Discussions By Condition: Cardiovascular disease

Bier Spots ?

Posted In: Cardiovascular disease 43 Replies
  • Posted By: twinreverb
  • January 20, 2008
  • 06:14 AM

For the last few years i have had these multiple white spots all over my body

They started off on just my arms but gradually they have gone to my hand back and all down my legs.

Ive noticed they dissappear when im lying on my back flat and appear when im standing with my arms by my side, they are also worsened by emotional stress and cold weather.

i am always very tired and want to sleep a lot and some times get pains around my wrists area.

Over time they have become more faded but more permanent coming out even when its not that cold.

just wondering if anyone knows what could be causing it and what might help with controlling them.

thanks kevin

Reply Flag this Discussion

43 Replies:

  • HI KevinI,ve been looking sth for this annoying little spots that i also have on my arms and legs and i think we have the simlar problem. i went to see a doctor, after maybe 2 years since they,ve first appeared and i epected that they.d test my blood and everything and i was scared to death. but that doctor told me that she has seen 100s like me ( and i tought i was 1 in a 10000000) and that i shouldn't worry that much, cause it is due to sth like weakened immune system, i am verry skinny i don't eat regularly and i smoke a loooot.and i stopped smoking for a month or so and they dissapesred completely, but than istarted smoking again and they appeared again. so i think it has sth to do with oxygen in the blood or i dont know some irregularities in the blood vessels. i thnk its best for you to go and see a doctor yourself,ok?ps: i,ve noticed that the spots also disappear when i get a suntan during summer!hope to her from you soon and wish you wellsorry for my english.. (not mother tongue)
    CHIMERA_3012 2 Replies
    • February 19, 2008
    • 02:00 PM
    • 0
    Flag this Response
  • I have the similar problem. I thought i was the only one around because no one in my family has this problem and it is really annoying when i wear short skirts or sleeveless shirts. It appears all the time. Eg: when i stand too long, or sit too long, or when its cold, sometimes even if its hot i have it. It has gone from bad to worse. I tried to see a skin specialist but they said that it cannot be cured. I am really sadden by the fact. I dont smoke nor drink and i guess im pertty healthy. I just dont know what it has to happen to me. Sigh. Is there anyone out there who has a similar problem and has a cure to it. I need to end all this.
    Anonymous 42,789 Replies Flag this Response
  • Well, Some Time Ago I Wrote Here About My Problem, That I Think Is The "misterious" Spots, I Went To See Dermatologist, He Didnt Know What Are Those Little Annoying Spots, Neither What Could've Caused Them, Then I Went To See Another Doctor, And I Was....like... Trying To Explain The Symptoms, And She Already Knew All About It, She Told Me That Loads Of People, Esp. Youngsters And Adolescents Have Come To See Her. I Told Her I Was Quite Worried, Cause I Can't Wear Skirts, Nor T- Shirts, Which Is Really Annoying, Esp When Its Hot And In Summer,when I Must Wear Long Pants And Snickers.... And This Doctor Told Me That I Shouldnt Worry So Much, That With Time The Spots Will Disappear,in Future When I'' Get Pregnant, My Organism Will Strenghten ,and Stuffs Like That. But For The Time Being I Still Have Tose Spots, Though I Started Using A Cream Called ''kuterid G",in My Country, But I Dont Know Whether You Can Find It Where You Live. Try To Exercise A Little, And For Me The Sun Bathing Helps A Lot, I Guess The Tanning Helps Cover The Spots.
