Discussions By Condition: Thyroid conditions

Anybody with Hashimoto's Thyroiditis?

Posted In: Thyroid conditions 39 Replies
  • Posted By: Anonymous
  • May 30, 2006
  • 11:54 AM

Hi,

I've recently been diagnosed with Hashimoto's Thyroiditis and I am compeletely petrified! I gave birth to our second child last November, a couple of months later I experienced so much depression and extreme fatigue which I blamed on post-partum weight. After consulting the GP I was misdiagnosed with depression and I took antidepressants which helped with sleeping but I still had everything else. When I went for a bloodtest, I tested positive with extreme levels from 4.04 of 2 years ago to 60! It has been a week since I started taking the pills for hormone replacement but wondering how long it will take for them to take effect and I want to know if there's anybody out there who has had it and recovered? How long does it take to have any improvement and will I be cured completely? If you have Hashimoto's Thyroiditis I'd like to hear from you please. Thank you!

Sincerely,
Margo.

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39 Replies:

  • Hi Margo, Have you checked out the site called womenshealth.gov? It explains everything about your condition. I think that if the medication doesn't work then they may have to do a complete thyroidectomy and then you'll have to be on thyroid hormones for the rest of your life. Hope you feel better soon sweetie. I was just diagnosed with hyperthyroidism and man I really never feel good anymore. I know exactly how you feel. I went untreated for about 2 years and now it's like I've lost complete control of my body. Good luck and God bless.Sincerely,Tammy
    Anonymous 42,789 Replies Flag this Response
  • I have been recently diagnosed and have been on low dose treatment for six weeks, because of my age (76). My biggest worry is hair loss which I put down to getting older, and this might still be the case. I should like to know if anybody who has experienced some recovery from this symptom.
    Anonymous 42,789 Replies Flag this Response
  • I was recently diagnosed with hypothyroidism and frankly, I feel like crap. I have been taking Synthroid for 4 weeks now and not only do I not feel better...I feel 10 times worse then before taking Synthroid. I am so scared that I will never feel the way i used to. By the way, how do you know if you have Hashimoto thyroiditis, compared to non???? Good luck to everyone.
    Anonymous 42,789 Replies
    • August 23, 2006
    • 00:10 AM
    • 0
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  • Margo,The same happened to me after giving birth to my third child. Actually it took years to get a diagnosis and to function better (not 3-4 weeks as the doctor told me). Life would have been so much better if realistic information had been given. It felt like 'not beeing able to get on the train' even if I ran as fast as I could. Even worse. Don't run, give yourself all the time you need, try to get hold of relevant information when you get some of your energy back, ask questions. Till you get back to normal.
    Anonymous 42,789 Replies
    • August 26, 2006
    • 05:30 PM
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  • I have been diagnosed with Hashimoto's Thyroiditis. It took an entire year and several doctors to determine this. I have been on the internet and doing endless research on my situation. I have looked into homeopathic alternatives as well as prescription medicines. It has been difficult to decided what is best. I have read and heard opinions and suggestions from everyone under the sun. My test ( thyroid peroxidase) showed that I possesed antibodies which work against my thyroid, 1000 plus. Since taking Synthroid, ovber the past year this number has reduced to approx 400. I feel better overall. I still have moments in which I experience some of the symptoms I had prior to treatmment. I have had to adjust my dosages occassionally as well. My hair ( long strands) falls out, probably more due to the medication, but it's not as brittle and dry as it used to be. I was told that my TSH was in the normal range. After more in depth test were done, my third endocrinologist confirmed. I am not sure if this medication wasthe best option, I do know that after about 2 months I began to feel better. My suggestion to anyone is to see several doctors, do your own research, and use your best judgement to do something about your situation. Ultimately, No one knows it better than you.
    Anonymous 42,789 Replies
    • October 17, 2006
    • 05:01 PM
    • 0
