Discussions By Condition: Blood conditions

Sc sickle cell disease(another type?)

Posted In: Blood conditions 28 Replies
  • Posted By: Anonymous
  • October 17, 2006
  • 03:18 PM

Hello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)Thanks soo much

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28 Replies:

  • My eleven year old was dignosted with SC Disease when he was 2 days old. He was placed medication for the first four years of his life of which he had to take twice a day. The purspose of placing him on antibotics was to boost his immune system. I must say that by the grace of GOD my son has not been hospitalized nor have he had any pain crisis.SC Disease is the mildest case of sickle cell anemia and doctor's will treat your child as if he/she had the full blown sickle cell disease. I would HIGHLY recommend that you google: (Sickle-Cell Disease) and read up on it. You see when my son was born there wasn't much study done on his condition so my family and I participated in a study at a hospital. The S stands for sickle and the C identifies the trait that either parent carries.Hopefully, my feedback has encourged you and has helped with insight on SC Disease. God Bless....
    Anonymous 42,789 Replies
    • November 10, 2006
    • 06:24 PM
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  • Oh yeah, I just thought I would also add that if my child ever acquired a fever over 101.1 he had to be seen for procautionary purposes. Over all my family and I have been truly BLESSED by the BEST. Recommendation to you would be just ensure that you align your family with a peditration that knows about sickle cell anemia/sickle cell disease. The google link I referred you to should give you listings of all the vaccations that will help your child build his/her immune system up. Most doctors and hospitals treat children with SC disease with the care that they would administer to sickle cell anemia.I know just speaking from first hand experience in the beginning it might seem overwhelming but once you get a grasp on the terminology and understand exactly what is transpiring with your child's immune system than it'll become clearer for you. Just know it's nothing you nor the child's father did.In some instances, what happens is your child may experience pain which is known as pain crisis. What happens is mostly everyone's blood cells are round however some of our kids blood cells are not round but rather in a S shape which cases pain when the cells try and go through the vains. You can even google SC Disease and read more in-depth.May God Bless you and your family!
    Anonymous 42,789 Replies
    • November 10, 2006
    • 06:42 PM
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  • Hi there--I too have SC disease and thank God have only been hospitalized once which was when I was 13 (I am 34 now) and this is how they discovered I had SC disease. Every since then I have been relatively healthy. I do have pain issues after swimming though. My daughter has SS disease any my other one has SC. The doctors treat them both with the same regimen however I can clearly see that my SC child has less complications.
    Anonymous 42,789 Replies Flag this Response
  • Hello. My name is Cassandra. I grew up having sharp pains all of my life. It felt like needles were being poked all over my body where it hurt at. I would yell most of the time because it was aways intense.My pain start coming mostly when it is cold outside. Like today there is snow on the ground so I ache. I have to take pills so that the pain won't get worst. My smytoms is that I hurt alot. Where I'm hurting at will swell up. I also have Long Q-T Heart disease so I can only take Ibuprofen. When my pains come I miss days from college at a time. So cold leads to hurting and then swelling 4 me. I hope that you find your answers.
    Anonymous 42,789 Replies
    • January 21, 2009
    • 01:34 AM
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  • Hello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)Thanks soo muchi am 55years old and have sc disease. i did not have any symtoms as a child. i got ill for the first time at 21 years old when i was about to give birth to my first child. since then i have only had problems in pregnancy, and during the menopause. by he way is there anyone out there who is also going through the menopause and has sc disease. i need some advice and suport too.
    Anonymous 42,789 Replies
    • February 4, 2009
    • 11:28 AM
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  • My daughter has SC and she is 6 years old. She has been hospitalized about 6 times in her life. She has had pneumonia/acute chest syndrome. The other hospializations were from different infections w/fever. She has been doing well that last 2 years, but now we are going through the pain crisis in the stomach and legs. It sounds like it just depends on the person with SC how severe it can be. You may want to get a hemotologist to your child. They will look for certain things that a regular pediatrician may miss, like checking for enlarged spleen, and be able to better understand blood tests. Good luck and God bless!
    Anonymous 42,789 Replies Flag this Response
  • Hi. I'm 19 years old and I have SC sickle cell disease too. I've been hospitalized many times, so many that I stopped counting. I experience a lot of pain in my limbs and my spleen when it's cold or when I'm stressed out. It's also a good idea to stay dry. Getting caught in the rain or not drying off immediately after a swim can cause painful crisis. Most recently I've been experiencing infarcts in my eye vessels that have left me with two big permanent blind spots in my right eye. I've been told that SC is more mild than SS but that it has the tendancy to affect eyes. My advise is for your child to drink a lot of water and get a lot of rest and try not to stress.
    Anonymous 42,789 Replies Flag this Response
  • Good morning,My son has the same thing he is 7 years old now and we had just one episode, due to dehydration. Other than that we make sure that he's hydrated and eating food that builds his blood countHello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)Thanks soo much
    Anonymous 42,789 Replies
    • September 18, 2009
    • 01:32 PM
    • 0