    CHIMERA_3012 2 Replies Flag this Response
  • Kevin They are also known as "marshall white syndrome"I have the same problem... its been getting worse on arms and thighs. I live in Hong Kong China.. Its been real hard for me to get treatment for this condition... I've been to a number of dermatologists most of them can't tell what it is. One did manage to tell me its Anemic Macules.I had to do the research based on this name and find out what i have its really called bier spots or marshall white syndrome. Almost all of the information I've found online claims theres no cure for this disorder.I'm a 31 male, smoker, so i'm going to quit smoking and start exercising hoping it'd help. Edmond
    tuss2002 4 Replies
    • February 16, 2009
    • 08:39 AM
    • 0
    Flag this Response
  • I have the same spots on my arms and legs. Mt dermatologist comfirmed they are beir spots. I was woundering if any one else also has joint pain and or tenderness in the muscles along with the spots. I also have dry irritated skin. I have seen several doctors and they can't seen to figure it out. I'm not sure but these symptoms could also be stress from the disorder. Just wanted to know if anyone else is experiencing similar symptoms. Kevin They are also known as "marshall white syndrome"I have the same problem... its been getting worse on arms and thighs. I live in Hong Kong China.. Its been real hard for me to get treatment for this condition... I've been to a number of dermatologists most of them can't tell what it is. One did manage to tell me its Anemic Macules.I had to do the research based on this name and find out what i have its really called bier spots or marshall white syndrome. Almost all of the information I've found online claims theres no cure for this disorder.I'm a 31 male, smoker, so i'm going to quit smoking and start exercising hoping it'd help. Edmond
    Telesys 1 Replies
    • September 7, 2009
    • 04:19 AM
    • 0
    Flag this Response
  • I had them as well, Im a 100 % they where bier spots. They vanished almost completely when i lifted my limps up and they became stronger as soon as i would let my arms hang or stand very long ( on the leggs), which is the typical behavior of bier spots. Over the years they became worse and i was really afraid that they will be there for ever. However now they are gone, which is a result of the acne treating medication isotretinoin, pills against severe acne. Therefore there IS a treatment for those annoying spots. I went to a load of doctors but almost all of them didn't hear anything about bier spots before, and since they are not clinically relevant, which means they are not sign of sickness, nobody cares about them. Everbody told me to simply ignore them, which i basically did. since 1 month i take isotretinoin against acne and ever since they almost disappeared completely. that medication has really mean side effects so i would not recommend taking them against bier spots but if you have acne and bier spots don't hesitate to take them. i really feel better now
    Anonymous 42,789 Replies
    • October 5, 2009
    • 07:48 PM
    • 0
    Flag this Response
  • I have had them since childhood... I never thought anything of it but so many people would mention them and ask questions. Right now my arms and legs are covered but it seems I have them more often than not. I get them more when i am hot (i get them when cold too) but sitting the heat i noticed them more. I also get them often from physical activity. I was told it was to do with low blood pressure, not sure if this is true, but i do have very poor blood circulation so that might be a cause. When I tan I still get them too.
    Anonymous 42,789 Replies
    • October 17, 2009
    • 08:23 PM
    • 0
    Flag this Response
  • I have had them since childhood... I never thought anything of it but so many people would mention them and ask questions. Right now my arms and legs are covered but it seems I have them more often than not. I get them more when i am hot (i get them when cold too) but sitting the heat i noticed them more. I also get them often from physical activity. I was told it was to do with low blood pressure, not sure if this is true, but i do have very poor blood circulation so that might be a cause. When I tan I still get them too.Is there a cure for them or will they ever go away...i have had them for a year now and i'm gettin worried..please help
    Anonymous 42,789 Replies
    • November 20, 2009
    • 09:15 PM
    • 0
    Flag this Response
  • Hi everybody, I have what is called bier spots for sure. It started about 7 years ago on my arm and by now every part of my body apart from back and stomac is effected badly, especially arms and legs. I´ve got exactly the same symptoms (when lifting arms not but there when arms hanging down or standing long) I also noticed it depends on the temperature (stronger to see when I´m cold; although many are there always) and it shows differently in different light. I have been to many, many doctors and nobody can really tell me where it comes from or what it is exactly but that there is nothing they can do.I want to write especially to that guest who wrote about the acne treating isotretinoin. I haven´t got acne but I´m desperate and this is affecting my life a lot so I´m considering giving it a try despite the severe side affects. It would be nice if you could give me more information about how it worked with the bier spots and mainly about the current process.thank you very much
