Discussions By Condition: Medical Stories

Desperate For An Answer!

Posted In: Medical Stories 16 Replies
  • Posted By: Deborah Ann
  • February 15, 2008
  • 00:34 AM

I have been suffering with lower back pain that radiates into lower abdominal area.The pain wakes me up everynight.As soon as I get up from bed the pain subsides.Pain starts in lower back as a throbbing crampy feeling and goes into lower abdominal area. It feels like a band around my lower body. I have been to my Primary, no answer there, I then went to the Orthopedic-MRI showed Degenerative changes and suggested Physical therapy. I then went to a Rheumatologist-she did blood work. All that showed was the RA was slightly high, hep and lupus were neg. she felt that the RA was not a definite indication of RA. I then went to the Chiropractor, but felt worse after his treatments. This past Dec I went to the Neurologist. He sent me for an MRI of the thorasic and lumbar. The thorasic was ok but the lumbar showed a small bulge between L4-L5. He felt that the bulge was small and couldnot be the cause of the type of pain I was feeling.I now tried a different approach. I went to see my Gynocologist. I explained the pain I am having and concerns as to ovarian or uterine cancer. He did a transvaginal sono, everything looked good-no masses, no fluid in uterus. Pap was normal-no HPV detected. I am at my wits end with this pain,with no explainations in sight.This pain is not imaginary.It wakes me up from a sound sleep and no matter what position I try, I cannot go back to sleep. Its effecting my waking hours and making me depressed that I may have to live with this pain for the rest of my life. I tried prescription pain relief but they dont work. All I take now is Advils. I am now thinking of trying Pain Management as a last resort. If anyone suffers with this or has any ideas they would be greatly appreciated.

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16 Replies:

  • Before you go on a downward spiral of pain meds, please consider trying acupuncture. It is amazingly helpful! Traditional Chinese medicine is thousands of years old and it works. Please research this form of medicine and look for a practitioner near you by visiting www.acufinder.com Do you wake up at the same time every night? If so, when? How is your elimination? What side of abdomen is your pain?Best wishesDOM
    acuann 3,080 Replies
    • February 15, 2008
    • 06:42 PM
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  • I dont recall getting bit by anything over the last couple of years. This has been going on for at least 2 years.No rashes or red circles on my body.Im a 46 year old woman , and the only other medical conditions I have is IBS and a duodenal ulcer when I was tested for H-plyori and took the recommended course of antibiotics. MyIBS is not the constipation type.I donot have any symptoms of a UTI infection.The pain is not just located on one side of my abdomin. Its the entire lower abdominal area into the lower back. It feels like a cross between menstral cramps and throbbing. As far as accupuncture, it may be an alternative. Thanks for the help!
    Deborah Ann 7 Replies
    • February 15, 2008
    • 06:58 PM
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  • I dont recall getting bit by anything over the last couple of years. This has been going on for at least 2 years.No rashes or red circles on my body.Im a 46 year old woman , and the only other medical conditions I have is IBS and a duodenal ulcer when I was tested for H-plyori and took the recommended course of antibiotics. MyIBS is not the constipation type.I donot have any symptoms of a UTI infection.The pain is not just located on one side of my abdomin. Its the entire lower abdominal area into the lower back. It feels like a cross between menstral cramps and throbbing. As far as accupuncture, it may be an alternative. Thanks for the help! Have you had a stool culture test to rule out candida overload or clostridium difficile infection? C diff is directly caused by antibiotic use and the best treatment for it IME is sacchromyces boulardii (found at a healthfood store). C diff is NASTY - please make sure they ruled this out. Please do look into the acupuncture. I really think it would help. One home remedy you can try is a castor oil pack. Google Edgar Cayce and Castor oil for info, but basically here is what you do: Get some good quality castor oil at a healthfood store. Put a thin layer of this on your abdomen and cover with plastic (a plastic food bag works well), cover this with a towel and then with a heat source (hot water bottle, or heating pack that has been microwaved). Lie quietly for 30-40 minutes. Do this every evening for 1-2 weeks. If you notice your symptoms feel worse then discontinue this treatment. It may really help with the pain, and is excellent for cysts, fibroids, fatty tumors etc. Best wishesDOM
    acuann 3,080 Replies
    • February 15, 2008
    • 10:02 PM
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  • Thanks for the tip for the castor oil. I will have to give it a shot. But has far as candida I worked for an OBGYN for 5 years and its probably slim but I thought the C diff was good. I will have to check into that. The only antibiotic I use is Amoxicillin for either colds or upper respiratory infect.I was checked for parasites in the stool about 2 years ago. there is a theory as far as the IBS goes. I only developed it since I had my daughter 21yrs ago,right from the day of her birth. I think being in childbirth for 27 hours and had her vaginally,did something to my intestines.I can prove it to be certain,but some cases have been linked to childbirth.The pain wakes me up anywhere from 2:30-4:30 every night. some nights I can go until 5:00. I was really convinced that I had either ovarian or endometrial cancer,I had alot of the symptoms. But my doctor said everything looked ok Thanks again!
    Deborah Ann 7 Replies
    • February 16, 2008
    • 10:12 PM
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  • acupuncture may be your only solution. It sounds like an undiagnosed STD. You may have tested negative, but the tests results are unstable...or a different type may bring it up but who's to say which is what...herpes 2 causes a lot of pain and if you have no outbreak, you wouldn't think to get a blood test for it. The pain can be horrible in the lower back and just not want to go away. Half of the people with it don't know they have it because they don't break out. It's a long shot. Your best bet for relief is the acupuncture, however...
    Monsterlove 2,921 Replies
    • February 17, 2008
    • 08:27 PM
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  • As far as STD's go I go to the GYN for regular checkups. there hasnt been any outbreaks and no other symptoms. I think that I can rule out any GYN problems. I had once thought It may have been due to menopause, but my former employer being a OB-GYN Doctor didnt think it had anything to do with it.I think I exhausted that aspect. I sometimes think that I may never get to the bottom of this. I can't be the only person in the world with these types of symptoms, unless the answer is so simple that none of these Doctors are picking it up. Im just trying to do as much research on my own as I can.
    Deborah Ann 7 Replies
    • February 17, 2008
    • 11:37 PM
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  • Hi Deb, I had a somewhat similar pain that would wake me at night but also would be severe during the day. Although early in the piece it was mostly at night and was caused by duodenal ulcers and remained undiagnosed for a number of years beacause the pain was ATYPICAL.I did the rounds too and acupuncture and the pain clinic and everything else apart from Mandrake. Don't let them put you off have every test you can think of. Don't take NO for an answer and ASK them if they don't know to say so.Good luck....
    Anonymous 42,789 Replies
    • February 18, 2008
    • 08:57 AM
    • 0
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  • Thanks for the encouragement. I try to be informed when going to different doctors,but so far no one has come up with an answer. My ulcer has been very quiet so far luckily one less problem. This pain is very low abdominal-almost pelvic area into lower back. the only doctor I havent tried recently is a Gastro. But I dont need a colonoscopy or endoscopy right now. I made an appointment for a pain management Doctor for a consult.What I am really afraid of is constantly repeating my symptoms to different Doctors and feeling as if this is all in my head. Its not. Im not a hypochondriac, I dont have any abnormal tendencies to go to doctors unneccessarily. But this is not imaginary or a ploy for attention as some doctors may feel. The only type of emotion I feel occasionally is frustration and alittle depressed because I feel like I will never get to the bottom of this and may have to live like this for good.Hope your pain subsides shortly and youll feel better. Thanks Deb