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  • I was diagnosed with Hashimoto's 5 years ago. I have been on medication ever since. Recently, I started feeling strange again. I went to a well known endocrinologist and it turns out I had been incorrectly diagnosed. I actually had Postpartum thryoiditis. Which isn't very common, but it happend 1-6 months post pregnancy. At first you experience hyperthyroid symptoms for 2-4 months followed by hypothyroid symptoms from 4-18 months. I have read on the American Thyroid website it is impossible to tell the difference between hashimotos and postpartum thyroiditis. The test with the antibodies isn't fool-proof. What probably hasn't been told to you, is that you can have the anti bodies and not have hashimoto's. It may predetermine a problem later in life but it does not mean you have the disease. I suppose doctors are not always up on rare thyroid conditions, but the more research I do the more often I find women are being diagnosed commonly after child birth. I just find it interesting. Also, I read the 80% of women have a normal functioning thyroid 12-18 months after postpartum thyroiditis. I could not sympathize with you all more. It is a very difficult disease to find a "feel good' level. I wish you all well..
    Anonymous 42,789 Replies Flag this Response
  • Hello all I just wanted to comment on a few of your posts regarding hashis. I have been through so much in 2 years I wont get into it but basically my thyroid went wacky HYPO 6 months after birth of my son........I was seriously ill. Anyway I DID test POSITIVE for antibodies so they say I have hashimotos. Suprisingly I became pregnant again and it was a hard pregnancy but my TSH seemed to stay under control. After the birth of my daughter (5 months ago) my TSH is going nutts It is so hypo and I have been up and down on meds it is enough to drive me insane. I cry every day because of this and sometimes I am so weak I think I am going to die but other days I am fine. I am worn out from all of this and my doc doesnt know what is going on but I also read the last post that sometimes it is not always Hashis and could be from child birth (post pardum) I am wondering if that is what it is? Although I do have antibodies but maybe having this second child has totally threw my body off again. I am just scared and confused. I am not a registered user on here but I think I may just become one :)
    Anonymous 42,789 Replies Flag this Response
  • I was diagnosed with Hashimoto a little over two years ago. I was not able to move because my body was in so much pain, my hair started to come out in handfulls, the exhaustion can't be described. the doc thought I had Lupus so he did a complete ANA test with the works only to find it was my thyroid.I could tell many a story of all the testing and drugs that followed, it took at least 6 months for the body to respond to the right levels , so we thought because I seemed to be better and then I hit another rock bottom, last summer again I could't move and was in bed most of the summer because of intense pain only to find out I was not taking to the drug very well. the doctor decided to quit the drug I was on and the levels just skyrocketed. today I was back at the doctor and heard a terrible news I didn't want to hear. my blood tests came back and my thyroid is being destroyed as we type.the T4 levels indicate its only a matter of a little time nad the thyroid will be totally dead, that is what the specialist predicted would happen for me in about three to five years from when I was first diagnosed. the autoimmune disease is taking over my body.I go for a blood test tommorrow for the pancreas to see if its in there as well which He claims may happen.The news isn't surprising because my family history is repeating itself.There are three siblings with the problem and my Dad has it too and also Diabetes.This all isn't encourging but it was nice to get on a page like thisand know others have this thing as well.
    Anonymous 42,789 Replies Flag this Response
  • Visit www.stopthethyroidmadness.com site for more info. I have Hashi's and have been taking Armour for one year. I know that I wanted to die just before I was diagnosed/started taking the Armour. Everything hurt but my hands and feet, etc. Fine now. Try that site. It will help you. There is also a forum so you can post your test results and get feedback from people who've dealt w/this for years.
    Anonymous 42,789 Replies Flag this Response
  • I was on Synthroid for 2-4 weeks after my TSH was 28 and antibodies > 1200. My T3 and T4 were on lower side of normal ranges. I felt miserable - Heart Palpitations, constipation, fatigue, leg cramps, excessive dry skin and more. The doctor told me that I'll feel well after few weeks. Didn't happen. I went to endo and he told me that binders in synthroid may be causing heart palpitations. Changed to Unithyroid. Felt much better. Also started taking Homopathy medicine ( Whereas Allopathic medicine has no cure for hashimotos and other autoimmune diseases, Homopathy claims to have the permanent cure if taken at early stages or treats well for the symptoms reducing the thyroxine dosage. Plus it has no side effects and treats for the symptoms. I have started to feel better if not the best. E-mail at five.vikas@gmail.com for any questions.Vikas
    Anonymous 42,789 Replies Flag this Response
  • Hi my name is Jennifer and I am 21 years old. I think I might have a thyroid problem (or so my doctor says) because a couple of months after my abortion I lost all sexual desire. I am worried, but optimistic. I am also afraid that I have almost all of the symptoms of premenopause. I am so young to be starting my infertility and my 20 year old boyfriend is too. Anyone here have low libido and thyroid problems? If so, please e-mail me at jdcool038@yahoo.com with any info. or stories. Thank you and take care.Jen
