Discussions By Condition: Medical Errors

Misdiagnosed as having Agoraphobia and Obsessive-Compulsive disorder.

Posted In: Medical Errors 9 Replies
  • Posted By: Dave Watkins
  • October 15, 2006
  • 11:01 PM

Just a short post on my misdiagnosis. It may help someone else.
Back in 1984 I was diagnosed with "Agoraphobia" or fear of crowds or crowded situations. I accepted this as fact to a degree and tried to go on with my life because it was to a degree somewhat manageable. Years later after a whole host of other symptoms that progressively got worse, I was further diagnosed by a different doctor with "Obsessive-Compulsive disorder", and indeed the symptoms were there. Finally in 1998 I collapsed at work due to unknown reasons at the time but had severe chest pains and some elevated cardiac enzymes. The hospital doctors could not find the problem and after one night I was released. I went back to work the following week on advice from my doctor who obviously could not see that I was so weak and shaky that I could hardy stand or walk. The doctor at work took one look at me and refused to let me come back to work. I was out for a year after finally finding a good doctor 200 miles away that knew immediately what was wrong and got me back together after about a year. To make a long story short, the Agoraphobia was caused by an extreme sensitivity to chemicals, namely the perfumes, deodorants, fabric softeners and other scented products that people wear. The presence of these things even un- noticed by me as the source, caused me to panic and leave the area. The more crowded it was, the stronger the concentration of these "Volitile organic compounds" or scented chemical products. The Obsessive Compulsive Disorder was caused by food allergies which are now under control and the obsessive compulsive is gone.
There were a few more problems the doctor addressed but these are the ones pertaining to the misdiagnoses.
---------- Dave W.

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9 Replies:

  • hey Dave, I was reading your post from Oct. 2006 about having OCD. We believe my daughter has OCD and we have been trying to work with it with proffesional help. However, I can't help thinking there is more to it. Allergies or something. I was wondering what you found out and how you found out about your food allergies.Thanks,TCP
    Anonymous 42,789 Replies
    • January 3, 2007
    • 02:53 AM
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  • Dear tcp: Basically what I put in that post is about it in a greatly simplified form. I had a lot of potentially disabling problems in addition to the Agoraphobia and the OCD. I was much of the time very weak. I had a lot of trouble sleeping at times. My heart would sometimes act up, and many other things like pains that would come on out of nowhere and later go away. Also had chronic indigestion and had to take a lot of Rolaids and as well developed an ulcer when I was about 16 that stayed with me until about 48 when I finally got rid of it by doing what the doctor told me not to do, drink milkshakes everyday. In 1998 like I said in the post, I collapsed at work and was out for a year. I went to a different doctor than I had been going to, as I had given up on the rest of them, tired of being told there was nothing wrong other than mental problems like OCD and Agoraphobia. The new doctor that I went to turned out to be the first REAL doctor that I had ever seen. He is of a group of doctors called Environmental Physicians. These doctors instead of trying to cover up symptoms with drugs are dedicated to finding out what is causing the problem and correcting the cause. They may give drugs while trying to eliminate the origin of the problem but you don't stay on these drugs. These doctors are specialists in finding problems caused by environmental toxins, molds, heavy metals, food alleriges, etc. They use testing methods far ahead of conventional allergists and regulary Md's. My Doctor is located in Deerfield Beach, Fla. I have seen people there from all over the world. He has found the causes of things such as ADD and ADHD in children and does NOT give them ritalin to do it. He has found that these things are caused by dietary problems such as too much sugar, allergies to various foods such as dairy products or reactance to food colorings such as used on jelly beans. The overwhelming amount of chemical exposure in modern society is to blame for a huge amount of problems like these. Fabric softeners, scented detergents, cleaning agents, certain scented products such as Glade air freshener and many other things of this nature overwhelm the bodies detoxification system and can cause a myriad of symptoms. I recommend that you take your daughter to a good environmental doctor that practices in the field of environmental medicine. By environmental medicine, I do not neccessarily mean a doctor that treats work environment injuries. These are not the same neccessarily. There are several of these doctors around the nation. I know personally of three very good ones. The most famous and well known is in Dallas, Texas. Another is in South Carolina, and another in Florida. There are many more but I know personally nothing about them. If you want the name of one near you I will try to help, but if you are a long ways from the three that I mentioned above it might be more difficult. It certainly would help if you at least went to an environmental physician and at least ruled out this possibility or, who knows, he or she just may find the root cause of your daughters problem is something easily manageable such as a dietary problem. Sincerely: Dave W.
    Anonymous 42,789 Replies
    • January 3, 2007
    • 03:57 AM
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  • Do you know any Environmental Physicians in California? I know I have finally on the right course with my present doctor... but my thyroid is having trouble balancing out... and I think that the food allergies (corn) not sure what else and my allergy to chemicals.. mostly smoke fragrances, etc. and are now getting worse is probably the contributing factor. Do you know if cold body extreminties or breathing problems may be a factor? Thank you for the info by the way
    Anonymous 42,789 Replies
    • January 4, 2007
    • 08:01 PM
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  • Thank you so much for your post. It is often hard to explain people that many suffer from conditions that are not going to be "fixed" with some loony psychiatric diagnose. The immune system is still misunderstood by most doctors- it is powerful, and when offended for prolonged periods of times people can start having all kind of debilitating, mind-bending chemical sensitivities.People with chemical sensitivity or "chronic fatigue syndrome" often go on disability because they are too frail to go back to society. It is very sad.If anyone needs more information- they can read "Never Be Sick Again" by Raymond Francis- he was having all kind of chemical sensitivities- his life was almost over but he researched on a cure (he is an MIT graduate)- he was so sick he could not even read the science journals because the ink and the paper made him sick.Thanks again.
    Anonymous 42,789 Replies
    • January 4, 2007
    • 08:11 PM
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  • Raymond Francis is not a medical doctor, but he is being researching toxicity for the last 20 years, he might help you be in touch with a doctor near you who can give your daughters and alternative and effective treatment, he also recommend people to detoxification specialists. He has a radio show- you can call him and ask questions to him or his guests.His website is beyondhealth.com - He is based in California.
    Anonymous 42,789 Replies
    • January 4, 2007
    • 08:20 PM
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  • Dave, I would like more info... I posted the reply #4... thank you.
    cjwill 3 Replies
    • January 4, 2007
    • 10:20 PM
    • 0
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  • Hi DaveI'm interested in what OCD symptoms you had and what food allergies were causing them.How quicky did the OCD change once you eliminated the food?Many thanksBen
    Anonymous 42,789 Replies
    • January 14, 2007
    • 00:48 AM
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  • My daughter is 5. She has probably always had OCD and food allergies. We discovered she had a sensitivity to sulfites in foods when she was 3. We relised she had OCD after a DPT/Polio vaccination. After the shot her arm turned red for a day, she had a fever and then the OCD behavior came on full force for about a month. We have gotten it much more under control with theraphy and diet. It still affects her now and then. Anyone have any advise to get this under control or had experience with a sulfite allergy and OCD?
    Anonymous 42,789 Replies Flag this Response
  • Thank you for your response. I will check into that. It may be more than the silfite allergy, but... She had been fine for weeks and a couple days ago she had ice cream and cake at a birthday party. Her legs hurt that night (allergic reaction) and the next couple days her OCD has returned once again. It is usually bad for a couple days and then goes away again. There has to be some connection.
    Anonymous 42,789 Replies Flag this Response
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