    Anonymous 42,789 Replies
    • December 1, 2009
    • 00:10 AM
    • 0
    Flag this Response
  • Hi everybody, I have what is called bier spots for sure. It started about 7 years ago on my arm and by now every part of my body apart from back and stomac is effected badly, especially arms and legs. I´ve got exactly the same symptoms (when lifting arms not but there when arms hanging down or standing long) I also noticed it depends on the temperature (stronger to see when I´m cold; although many are there always) and it shows differently in different light. I have been to many, many doctors and nobody can really tell me where it comes from or what it is exactly but that there is nothing they can do.I want to write especially to that guest who wrote about the acne treating isotretinoin. I haven´t got acne but I´m desperate and this is affecting my life a lot so I´m considering giving it a try despite the severe side affects. It would be nice if you could give me more information about how it worked with the bier spots and mainly about the current process.thank you very muchI would like to know more about the acne pills as well. My spots are getting bad. Doctor's and dermatologist downplays this disease but they have no idea how it is affecting a person's everyday life. Any help appreciated. Thank you
    Anonymous 42,789 Replies
    • December 3, 2009
    • 08:57 PM
    • 0
    Flag this Response
  • I have the same spots on my arms and legs. Mt dermatologist comfirmed they are beir spots. I was woundering if any one else also has joint pain and or tenderness in the muscles along with the spots. I also have dry irritated skin. I have seen several doctors and they can't seen to figure it out. I'm not sure but these symptoms could also be stress from the disorder. Just wanted to know if anyone else is experiencing similar symptoms.YESSSSSSS I have some crazy things going on since the spots got worse. Feeling tired is an understatement. The joint pain and muscle pain is ridiculous. All the doctors can say is my potassium keeps going low when I feel really weak, but not low enough to cause this dramatic of weakness. I have been going through progressive weakness and fatigue for 6 months now and started having cataplexy attacks. The docs are amazed, I am not narcoleptic for sure according to the test and they dont know if there is a connection between all of this going on at the same time the spots starting spreading like a plaque. The spots are moving up to my thighs now and as high as my shoulders. When they started is when I got tired and cranky and anxiety problems and potassium problems and weakness going up stairs or drying my hair. I have thyroid probs, but they said my thyroid was doing great and levels are only a hair low, not low enough to cause muscle pains and tenderness in pressure points like I have. I have to get massages everyday now or I am bedridden unless I want to snap at people all day in bad mood. This is just not me. I own 6 businesses and have a good life. Sure I have stress, but this has been the icing on the cake. I expect a disease is coming.....just a matter of time. Anyone been diagnosed with anything a while after the spots started? My first spots started real light probably bout 3 years ago and was hardly bothersome. I have B12 shots monthly and we checked my levels to see if that was the cause and my level is perfectly fine so that is not it. I changed to tea tree soap, so no its not a fungus even tho it takes like 20 minutes for the spots to reappear after jumping out the shower using that stuff but I think that has to do with temperature. The spots are gone while in the shower. I am very sensitive to cold too by the way, Im terrified of the cold, it makes my muscles just want to freeze up and not move like a deer in headlights. Please write back if anyone see similar strange pattern. Anxiety seems to be in common with us all, but I think its medical anxiety of our bodies trying to tell us something is here that wasnt before. I didnt have anxiety before this started. I was the cool and calm one who could problem solve. Now I am a big clusterpuck and too tired all the time for no known reason. I also notice I have diarreah for 10days every month and the spots are terrible then and so is the weak spells. I drink pedialyte until its over because nothing stops the diarreah, nothing and if I refuse to go to toilet, I puke it out so my tummy definately dont want food for those 10 mysterious days. Always 10, then it gets better, but spots still say something is wrong. Heart doc says my heart and circulation is great. Has nothing to do with the heart. I been to every specialist, every type except kidney doctor cause I dont have urination issues so why bother. Anyone gets cataplexy or weak spells starting please call me 5028190830 so we can keep up and compare notes and exclude tests we have already taken. I got a huge binder full of all the diseases I dont have that was checked for....but so far still trying and going docs every week. Lowering stress has never helped my spots even on anxiety meds and a beautiful long vacation....no progress on the spots or the tired feelings all the time.