    Anonymous 42,789 Replies
    • October 4, 2007
    • 07:34 PM
    • 0
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  • I am an RN as well as a Hashimoto's thyroid patient. It is a very misunderstood disease but well managed, you can feel just as well as someone without it. See a good endocrinologist to help you manage your thyroid. Make sure they have done an antithyroid antibody test as well as a full thyroid panel. Just a TSH will not always give you a correct diagnosis as mine was borderline for 10 years so no treatment was prescribed early enough. I was then experiencing multiple symptoms that were dismissed as menopause, anxiety, depression, etc. Finally I had an ultrsound that revealed multinodular goiter and was referred to a good doctor-who found the Hashimotos as well. It is not a disease that is cured-it is hereditary, and usually if one female has developed it in the family,others may also have it or develope some kind of thyroid disorder. The medicine prescribed to treat this condition varies by doctor, some use synthroid-which works well for many-I was changed to Armour Thyroid after having minimal help with synthroid. It takes 2-3 months sometimes to get full response so be patient-but after that time if you are not feeling better-call the doctor back and have them retest your numbers. A good endocrinologist will follw closely every 3-6 monthsas it is often necessary to change dosage with the fluctuations in your thyroid function. A great source of information can be found on www.AboutThyroid.com:)
    gojirn 1 Replies
    • November 11, 2007
    • 09:19 PM
    • 0
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  • I was diagnosed with Hashimoto's about 6-7 wks ago which also happened to be 7 months after the birth of my third child! The doctors said that my thyroid was too large for it to be postpardum-related and it must be Hashimosto's. Then after my labs came back they showed me as severly hypo-thyroid and I too have the antibodies. I did ask if there was any way this could just be temporary but my Dr. said since I have the antibodies that it's definately Hashimoto's and I will have it the rest of my life. Well, I am 29 and I still consider myself young AND another child isn't out of the question for us. (we always wanted four) But now I'm told it could be hard for me to get pregnant? Does anyone have any info on this? I've been on Synthroid now for 6-7 wks and as far as the fatigue...I feel a TON better! However, I am still weak alot and I have extremely sore muscles! (esp in my legs) and I feel like I have Arthritis or something in my hands and feet. What's crazy about all this though is...I've had the symptoms for this my entire life! Even before I had kids, and when I was much thinner, I had the symptoms of hyper-thyroidism! As I got older, my hair began to fall out and it'd go in waves where it'd get better/worse. I'm looking for an active forum to post on regularly with constant feedback. I don't know if this is the place. Any recommendations? Thx! Jenn
    jkband4 1 Replies
    • November 20, 2007
    • 08:04 AM
    • 0
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  • I was finally diagnosed with Hashimotos early in 2001 after 9 years of serious illness. Initially was hyper; I have been told that can happen with the onset of Hashimotos, but it then swung to severe hypo. I had hair loss on my head, brows & lashes plus beardlike hair growth on my face, coarse dry flaky reddened skin, constant flu like symptoms such as severe body & joint aches & pains & constant sore throat, my vision & hearing were affected, severe oedema, massive rapid weight gain, excessive sweating, constant problems with my digestive system & bowel function, regular headaches, chronic exhaustion.... the list went on & on. I was started on 400mcg daily of Oroxine, however after 6 months I was only showing limited improvement & on seeing another Dr, was started on Liothyronine as well. For the first 6 months when I started taking the medications I found I felt much worse not better, however, for those who experience this stick it out, this takes time especially if you have been very ill for a long time as I had. Mine has been very difficult to stabilise and I also suffer from other auto immune diseases such as psioriasis. However I am now well enough to run my own full time cleaning business (!) & most of my symptoms have radically decreased. I was so ill before treatment I was virtually bedridden for over 2 years. For me the natural treatments did nothing & if I stop taking the Liothyronine within 48 hrs I am hit with flu like symptoms & radically increased white cell count. Don't give up & give any treatments at least 6 months to work, I'd even try for a year. My tablets are more precious to me than gold, they now give me a pretty close to normal life. Warn your daughters too so they can be diagnosed & treated early before they get really sick, my mother didn't tell me she had it until after I was diagnosed!
    Sierra 1 Replies
    • January 3, 2008
    • 08:11 AM
    • 0
