Discussions By Condition: I cannot get a diagnosis.

female issues

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: taniaaust1
  • June 2, 2008
  • 00:40 AM

Im currently trying to work out what exactly may be causing the following: the last couple of months or so.. ive been having period issues.

I had a period a few mths back in which I bleed so heavily at one point.. (left blood TRAIL/stream not just drops.. from my bathroom to the toilet), that I thought i was haemorraging and nearly went down to the hospital as it scared me. (Im used to very heavy periods..i have to use super tampons and pads together and change every couple of hrs) as i have polycystic ovary syndrome but this was something else again.. it actually POURED for a couple of minutes, ive NEVER had it pour like that before.

My period after that one was weird too.. it was normal till day two when it usually goes very heavy and usually last 5-6 days.. but at that point (day 2 when it usually goes to it's heaviest), it then just suddenly stopped!

Then yesterday.. I start bleeding like im getting my period.. but it's not due for another 2-3 weeks.. (i guess im about the ovulation point.. thou i havent shown any signs yet im about to ovulate... i often know when i are). I was under heavy stress when I started to bleed and do realise stress can cause spotting. In the past on rare occassions when Im under heavy stress.. i have had spotting. This thou was more than just the spotting ive had in past..... it went to like day one of my normal (heavy) periods.

Today.. im not bleeding at all.

Anyway.. im completely confused.. how on earth can my period just go and stop.. right when i should be at my heavest? Why did i bleed yesterday more than just spotting. (unless one regards it as extremely heavy spotting?)
.......................

To add to this.. Im getting morning nausea.. which is settling down on eatting toast.. but before i do that.. im having to force myself to eat it as I feel like im going to throw up.

Im currently assuming that is being caused by stress along with having abnormal low cortisol.. (nausea sign of Addisons disease and CFS people are meant to be at their lowest with cortisol in the mornings). If being caused thou cortisol thou.. would eatting get rid of it??
.................

my history..

I have PCOS, CFS and many associated problems eg low cortisol and a ton of other issues . I had an internal..and by my cervix and how im looking down there, i dont appear to be pregnant (and i shouldnt have be, unless someone impregnanted me while asleep).
...............

so any ideas what is going on with my periods?

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10 Replies:

  • Hi fellow PCOS sufferer. My queston is, how old are you? This sounds like a perimenopausal symptom to me. I am having the same kind of symptoms. Most recently, heavy flow *stopped* as though someone had flipped an "off" switch on the same day! My once predictable body suddenly went topsy-turvy, and now nothing about menses is predictable. People like us have to do two things-- watch everything we eat to ensure that we maintain a good weight, and exercise, exercise, exercise. Honesty, I'm so-so on the first and okay on the second, but both things seem to help at least some. I'd ask about the nausea & vomiting. Me. I've never been able to eat breakfast. I have to wait several hours until I feel hungry. I wonder if there's a connection between PCOS and this...? Be well.
    aquila 1,263 Replies Flag this Response
  • Hi fellow PCOS sufferer. My queston is, how old are you? This sounds like a perimenopausal symptom to me. I am having the same kind of symptoms. Most recently, heavy flow *stopped* as though someone had flipped an "off" switch on the same day! My once predictable body suddenly went topsy-turvy, and now nothing about menses is predictable. People like us have to do two things-- watch everything we eat to ensure that we maintain a good weight, and exercise, exercise, exercise. Honesty, I'm so-so on the first and okay on the second, but both things seem to help at least some. I'd ask about the nausea & vomiting. Me. I've never been able to eat breakfast. I have to wait several hours until I feel hungry. I wonder if there's a connection between PCOS and this...? Be well. Im only just 37 yrs old... my mother is only just starting to go throu menopause herself now so in my case that wouldnt be it would it??? nods yeah we do have to really watch what we eat with PCOS.. If i even just have ONE takeaway.. it's really showing on the scales the next day. (I dont eat much at all at times.. to stop my weight from exploding.. i was obese at one point). As far as exercise goes.. i cant do it at all (so all the more reason why i really have to watch constantly what i eat). Im on full disability pension due to the CFS (chronic fatigue syndrome).. and any exercise tends to trigger that off and all it's symptoms worst. (so im darned if i do and darned if i dont.. as i know exercise helps PCOS but the after effects for me of it are terribly bad). I havent had a problem with being nauseus in mornings till now.. thanks for the reply.
    taniaaust1 2,267 Replies Flag this Response
  • :( i was just researching perimenopause and it does sound as if that is it. http://www.womentowomen.com/menopause/perimenopause.aspx Symptoms of perimenopause can begin as early as 10–15 years before menses completely stop. Women in their late 30’s, 40’s and early 50’s may transition in and out of a perimenopausal state many times before they finally enter menopause. If you are currently experiencing symptoms such as irregular periods, heavy bleeding, hot flashes, sleep disruption, headaches, dry eyes, vaginal changes, hair loss, weight gain, loss of libido or extreme emotional distress, you may be relieved to know that these are all common signs of perimenopause. During perimenopause, the ratio of estrogen to progesterone is frequently in a state of flux, which can manifest along with other symptoms as very heavy (and maybe even frightening) bleeding. Along with the more obvious changes listed above, many of my perimenopausal patients find their short-term memory impairment or a lack of focus to be very irksome. These cognitive effects of hormonal imbalance are frequently overlooked in mainstream discussions about perimenopause. Yet fuzzy thinking and an inability to multitask can definitely be traced to your physical state, as can increased anxiety, fatigue, depression and drastic mood swings. Heavy bleeding, my already abnormal periods further all messed up, hair loss much more than i ususally have it at times (i have a panic a few months back as i was loosing so much that it thinned in patches) ..along with my mood swings this year being MUCH WORST... and currently i also do have depression again as well.. are all the latest changes for me.
    taniaaust1 2,267 Replies Flag this Response
  • i just got back from the doctors.. He tends to think my issues may just be cause of the PCOS (.. but then why now?? when i havent had those symptoms before). I insisted he did do a FSH blood test!!, (to see if i have gone into perimenapause or not.. one needs to be proactive with doctors and insist on tests if one thinks one should be done!). I'll know my results by next week.
    taniaaust1 2,267 Replies Flag this Response
  • I'm not sold on CFS, especially for someone with PCOS. Has your doctor looked at Cushing's syndrome? You might ask about it. Godd luck!
    aquila 1,263 Replies Flag this Response
  • I'm not sold on CFS, especially for someone with PCOS. Has your doctor looked at Cushing's syndrome? You might ask about it. Godd luck! No i dont have cushing's syndrome. I do thou have cortisol issues but it's below normal range.. eg adrenal insufficiency.. (could be heading towards Addison's disease). low cortisol is common in CFS women (a third of ones with CFS have this issue caused by the CFS). Along with classical CFS history (severe mono/glandular fever)...i have all the normal scientific findings that are found in CFS eg positive rombergs (common CFS finding), abnormal brain wave state on EEG (the abnormal finding found in CFS ), hypercoagulation issue due to a polymorphism (75% of ones with CFS have some form of hypercoagulation issue), (i also would test positive with tilt table testing).... so that all helps back up my CFS diagnoses which was just based on my history and symptoms. There should be something there which can be seen on a scientific bases.. IF the right tests are done.. to back up someones CFS diagnoses. I personally do think one should try to back up any CFS diagnoses based on just symptoms.. via some scientific evidence
    taniaaust1 2,267 Replies Flag this Response
  • oh i forgot to say that my test results for the FSH have come back (within 24 hrs!! makes me wonder if the doctor is telling the truth? Im going to request to see them). Anyway.. apparently from test results.. i arent perimenapausal. The doctor is putting down my new symptoms due to the PCOS??? (does that sound right???)
    taniaaust1 2,267 Replies Flag this Response
  • Question-- and this will sound "out there"-- are you short? If you are, ask to get tested for celiac disease. Reasoning: There is a link between PCOS and Turner Syndrome. Turner Syndrome women are short. Turner women have a higher chance of having celiac diease, which can cause many of the problems you're experiencing, and which are commonly described as "CFS." PS-- your doctor may be unaware of this connection. And also, celiac is commonly overlooked. Try here: http://www.ncbi.nlm.nih.gov/pubmed/17947845 Also: http://jcem.endojournals.org/cgi/content/abstract/87/12/5495
    aquila 1,263 Replies Flag this Response
  • Question-- and this will sound "out there"-- are you short? If you are, ask to get tested for celiac disease. Reasoning: There is a link between PCOS and Turner Syndrome. Turner Syndrome women are short. Turner women have a higher chance of having celiac diease, which can cause many of the problems you're experiencing, and which are commonly described as "CFS." PS-- your doctor may be unaware of this connection. And also, celiac is commonly overlooked. Try here: http://www.ncbi.nlm.nih.gov/pubmed/17947845 Also: http://jcem.endojournals.org/cgi/content/abstract/87/12/5495 I are short 5ft 4.. but i put that down to having two children while still a teen and growing myself. My CFS doctor and other specialists has been fairly though in ruling out other illnesses, Im not kidding but Ive had about 50-60 completely different tests done to rule out different things. Celiac disease does run in my family (I have 3 out of 5 uncles with it severely) and hence I have been tested for it both as a child and also since Ive got the CFS I had the basic kind of test they usually do for Celiacs (Tissue Transglutaminase IgG and Transglutaminase IgA (came back both less than 20 units which is normal.. (tested as a child and also tested again due to the CFS).. so it comes back negative. I know this test is said to miss many celiac disease cases.. so my CFS specialist had genotypes test done and I tested postive for HLA DQ2/DQ8 (which is the genotype one needs to have to be able to get Celiacs, if you havent got this genotype.. basically you wont have celiacs). so my gastro specialist cause of that, then ran the Tranglutaminase IgA Antibody test and the Gliadin IgA antibody test but those came back normal too. (so ive gone throu testing now three times) As those other tests are not always accurate (those tests are said to only pick up 90-98% of cases).. there was consideration about me having a bowel biopsy done to 100% rule out celiacs (this is the only way it can be 100% ruled out in anyone)..but in the end it was decided I most likely dont have it due to all the testing already done which was negative (other than me inheriting the celiac genotype from my family).
    taniaaust1 2,267 Replies Flag this Response
  • Thanks for the refresher-- yes I knew all that too! :) Put it this way-- he EMA and TTG tests miss about 5% of cases. What if you're in that percentage? What would be the harm of trying a gluten-free diet for awhile to see if it has any effect? Except for inconvenience and maybe cost, what have you got to lose? I'm going for these tests tomorrow. If mine turn out to be negative, I'm still going to attempt eliminating gluten.
    aquila 1,263 Replies Flag this Response
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