    Anonymous 42,789 Replies
    • December 14, 2009
    • 08:02 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Hello,i am alex from germany.first sorry for my english. i only learned it in school many years ago.I`ve got bier spots since 2001. I´m 30 years old and I´m a smoker.At medizin-forum.de you will find a tread wich is called "hilferuf weisse flecken!!!"At this tread me and many others try to find out if bier spots are curable.We found out that if you are a smoker the often changeing blood pressure can be the reason for the spots.That means every time you smoke your blood pressure goes up for ca. 20 minutes and then it goes down until you smoke again.my message to you is if you are a smoker try to stop smoking and at least 3 months you will see the spots are dissapearing slowly.
    Anonymous 42,789 Replies
    • January 27, 2010
    • 10:52 PM
    • 0
    Flag this Response
  • I too have the spots which go away when my arms are raised. Along with the spots, I have chronic fatigue, neuropathy (mostly in my lower legs & feet). I've been through so many tests I feel like a lab rat. My Hypo-thyroidism is under control according to my blood tests. The more pain I'm in it seems like the more spots I have. None of the doctors I've seen have heard of Bier spots. With some of my blood tests, the doctor says it may be showing signs of Lupus, then I get my blood taken & it goes away. A bone scan supposedly showed slight arthritis in my lower back. I've taken Lyrica which was great all except for the tiredness. I went to two Fibromyalgia specialists since my symptoms seem to match, both said that wasn't it. I've had this issue for 34 years & it keeps getting worse. During my preganancy with my son was the BEST I've ever felt. I'm currently taking Traumadol which just doesn't take the pain away, but takes the edge off. Without it I cannot sleep.Trisha, I'm the one who called you to compare notes. If anyone would like to contact me, please email me @ michele.sadelson@earthlink.net
    Anonymous 42,789 Replies
    • February 4, 2010
    • 08:31 PM
    • 0
    Flag this Response
  • Hello,i am alex from germany.first sorry for my english. i only learned it in school many years ago.I`ve got bier spots since 2001. I´m 30 years old and I´m a smoker.At medizin-forum.de you will find a tread wich is called "hilferuf weisse flecken!!!"At this tread me and many others try to find out if bier spots are curable.We found out that if you are a smoker the often changeing blood pressure can be the reason for the spots.That means every time you smoke your blood pressure goes up for ca. 20 minutes and then it goes down until you smoke again.my message to you is if you are a smoker try to stop smoking and at least 3 months you will see the spots are dissapearing slowly.Hi Alex,If smoking is really the cause of the bier spots, then I shall quit...Thank you for your research, I will check out the website you have provided. Do you have more information about bier spots though?
    Anonymous 42,789 Replies
    • February 4, 2010
    • 09:49 PM
    • 0
    Flag this Response
  • Hi AlexI´m Vivian from Germany and I already placed a text in here. I wrote entry number 10. I red your entries in the other forum as well and thought about writing to you before. As I wrote I´m thinking about trying isotretinoin, but it´s very dangerous because of many side affects. Some time ago I assumed it would be because of my heavy smoking so I stoped for about 3 months but it didn´t work and I started again. Could you please explain it more precisely? because if you´re saying the blood pressure changes after 20 minutes I would assume the spots would change as well if let´s say I wouldn´t smoke for a few hours but my spots change depending from other factors (or you can see them better or not)... and why are there just a few people out of so many smokers who get that?Did stopping smoking work with you and if it did how exactly? How quickly and when did it start to work...?I would really, really appreciate if you would answer because this is very important to me and the spots have got a deep impact on my life and as well after reading your other texts some time ago I think we´ve got a very similar story (time since they first appear, attending all those doctors, trying a lot of things over the years...) I would really like to exchange experience and information with you and of course make sure we´ve got the same problem (I´m pretty sure thats the case but you know many people don´t know the typical behavior of bierspots or what they look like and mistake all sorts of things for bierspots)