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  • Hi my name is Helen and I have SC sickle cell. I'm 31 now and since I'm 13 I haven't had a pain crisis, when I was a kid I had lots of pain crisis specially during cold weather or when I got wet or took a shower late. My recommendation is to keep your child from been wet or if in a cold weather keep him/her always cover and drink lots of water. As one of the person mention SC does affect your vision for example I suffer of Glaucoma and had two surgery for that but on the first one I had a vessel stroke on my right eye because I had to have a blood transfussion before doing any type of surgery and my ophtalmologist didn't know that so it was another learning experience for me and one for you guys ALWAYS before any surgery go to a hematologist and even if he/she says no do have a blood transfussion.God bless you!Good morning,My son has the same thing he is 7 years old now and we had just one episode, due to dehydration. Other than that we make sure that he's hydrated and eating food that builds his blood count
    Anonymous 42,789 Replies
    • November 20, 2009
    • 02:19 AM
    • 0
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  • hello my two month old son camryn has sc sickle cell disease and i have yet to meet anyone with or anyone who knows anybody with sc sickle cell it is a milder form of sickle cell anemia i want to know what people have gone through with this form of sickle cell (sc sickle cell)thanks soo muchhello my name is jucana and i am 20 i have sickel cells and its been kinda hard trying to live a normal life its like i mist most of my senior year because i was in the hospital but if anyone would like to talk to me my email is jdonaldson09@aol.com . Im here to help anyone with questions
    Anonymous 42,789 Replies
    • December 14, 2009
    • 08:47 AM
    • 0
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  • Hello, My name is Kenni, i am now 22 years of age with Sickle Cell SC and i have not had a crisis or been hospitalized since 2000 but before then i was in and out of the hospital with severe joint pains and dehydration periods. I played a couple of sports when i was younger so i believe that is what set it off. I do get periods of pains from time to time when i like do hard, quick strenuous activity or (a recent discovery) huge amounts of stress o nervousness. But other than that i live a full healthy life. Honestly, i am looking forward to join the US Air Force to find a career in Commercial Aviation. But being with Sickle Cell there are issues with joining the Air Force so i am also looking for any advice that anyone has about this journey. I completely qualify physically in every exam they give, but there has been deaths in the military due to Sickle Cell Anemia. All i can find is that the Air Force must find out the percentage of Hemoglobin S in a persons system with Sickle Cell trait S or disease SC, and the percentage must be less than 40% in order just to be eligible. BUT If anybody has any other information for me please contact me at kenht87@hotmail.com as i do not have an account via this website. ThanksGod Bless
    Anonymous 42,789 Replies
    • January 4, 2010
    • 05:33 PM
    • 0
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  • My eleven year old was dignosted with SC Disease when he was 2 days old. He was placed medication for the first four years of his life of which he had to take twice a day. The purspose of placing him on antibotics was to boost his immune system. I must say that by the grace of GOD my son has not been hospitalized nor have he had any pain crisis.SC Disease is the mildest case of sickle cell anemia and doctor's will treat your child as if he/she had the full blown sickle cell disease. I would HIGHLY recommend that you google: (Sickle-Cell Disease) and read up on it. You see when my son was born there wasn't much study done on his condition so my family and I participated in a study at a hospital. The S stands for sickle and the C identifies the trait that either parent carries.Hopefully, my feedback has encourged you and has helped with insight on SC Disease. God Bless....Hi, I too have a son with SC disease. It has been peaceful for four years now; however, it was not like that before. He had had many hospitalizations and a blood transfusion once. Seen him in pain is another story. I do not want to scare you or anything. All I can say, it really depends on the individual and God. Keep your appointment (pediatrician and hematologist). Make sure he rests and drinks plenty of water.Good luck and may God bless your entire family
    Anonymous 42,789 Replies
    • January 7, 2010
    • 05:17 PM
    • 0
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  • My sons grandmother has it now he does too hes only a month. His grandmother started to have symptoms when she turned 13. She would have episodes every 2-3 years where she has bad pain and gets blood transusions. It just depends the person she says the older she gets the harder it is for her to fight it off. Her daughter has ss and goes through these symptoms every month she needs a blood transfusion so it is alot milder.
    Anonymous 42,789 Replies
    • January 8, 2010
    • 04:20 AM
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  • I have sickle cell sc. Let me say that it is hard to tell if I have a pain crisis. I found that the sickle cewll foundation is a big help on ones with kids or just themselves. Right now my left side is hurting and I hope that it is not the spleen that got me hurting. I have done alot of depth research on the internet and through others. My mother diagnosis me at the age 6 and I am 33 years old. My email is flowimatic2003@yahoo.com if anyone need help or want any information. Sickle cell runs strongly in my family and I don't have all the answer but I'm willing to learn with others.
    Anonymous 42,789 Replies
    • February 20, 2010
    • 06:13 PM
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  • I am 15 years old, i have had countless amounts of crisis's and trips to the hospital. It was a diffrent story for me, i usually get pain in my arms and legs, sometimes all at the same time. i am involved in sports, and i admit, i dont get enough water and oxygen, so i have crisis's at lease 5 times a year. Im not going to let that stop me because i love gymnastics and cheerleading, so keep me in your prayers.
