-3 weeks? I also havent read anywhere that Herpes 2 causes the feeling of needing to urinate frequently or any other testicular or scrotal pain.
    Jamie123 5 Replies Flag this Response
  • Go do a bleed test Thankyou for your response..but I am confused, do a bleed test for what? Thanks, J.
    Jamie123 5 Replies Flag this Response
  • Jamie,,, Mycoplasma genitalium Arthritis, chronic nongonococcal urethritis, chronic pelvic inflammatory disease, other urogenital infections and diseases, infertility,Mycoplasma pneumonia Pneumonia, asthma, upper and lower respiratory diseases, heart diseases, leukemia, Steven-Johnson syndrome, polyarthritis or septic arthritis, CNS disorders and diseases, urinary tract infections, Crohn's and Irritable Bowel Syndrome, Guillain-Barr syndrome, polyradiculitis, encephalitis, and septic meningitis, autoimmune diseases. Mycoplasma incognitus andMycoplasma penetrans AIDS/HIV, urogenital infections and diseases, Autoimmune disorders and diseasescheck out mycoplasma infection as a cause for your symptoms. You will be suprised that you will test positive for something you've never heard of before.mommy cat Ah, I have heard briefly of this but know that it is not tested as a rule in most clinics.Thing is it says in most of the articles that the effective treatment for Mycoplasma genitalium is azithromycin, which I forgot to mention..I had a round of (1g) around 2 months ago when they were presuming it was Chlamiydia so I'm not sure if that means I can rule Mycoplasma genitalium out?I'm thinking of sending off for one of the urine tests anyway as I'm losing all faith in the local clinic and gues that they wouldnt even offer the test anyway.Thanks for your help so far.
    Jamie123 5 Replies Flag this Response
  • Jamie, there is also a mycoplasma named chalymidia pneumoniae. seems they covered all of the bases. here is a link to a lab that I believe is doing mycoplasma testing. http://www.clongen.com/molecular_diagnostics.php Instead of concentrating so much on getting a diagnosis, concentrate on treating the symptoms. After all, a diagnosis is only a name that is given to a specific group of symptoms. Once the symtoms are resolved, the diagnosis no longer pertains. If you let me know which state you live in, I will help locate a practitioner for you. NAET/BioSET...... the only treatment that will cure you. Believe me. best wishes mommy cat
    mommy cat 1,654 Replies Flag this Response
  • http://www.drmirkin.com/morehealth/G144.htm mycoplasma chalmydia pneumoniae and ureaplasma best mommy cat
    mommy cat 1,654 Replies Flag this Response
  • mycoplasma and chemtrails http://www.rense.com/general3/chemill.htm stay well and stay informed mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Mommy cat posts this information to everyone. Keep an open mind-- not everythng is infectious in nature. Ask for pain meds to relieve your discomfort while you wait for your urology appointment.
    aquila 1,263 Replies Flag this Response
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  • mommy cat posts this information to everyone because everyone has mycoplasma infections. get tested. you'll see. best wishes mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Dr Maurice Hilleman, chief virologist for the pharmaceutical company Merck Sharp & Dohme, stated that this disease agent is now carried by everybody in North America and possibly most people throughout the world.Despite reporting flaws, there has clearly been an increased incidence of all the neuro/systemic degenerative diseases since World War II and especially since the 1970s with the arrival of previously unheard-of diseases like chronic fatigue syndrome and AIDS. keep in mind that Merck and the military created pathogenic forms of mycoplasma. That's how they know everyone is infected with it. It accounts for all of the new and emerging diseases as well as your symptoms. http://www.whale.to/m/scott7.html open your eyes as well as your mind. mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Jamie, there is also a mycoplasma named chalymidia pneumoniae. seems they covered all of the bases. here is a link to a lab that I believe is doing mycoplasma testing. http://www.clongen.com/molecular_diagnostics.php Instead of concentrating so much on getting a diagnosis, concentrate on treating the symptoms. After all, a diagnosis is only a name that is given to a specific group of symptoms. Once the symtoms are resolved, the diagnosis no longer pertains. If you let me know which state you live in, I will help locate a practitioner for you. NAET/BioSET...... the only treatment that will cure you. Believe me. best wishes mommy cat Thanks Mommycat. Pretty frightening stuff in the article by Dr Mirkin. If no tests can prove a person has it then how can treatment be offered. Looking at that article it advises that after having this bacteria for a few months, it can almost be uncurable as it spreads to ther parts of the body. Great!! It says that antibiotics would need to be taken for months, possibly years??It has to be said, these symptoms HAVE spread to other parts of my body, eg: shoulders/neck and abdomen so this is not looking very good. I am actually in the UK (Yorkshire) but I have ordered a test for Mycoplasma from a company in the UK which was suprisingly cheap. I will test with that and then if nothing comes from it I will send off for the test for ureaplasma. I cannot afford both right now so...and I don't think that the GUM clinic will do these specific tests for me tbh. Thankyou for your help so far, it is hugely appreciated! Jamie.
    Jamie123 5 Replies Flag this Response
  • Thanks to Mommy Cat for the info; I am looking for your blog---4,576 with this diagnosis--can't find it. Can you help?
    marionstar 228 Replies Flag this Response
  • marionstar... you're welcome!! here's the link to find the thread http://forums.wrongdiagnosis.com/showthread.php?t=19710 best wishes mommy cat
    mommy cat 1,654 Replies Flag this Response
  • Try the blood test for herpes 2 just to rule it out for sure; it does indeed cause many of your symptoms and you have yet to be checked for it although you have been to your clinic 9 times; what are they waiting for. It is a disease of the central nervous system, so it can have reflex pain up and down the spine, although usually limited to below the waist, one needs to remember that it is in your spinal column once you get it. You girl friend should also go to a clinic and get checked for STDs, along with herpes and syphilis. If your blood work turns out negative, then you would want to see a urologist.
    Monsterlove 2,921 Replies Flag this Response
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