    Anonymous 42,789 Replies
    • February 4, 2010
    • 09:52 PM
    • 0
    Flag this Response
  • Hi AlexI´m Vivian from Germany and I already placed a text in here. I wrote entry number 10. I red your entries in the other forum as well and thought about writing to you before. As I wrote I´m thinking about trying isotretinoin, but it´s very dangerous because of many side affects. Some time ago I assumed it would be because of my heavy smoking so I stoped for about 3 months but it didn´t work and I started again. Could you please explain it more precisely? because if you´re saying the blood pressure changes after 20 minutes I would assume the spots would change as well if let´s say I wouldn´t smoke for a few hours but my spots change depending from other factors (or you can see them better or not)... and why are there just a few people out of so many smokers who get that?Did stopping smoking work with you and if it did how exactly? How quickly and when did it start to work...?I would really, really appreciate if you would answer because this is very important to me and the spots have got a deep impact on my life and as well after reading your other texts some time ago I think we´ve got a very similar story (time since they first appear, attending all those doctors, trying a lot of things over the years...) I would really like to exchange experience and information with you and of course make sure we´ve got the same problem (I´m pretty sure thats the case but you know many people don´t know the typical behavior of bierspots or what they look like and mistake all sorts of things for bierspots)Hi Vivian, this is Michele I no longer smoke & still have the spots along with the fatigue & pain (I posted yesterday). Recently due to being laid off from my job, from stress I might smoke a few cigarrettes here & there, but have had these issues since I was 16 (about 24 years ago). Perhaps the onset of them starts with smoking, but it doesn't go away if you quit :-( Per my previous post, I've been tested for many, many things. I'm definite hypo-thyroid & sometimes signs of Lupus show up in my blood tests. Symptoms seem to be getting worse over time. I'm currently taking Traumadol (sp?) for the pain. It doesn't take all the pain away, but takes the edge off so I can function. None of the doctors I've seen know what the spots are & most brush it off as nothing. After reading one of the posts (about crazy things happening), I called the person who posted & we have the EXACT same issues. So it HAS to do something with the spots. Please feel free to contact me if you wish....my email is michele.sadelson@earthlink.net.Take care,Michele
    Anonymous 42,789 Replies
    • February 5, 2010
    • 06:21 PM
    • 0
    Flag this Response
  • Hi AlexI´m Vivian from Germany and I already placed a text in here. I wrote entry number 10. I red your entries in the other forum as well and thought about writing to you before. As I wrote I´m thinking about trying isotretinoin, but it´s very dangerous because of many side affects. Some time ago I assumed it would be because of my heavy smoking so I stoped for about 3 months but it didn´t work and I started again. Could you please explain it more precisely? because if you´re saying the blood pressure changes after 20 minutes I would assume the spots would change as well if let´s say I wouldn´t smoke for a few hours but my spots change depending from other factors (or you can see them better or not)... and why are there just a few people out of so many smokers who get that?Did stopping smoking work with you and if it did how exactly? How quickly and when did it start to work...?I would really, really appreciate if you would answer because this is very important to me and the spots have got a deep impact on my life and as well after reading your other texts some time ago I think we´ve got a very similar story (time since they first appear, attending all those doctors, trying a lot of things over the years...) I would really like to exchange experience and information with you and of course make sure we´ve got the same problem (I´m pretty sure thats the case but you know many people don´t know the typical behavior of bierspots or what they look like and mistake all sorts of things for bierspots)Hi Vivian,So quitting smoking will not work? Try quitting for a longer period of time, eat a healthy diet and exercise more. You need to have faith, our body is like a temple and whatever you eat or eat will result in skin changes..It will work.
