Discussions By Condition: I cannot get a diagnosis.

My son needs help and the docs don't want to give it!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: help my son
  • February 22, 2008
  • 06:34 AM

:mad: I'm sorry this may be of some length. But i need to start from the begining.
My son is 7 yrs old, and was born in unremarkable health. In 2005 we noticed a very large lump (the size of a golf ball) behind his left ear. He was taken to the after hrs clinic. We went there and i was under the assumption he had a massive ear infection. So when the doc said he wanted to admit him for observation with antibiotics via IV, i was then extremly concerned. The doc had suspected a tumor behind his ear and ordered an ultrasound, which came back negative for any cysts. After 2 days in the hospital he was then released and we were told if anymore symptoms arise come back. 2-3 weeks later the lymph node was swollen again, just not as large and this time was not as painful. No fever or other symptoms accompanied this swollen lymph node. Upon going back for a 3rd visit, again it was "chalked up" to him fighting off an infection...kids are always fighting infections. We were sent away again. My son has never had an ear infection even up to 1 year ago. This swollen lymph node has been going on for 3 years now and no one seems to think it is of any concern except me. Sometimes with the enlargment, he will run a fever of about 101. At times it is painful and others it's not. It is usually always swollen, just not always very large or painful. I am very concerned because in our immediate family we have several cases of cancer...all different types, no two are the same. About a year ago, when it enlarged again with pain and fever it turned out he did have an ear infection this time, but had been the first he has ever had. Since then the lymph node is more and more painful never subsides, and now when he catches the common cold it takes him much longer to get over it than it does my other children. Since 2005 when the first lump appeared, his health has not been the same. Just here lately he seem to be more achy, complains of pain in his groin, back, stomach, and armpit pain. He doesn't seem to have much intrest in playing as much anymore and seems very lethargic. The idea of playing and doing his favorite things and going to his favorite places excite him but he still says he doesn't fell good and wants to lay around. Just this past Tuesday he woke up with a temp of 104 and of course the swollen lymph node. I got a bit agitated in the docs office and for the first time in 3 years someone finally decided to do some blood work, which came back abnormal and elevated, but however he does again have another ear infection and also tested positive for the flu. He was also diagnosed with heart palpatations, and the swelling, well they are calling it mastoiditis. This does't satisfy me as far as a diagnosis goes, everything that i have read up on leads me to believe that the cause of mastoiditis is ear infections that are not properly treated or completly treated. His lymph nodes were swelling long before he ever had his first ear infection. I'm at a loss I don't know what else to do. I'm not wishing anything to be wrong with my son, but lymph nodes don't just swell for no reason, and with the history of cancer in my family (which runs on both mom and dad side) I am worried that something is there that nobody has found and I'm unsure of how else i can push the docs to find the problem. My son is only 7, he should not be complaining of back pain and headaches 5 days out of the week. He should feel like getting up to go play. He has missed so much school because of this. Is there any other diagnosis out there that can be mistaken for mastoiditis and if so how do i get the docs to check him for it? He has suffered with this for too long, i'm afraid that much later and whatever is found, it will be too late to fight. PLEASE HELP ME!!!!

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5 Replies:

  • It could be some type of virus or insect bite--spider (black widow or recluse) or tick. I think you need to be a lot more agressive in the way you are handling this major issue. I would pursue it until I had answers. I think I might start with an infectuous disease specialist. Let that doctor run a lot of blood tests, including adrenal and thyroid.Good luck and be tough.
    Monsterlove 2,921 Replies
    • February 23, 2008
    • 02:50 AM
    • 0
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  • I am going to suggest food intolerances or allergies, as this can cause the lymphatic system to go into hyperdrive. Most allopathic docs don't address this effectively IMO. What does he eat/drink on a daily basis? What foods does he crave? How is his digestion and how are his stools? Please get him on a good quality children's chewable PROBIOTIC, you can get this at a good healthfood store. This is very important as his immune system is weak, and a probiotic will help to rebuild his immune system. Please research a technique called NAET. Nambudripad Allergy Elimination Techniques. It is fantastic and can help get to the bottom of what is causing this problem. Visit www.naet.com to find a qualified practitioner. NAET is noninvasive, and very helpful for chronic disease. Can't recommend this highly enough. Best wishesDOM
    acuann 3,080 Replies
    • February 23, 2008
    • 03:08 AM
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  • It is obvious to me that he must have more investigations to find out what the underlying problem is. The doctors have very usefully confirmed that he has ear infections....obviously you want to know why ! Could he have an immune / auto-immune system problem ?. Why don't you find a specialist in this area, have a talk with them or their secretary on the phone and then get your family doctor to refer you. Or can you pay privately for an initial consultation ? You may need to be more worried about infection spreading to the brain etc than cancer (in my opinion). Take control of this. Even send e-mails to doctors directly, with a view to having a consultation face to face. Good luck.
    kentishman 19 Replies
    • February 23, 2008
    • 03:08 PM
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  • It is obvious to me that he must have more investigations to find out what the underlying problem is. The doctors have very usefully confirmed that he has ear infections....obviously you want to know why ! Could he have an immune / auto-immune system problem ?. Why don't you find a specialist in this area, have a talk with them or their secretary on the phone and then get your family doctor to refer you. Or can you pay privately for an initial consultation ? You may need to be more worried about infection spreading to the brain etc than cancer (in my opinion). Take control of this. Even send e-mails to doctors directly, with a view to having a consultation face to face. Good luck. If an infection is caused by an underlying food intolerance/allergy (such as celiac), then medication is only going to mask symptoms, and not get to the root cause. Autoimmune dysfunction often has an underlying chronic allergic condition. I just feel this should be ruled out, and the BEST way to do this IME is through NAET testing and treatment. DOM
    acuann 3,080 Replies
    • February 23, 2008
    • 06:43 PM
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  • Man there are nutty people on here!!I hear your frustration. I personally am a chronic ear infection patient, now 33. My children have had their share of bad ear health, I think mainly from anatomy and treatment. One of my sons had a bell's palsy from pressure on an nerve in his ear. My suggestion to you is to find a good ENT - hard to find. Get lots of CT scans. Look into-http://www.entnet.org/healthinfo/ears/cholesteatoma.cfmEar lymph nodes swell with chronic infection, I haven't seen a lot about cancer. When I have chronic bouts of ear infections and sinus infections, I get fibromyalgia - sounds like what your son is dealing with.My fibromyalgia goes completely away when infection is gone in the head/neck area.I have been to Mayo, hundreds of ear infections, tubes - still tubes at 33, a couple of sinus surgeries. Chronic bacterial and fungal infections....Another thought, when your child is on so many antibiotics, try to use some probiotics. All of the antibiotics tend to also give me colitis and then I can't tolerate wheat or sugar and those things also fire up the the fibromyalgia when I am sick. The probiotics bring the healthy bacteria back to the gut to make it function properly.Look into allergy testing, but it may be anatomy and then chronic inflammation of the canals. Gentle massage below the ear and along the jawline in a downward and forward to the chin motion can sometimes help the eustachian tube drain.Good Luck!
    Anonymous 42,789 Replies
    • February 25, 2008
    • 02:31 AM
    • 0
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