    Deborah Ann 7 Replies
    • February 20, 2008
    • 04:47 PM
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  • Hi Deb, I undrerstand exactly what you are going through with the undiagnosed pain. I am not a hypochondriac either but I used to think that people, including doctors, simply stopped believeing me. But I WAS eventually diagnosed correctly and had the h-pylori germ. After doing the rounds of doctors and specialists here I finally came across an ordinary MD who insisted I have a barium meal x-ray and it showed up three duodenal ulcers. ALL of the syptoms were atypical of this diagnosis. I had a great deal of pain in the lower back. I was given SOMAC which relieved the pain almost instantly and then had edoscopy and finally the triple therapy that Barry Marshall recommened as the discoverer of the ulcer casuing bacteria. For the first time since my early twenties I have been pain free. There is a great resistance to this treatment from some medicos but Barry Marshall was given the Noble prize for his work last year. The cematadine manufacturers and some sceptics are equally resisitant but I can assure you, even though your pain may not present as typical for stomach ulcers having an endoscopy will surely find the h-pylori bacterium and with the right treatment your (ulcer) pain will disappear. An endoscopy is painless and there are no ill feelings after. Your lower back pain may be something else but at least you won't have any problems with your ulcer if you have the treatment. And you never know with these things as the pain may be presenting as atypical. Worth a shot anyhow. Hope you find some success anyhow, and take heart, I believe you.Regards,Peter
    Anonymous 42,789 Replies
    • February 20, 2008
    • 11:43 PM
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  • Thanks Peter for your reply, I wish I could be as optimistic on this. I was already treated for the H-pylori with 2 weeks of biaxin and amoxicillin. The Gastro also said sometimes you never get rid of the H-pylori fully. I seem to think that my lower back and abdominal pain are somehow linked together.The pain starts with the lower back and radiates around to the lower abdomin.My ulcer pain was in the upper left quadrant under my rib cage. I also have been checked by CT of my kidney (left) for a phenochryocytoma. It showed that there was a growth but it wasnt a pheno. My blood pressure spikes occassionally and I get very bad headaches. But I dont think that my kidney could be causing this pain unless I make an appointment For a nephrologist just as a place to start.Im glad that at least your now feeling better after all these years. I know that ulcer pain can be horrible, especially after you eat. My pain also woke me at night. Stay Well . Debbie
    Deborah Ann 7 Replies
    • February 21, 2008
    • 06:57 PM
    • 0
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  • It does sound more intestinal...have you been checked for tapeworms? Or Parasites? I doubt if it is herpes, but they usually don't run blood work for it. You may want to rule out a case of symptomless (rashless) herpes2 just to be sure. it gives very funny lower back/front pain. Half the people who have it don't have any symptoms.
    Monsterlove 2,921 Replies
    • February 24, 2008
    • 05:18 AM
    • 0
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  • I did some more research and you seem to have some symptoms of Addison's Disease. Better get your addrenals checked:http://cureresearch.com/a/addisons_disease/symptoms.htmSymptoms of an addisonian crisis include sudden penetrating pain in the lower back, abdomen, or legs; severe vomiting and diarrhea, followed by dehydration; low blood pressure; and loss of consciousness.
    Monsterlove 2,921 Replies
    • February 24, 2008
    • 05:44 AM
    • 0
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  • Thanks for all the great websites. I went on the lyme site and I read through the posts. Maybe it should be a good idea to add that onto any bloodwork that I will get. As far as parasites, I already was checked-neg.Im not losing any weight, but then again Im not really trying. As I got older taking off the weight has gotten harder. I will also ask my Doctor to include a HSV2 to the list.I thought all herpe virus manifests with a rash.I went to the endocrinologist and had a 24hr urine and a cortosol test, came back slightly elevated, he wants to wait and keep checking. Also have been checked for Lupus.I checked on my own for ALS,MS,Fibromylgia,Osteosarcoma,Anklingspondolsis.None of them check out with my symptoms.This is a mystery and I feel like Sherlock Holms, but hopefully I will eventually find what this is.Thanks everyone for your help.Stay well-Deb
    Deborah Ann 7 Replies
    • February 24, 2008
    • 10:12 PM
    • 0
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  • Have you been checked for a tilted uterus?
    lauraandbecca 3 Replies Flag this Response
  • I was checked by my GYN back in March-all ok.Just had another colonoscopy, polyp was removed but I still have this pain. Im trying to think of other Doctors I can see. Im thinking pain management and injections.
    Deborah Ann 7 Replies Flag this Response
  • Thanks for the tip for the castor oil. I will have to give it a shot. But has far as candida I worked for an OBGYN for 5 years and its probably slim but I thought the C diff was good. I will have to check into that. The only antibiotic I use is Amoxicillin for either colds or upper respiratory infect.I was checked for parasites in the stool about 2 years ago. there is a theory as far as the IBS goes. I only developed it since I had my daughter 21yrs ago,right from the day of her birth. I think being in childbirth for 27 hours and had her vaginally,did something to my intestines.I can prove it to be certain,but some cases have been linked to childbirth.The pain wakes me up anywhere from 2:30-4:30 every night. some nights I can go until 5:00. I was really convinced that I had either ovarian or endometrial cancer,I had alot of the symptoms. But my doctor said everything looked ok Thanks again! Just wondered if you tried the castor oil pack. Also have you tried acupuncture yet? Again, I cannot tell you how many of my patients come to me as a "last" resort. I'd say 85% report feeling a huge difference with treatments. Please visit www.acufinder.com for info and to find a qualified practitioner near you. Acupuncture works!:) Please do this before getting on various pain meds which will only mask your symptoms and tax your liver. Injections may offer temporary relief. I'd say you have a 50/50 chance that you will have good relief with injections, but often they last only a short time and you are back to square one. Best wishesDOM
    acuann 3,080 Replies Flag this Response
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