    Anonymous 42,789 Replies
    • February 5, 2010
    • 07:36 PM
    • 0
    Flag this Response
  • Hi Vivian, this is Michele I no longer smoke & still have the spots along with the fatigue & pain (I posted yesterday). Recently due to being laid off from my job, from stress I might smoke a few cigarrettes here & there, but have had these issues since I was 16 (about 24 years ago). Perhaps the onset of them starts with smoking, but it doesn't go away if you quit :-( Per my previous post, I've been tested for many, many things. I'm definite hypo-thyroid & sometimes signs of Lupus show up in my blood tests. Symptoms seem to be getting worse over time. I'm currently taking Traumadol (sp?) for the pain. It doesn't take all the pain away, but takes the edge off so I can function. None of the doctors I've seen know what the spots are & most brush it off as nothing. After reading one of the posts (about crazy things happening), I called the person who posted & we have the EXACT same issues. So it HAS to do something with the spots. Please feel free to contact me if you wish....my email is michele.sadelson@earthlink.net.Take care,MicheleMicheleeeeee!! Girl, I had to go to the ER suddenly with feeling all weird and they found something. A sclerosis on my hippocampus. So they kept me cause my bier spots were looking really bad, they got me a nuero who tested me for epilepsy seizures, which was normal. Then they put me on muscle relaxers and sent me home after scratching their head for 4 days. All my blood work was great so I guess they felt no need for a cardiologist even though the nuero recommended it to my doctor since he is not convinced this is coming from my brain, but thinks it may have affected it because it did not show that spot on my MRI 4 months ago. This is nutzzz. So I still cant breathe well going upstairs but they say my oxygen was 98-100percent in the hospital and my BP was good. Well....they had me on flipping bedrest with fall alert, did they expect anything to happen? So, I called a cardiologist and asked to go see them soon as possible and waiting for the weather to clear so that they fit me in. Im fed up and do not want to be in bed all the time when they say my bloodwork is perfect. Im not feeling or looking perfect and I am not picking up another cigarette just in case. Talk at ya soon. Raisinroofs@yahoo.com and add me to your face book. Trisha Marie GrabertTrishaaa
    Anonymous 42,789 Replies
    • February 9, 2010
    • 09:39 PM
    • 0
    Flag this Response
  • Hi, everyone. I am a 23 year old female, having had this problem on one side of my lower left leg and the back of my left foot since maybe when i was 10 or 12, i am not quite sure about the exact time when it first showed. But the symtoms are all the same as you guys. It disappears almost completely when i lie down, or raise my leg higher. But it becomes very visible when i am standing for over 20 or 30 mins. I spend a lot of time trying to figure out the cause so as to find possible cure. However there is no cure found yet, but I was thinking a lot about what might have possibly caused the condition. What I am going to tell might be irrelevant to the condition, but I am trying my best to offer as much information as I can remeber to contribute the most i can in finding the real causes of it. When I was about 10 or so, I had a sort of an accident where a red-colored centipede accidently fell on that part of my leg. I was a kid and was extremely terrified and started jumping around like crazy and the centipede i guess was shaken off from my body right then, but because i didnt see any white sopts before the accident, but i noticed it a time after it happened. so I guess, the cause of this skin problem has a lot to do with any possible nerve-racking experience. (And ***n, i hate centipedes)And ahout the part of the spots that appeared on the upper back of my left foot. I remebered when it appeared very clearly. One day, i guess that's when I was 12, I went swimming with friends. The temperature of the water in the swimming pool was very low. And The other kids I were with very excitingly found several fish that were also in the pool swimming with us. But for me, i was extremely worried and nervous about the fish that might come to me and bite me, but eventually. one of them swam near and touched on the back of my left foot. It didnt bite, but the moment it touched me, I went crazily nervous, as if part of my body was frozen. And afterwards when i went back home, having shower, i started to notice some spots on the foot. I didnt know what they were, and have no idea that it would stay ever since. So once again, in my case, the start of this condition has much to do with situations where i or part of my body went crazily nervous.Lately, as I was reading on some medical reports about bier spots, I found that there are a lto of cases that have been reported to be related with the people who are potentially prone to sclerosis or scleroderma, i am not sure what the two conditions have in common, but by words, they look similar. However, to be certain about whether we are undergoing either of those two problems, we have to go through a MRI (nuclear magnetic resonance imaging)test in a hosipital (google it if you dont know it yet). But again, this is just my guess about the condition that might be causing the white spot. and I didnt go to a MRI yet. and the reason why not every one who s been through similar situations suffer this problem, i guess, its deep down, our physcial making are a bit different. some people, they have genes that make their body more prone to problems like this. I hope what i wrote helped. But, what is the cure! if bier spot really is related with sclerosis or scleroderma, would taking the pills for these two conditions work for us? I read that someone was using isotretinoin that worked. But isotretinoin is also a medication for patients having scleroderma. So, could anyone tell me if what we are having really are related with sclerosis or scleroderma. Thanks!