    Anonymous 42,789 Replies Flag this Response
  • Hi my name is William and I have SC sickle cell. I'm 28 now although I've been admitted to the hospital countless of times and it seem like I'm in pain at least once a week. But the number one thing I would tell a parent is to make sure they drink PLENTY OF WATER, let them experience everything they can, and save up on your leave. Throughout my school days I would miss at least 100 days out of 180! But luckily I had great parents who help me feel like I was just as normal as anyone else and I was able to get on program called CHIP's (Chronic Health Illness Program) which allowed me to have a tutor whenever I missed school. This also allowed me to graduate from public school with the rest of my family and friends. Unfortunately a lot of people in my family have some form of sickle cell ranging from the trait to SS so my mom knew what to do and not do and when to tell me it was time to rest for a bit. Also know that when you travel it takes a really big toll on their body. It takes me at least two weeks to rest up after I've come back from traveling.Now as an adult this disease still beats me up. I work as a school librarian, teach martial arts on the side, and I'm a correspondent for TKD Times. But I still have had to miss countless days of work. Also now as an adult it has began to effect my vision. I've had one eye surgery and I'm preparing for another one. I hope this helps and doesn't scare you because I still live an okay life. I'm married to a gorgeous woman, and have a beautiful daughter who unfortunately has this same disease. Even though one of the first questions I asked my wife was did she have the trait or any other diseases when we first started dating and her parents said she had been tested when she was born. We found out she had the trait after she was already pregnant when they do all the test but you know what I couldn't imagine a life without either of them.
    Anonymous 42,789 Replies Flag this Response
  • hi i my son also has sc it was detected at birth i was shocked because i was told i did not have the treat we new dad had it the treat so we were retested and shure nuff i had the c treat. as the years go by he is having more pain cirses he also had his first transfusion last year so as his nurse adv each case is uniqe in it own way . everybody Hemoglobin is different some might run high some might run low he always at a 10 or a 11 his level got all the way down to a 5 when he caught the parvo viruse somthing that everyone get before thier adolescence it attacts the red blood cells so as you know people with sickle cell red blood is already low normal indivdual might just get a cough or somthing. all i got to say is stay prayed up and make shure you have a good support group you will need it... good luck
    Anonymous 42,789 Replies Flag this Response
  • I am 15 years old, i have had countless amounts of crisis's and trips to the hospital. It was a diffrent story for me, i usually get pain in my arms and legs, sometimes all at the same time. i am involved in sports, and i admit, i dont get enough water and oxygen, so i have crisis's at lease 5 times a year. Im not going to let that stop me because i love gymnastics and cheerleading, so keep me in your prayers.Hi, my name is Chandra and I'm 35 years old and was diagnosed with SC at the age of 2. I live a full life, as a child I experienced a lot of pain crisis that were mostly in my arms and legs. As an adult I've experienced pain crisis in not only my arms, but my back as well. I had surgery on both of my eyes at the age of 16, where the doctors conducted a freezing procedure to repair the blood vessels behind my eyes. However, this condition called sickle cell retinopathy reoccurred last year where I was on the verge of losing my vision permanently. I received laser surgery on both of my eyes and by the grace of God I just had my annual eye exam and my vision is perfect! There are times when I am very tired or suffer from severe headaches, but I thank God that I haven't had a crisis in 4 years! The key in living with this illness is to know your body inside and out! Become familiar with how to prevent as many crisis episodes as you can. Each individual is different but remember the basics: stay warm, drink plenty of water, get a lot of rest, and seek out a specialist. I have a wonderfully healthy 14 year old son, who doesn't suffer from sickle cell, but I've instructed him on how the disease is transfered from the parent to child (in an effort to educate him on the risk factors for his future children). The one true suggestion that I can offer anyone who lives with SC is to live life to the fullest and never doubt what you can do with the power of God! I hope I was able to help someone who may feel all alone because of SC.
    Anonymous 42,789 Replies Flag this Response
  • Hi my name is Emely. My son, Joshua, was diagnosed with Sickle SC at birth. In the beginning we went through many trials and tribulations. Tons of blood test back and forth to the hospital for more and more test, either his veins were too small to find in the first place or they tried way too many times and still unsuccessful. From my understanding, Sickle Sc is a milder type of sickle cell, Same amount of pain, just less pain crisis throughout the year. He is now a year and 3 months old, extremely rambunctious I might add, and takes Penicillin twice daily , until the age of 5 as of now, as a precaution. Other then the slight higher then 101.1 fever hospital rushes all has been well. I thank God daily for my blessing he has given me! Though I am a bit worried of what the future may hold for him I know we will be ok.... God Bless! {email----emely_colon@yahoo.com}
    Anonymous 42,789 Replies Flag this Response
  • Hi my name is patrice and i have hemoglobin sc disease w/beta thelesemia trait and type 2 dieabetes two thirds of my spleen is gone and had to get my gallbladder remove. Had laser surgey on my eyes because of blood clots behind them just have one question is that a disability. Hit me back on patricefenner34@gmail.com thanks
    Anonymous 42,789 Replies
    • August 25, 2010
    • 03:16 PM
    • 0
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