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  • I had Hashimoto's for 15 years, I had my thyroid FINALLY removed November 2007, felt better than I have in 15 years. However, make sure the (drs) check your thyorid counts as the drs did not lower my medication and after about 3 weeks - I started having stroke like symptoms. Not like a head stroke but stroke like symptoms due to the medication was not lowered which built up in my system. I had facial twitching, numbness on left side and still it varies throughout my body, confusion, constipation, cold hands & feet, just horrible. Again - after the surgery I was darn near perfect - now I have to play the guinea pig so that they can find out what to do. I wish you all the best of luck. Pray for me and I will do the same for all of you. MaryKay
    mimikay77 5 Replies
    • February 19, 2008
    • 01:54 AM
    • 0
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  • A message to mimikay77 I,m thinking after all these years with the symptoms of Hashimotos that I just need to ask ****s for strength for this journey & continue to trust Him as I do with everything else that concerns this precious life I,m grateful for that He has given me, I may be healed from this one day, I know He has delivered me from cancer & so much more in my life, meantime I will pray for you mimikay 77 & as you said you will pray for me, thankyou " my name is Josie. God bless you all with the strength & healing you are seeking & the peace that passes all understanding.
    Anonymous 42,789 Replies
    • February 21, 2008
    • 06:35 AM
    • 0
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  • My 11 year old daughter was diagnosed with Hashimotos Thyroiditis last month. She had blood work in August. Her TSH level was 2.12 They did another test last month and it had dropped to 0.95. The endocrinologist put her on Synthroid. She needs more blood work this week to see what it is.
    Kamily828 2 Replies Flag this Response
  • A message to mimikay77 I,m thinking after all these years with the symptoms of Hashimotos that I just need to ask ****s for strength for this journey & continue to trust Him as I do with everything else that concerns this precious life I,m grateful for that He has given me, I may be healed from this one day, I know He has delivered me from cancer & so much more in my life, meantime I will pray for you mimikay 77 & as you said you will pray for me, thankyou " my name is Josie. God bless you all with the strength & healing you are seeking & the peace that passes all understanding. Josie - you are on my prayer list. I did see the endo and after speaking to him, he said "this should not have happened" over and over. Prayers are what I trust in and I will continue to pray for all you. MiMiKay77
    mimikay77 5 Replies Flag this Response
  • In 2001 I was dx'd with subclinical hypothyroid and I saw 3 endos and each of them didn't do anything but review the standard thyroid panel from my blood tests and subscribe synthetic levythroxine. I read up about it and tested myself and found I had high antibodies, therefore hashimotos. The docs all said when the thyroid stabilized, they would drop; my thyroid still has not stabilized, and the antibodies kept shooting up to 5500 in Oct 2006. I heard about something called Neuromodulation Technique and started this in Oct 2006 and after about 7 sessions, in Dec 2007 the antibodies dropped to 1400. I also started armour in Jan 2007 and felt much better on this, the change was incredible. Now in March 2008 my free T4 levels are still low and the doc is recommending I take a small dose of T4 together with the armour which I started 2 days ago but already don't feel good on it.I want to add that in 2005 I started having adrenal problems but no one paid much attention to this, and finally in late 2007 I found a DC doc who lowered my thyroid and increased isocort.........it's incredible really that no doctor had ever tested this, since it even says in the American Med Journal that no doctor should treat thyroid until they check and treat the adrenals...............Now I think I have something called Sheehan Syndrome which caused all these problems in the first place........it's due to hemmoraging with multiple birth (which I had in 83) and sometimes the symptoms come out many years later (in my case about 15 yrs later).......the hemmohage causes shock to system and part or all of pituitary gland dies out.......no one ever checked this either before, and now I am going to check if this is the case............
    lagale 5 Replies Flag this Response
  • Try neuromodulation technique, it is only thing that helped me lower my antibodies, they went from 5500 in Oct 2006 to 1385 in Dec 2007 with only 7 sessions. The doctor told me if I had come to him when I was first dx'd, that he probably could have saved the thyroid but he doesn't know how much was destroyed so I will probably have to be on meds rest of my life.....(yuk).......however I did switch to armour and the difference was amazing, I had never never felt good on levythorxine and was just deteriorating like mad...........
    lagale 5 Replies Flag this Response
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