    Anonymous 42,789 Replies
    • February 14, 2010
    • 03:27 AM
    • 0
    Flag this Response
  • Hi, everyone. I am a 23 year old female, having had this problem on one side of my lower left leg and the back of my left foot since maybe when i was 10 or 12, i am not quite sure about the exact time when it first showed. But the symtoms are all the same as you guys. It disappears almost completely when i lie down, or raise my leg higher. But it becomes very visible when i am standing for over 20 or 30 mins. I spend a lot of time trying to figure out the cause so as to find possible cure. However there is no cure found yet, but I was thinking a lot about what might have possibly caused the condition. What I am going to tell might be irrelevant to the condition, but I am trying my best to offer as much information as I can remeber to contribute the most i can in finding the real causes of it. When I was about 10 or so, I had a sort of an accident where a red-colored centipede accidently fell on that part of my leg. I was a kid and was extremely terrified and started jumping around like crazy and the centipede i guess was shaken off from my body right then, but because i didnt see any white sopts before the accident, but i noticed it a time after it happened. so I guess, the cause of this skin problem has a lot to do with any possible nerve-racking experience. (And ***n, i hate centipedes)And ahout the part of the spots that appeared on the upper back of my left foot. I remebered when it appeared very clearly. One day, i guess that's when I was 12, I went swimming with friends. The temperature of the water in the swimming pool was very low. And The other kids I were with very excitingly found several fish that were also in the pool swimming with us. But for me, i was extremely worried and nervous about the fish that might come to me and bite me, but eventually. one of them swam near and touched on the back of my left foot. It didnt bite, but the moment it touched me, I went crazily nervous, as if part of my body was frozen. And afterwards when i went back home, having shower, i started to notice some spots on the foot. I didnt know what they were, and have no idea that it would stay ever since. So once again, in my case, the start of this condition has much to do with situations where i or part of my body went crazily nervous.Lately, as I was reading on some medical reports about bier spots, I found that there are a lto of cases that have been reported to be related with the people who are potentially prone to sclerosis or scleroderma, i am not sure what the two conditions have in common, but by words, they look similar. However, to be certain about whether we are undergoing either of those two problems, we have to go through a MRI (nuclear magnetic resonance imaging)test in a hosipital (google it if you dont know it yet). But again, this is just my guess about the condition that might be causing the white spot. and I didnt go to a MRI yet. and the reason why not every one who s been through similar situations suffer this problem, i guess, its deep down, our physcial making are a bit different. some people, they have genes that make their body more prone to problems like this. I hope what i wrote helped. But, what is the cure! if bier spot really is related with sclerosis or scleroderma, would taking the pills for these two conditions work for us? I read that someone was using isotretinoin that worked. But isotretinoin is also a medication for patients having scleroderma. So, could anyone tell me if what we are having really are related with sclerosis or scleroderma. Thanks!Yep you are on to something...I had MRI last week and they found a sclerosis in my hippocampus, very small. Also they noticed my heart rate goes up when I move or stand up and then here come the spots and the ill feeling. I am going to take a tilt test this week to see if there is a nerve condition in my heart causing all of this...including what has developed into a strange seizure-like pattern during menses. The centipede thing had to get your heart rate up as well. Maybe you dont have a sclerosis on your brain yet, but going through this so long makes me wonder if my heart did not communicate to shut all down, like a seizure several times over the last year when I fell to ground and felt paralyzed except for my breathing. I do not have epilepsy and I am a mystery to the docs at this point. I am now looking towards POTS. This tilt test will definately help. That spot was not on my brain before life got harder. Post traumatic cause....maybe. Scleroderma...maybe and I may get tested for those anitbodies as well. I do have a keloid on my chest from a chicken pox when I was 12 and since I got sick 7 months ago, it has grown a little. Thanks for your post. I have been testing everytime I feel weak or abnormal, I take my BP and my heart is in fact elevated over 100bpm. I quickly lie on my back, and poof, it goes away then I get up slow and try to stay as active as possible without pushing it. Very interesting that our body resets itslelf like that, but surely pointing towards a blood pulling problem that has existed very long with little notice besides the occasional bier spots. Friend me on face book and keep in touch. I am very interested in this subject. Trisha Marie Grabert
    Anonymous 42,789 Replies
    • February 14, 2010
    • 09:21 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement