Discussions By Condition: I cannot get a diagnosis.

thyroid symptoms?

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Jenclara26
  • October 6, 2007
  • 01:52 PM

Perhaps someone can here can help me out. I seem to be getting nowhere with the docs. Here are the facts....
Diagnosed with multinodular goiter in 2003, 11 nodules, largest being 2.5 cm. (it actually starts on one side of the neck, around the esophogus, to the the other side) Biopsy showed nothing.
T3-T4 are within normal limits
Arthritis blood work came back fine
I am tired, moody, anxious, slow skipping heart beat (especially at rest) general all over muscle pain, EVERY joint in my body hurts. I have been limping for over a month due to a very sore hip, but I never injured it. Woke up one day and it hurt. Even all the joints in my hands hurt. My face and eyes are always puffy, no matter how much sleep I get. I can't tolerate the cold. (I wear sweatshirts while everyone else wears t shirts)
My hands and feet go numb. I wake up feeling hung over once in a while, complete with hugging the porcelin god. I can't remember anything, affecting long and short memory. Can't concentrate. Completely overwhelmed.
I think that wraps it up. Oh - I'm 32, physicaly fit. I look young and healthy, so docs blow me off saying I'm "too young".

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8 Replies:

  • Ask for a referral to an endocrinologist. They've got more knowledge to help sort out what's occurring with you.Believe me, you're not too young to be having thyroid problems. Mine began around age 24.
    Anonymous 42,789 Replies
    • October 6, 2007
    • 06:36 PM
    • 0
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  • I have the same type of goiter with normal blood work. The endocrinologist put me on levoxyl (thyroid) and my goiters have gone away. They needed to be aspirated a few times, so get to a specialist. He told me that even though the blood was within normal limits, it was low-normal and with a goiter, they want it normal or high normal. I think your other problem is not related to the thyroid and you should get a bone scan and additional blood work.
    Monsterlove 2,921 Replies
    • October 7, 2007
    • 02:57 AM
    • 0
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  • I agree with the others but would add a visit to the neuologist. MRI & CT's of head, neck, back would be good idea. You may also have early onset rheumatoid arthritis or a disorder/infection that is affecting your joints. Good Luck!Bobbi
    Anonymous 42,789 Replies
    • October 9, 2007
    • 04:05 AM
    • 0
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  • You sound very hypo! You should visit www.stopthethyroidmadness.com. They have a great forum where you can post your blood test results. Alot of people are hypo long before their bloodtests show anything out of range. I know thats what happend to me!
    Anonymous 42,789 Replies
    • October 9, 2007
    • 10:14 PM
    • 0
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  • I agree with everyone, while you're at it have the Dr. check your B12.SV
    suevit 24 Replies
    • October 10, 2007
    • 02:25 PM
    • 0
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  • Also check out hyperparathyroidism. Lotsa bone pain.
    rad-skw 1,605 Replies
    • October 11, 2007
    • 10:06 AM
    • 0
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  • Consider getting worked up for Hashimoto's Encephalopathy. It's a complication of Hashimoto's thyroiditis which can cause fatigue, memory problems, balance and coordination problems, headaches, speech problems, etc... but every patient is different. Most patients will have normal hormone levels, but it is detected only by positive thyroid ANTIBODIES, which are generally NOT ordered unless your TSH is abnormal. Most doctors have never heard of it, which is unfortunate because it rapidly reverses with a pulse of steroids (but be careful, as steroids can make you low thyroid while you are on them). I felt better after the steroids and being placed on levoxyl to keep my TSH at 0.5.You may have subclinical hypothyroidism explaining the cold intolerance and compression neuropathies.
    Anonymous 42,789 Replies
    • October 12, 2007
    • 11:58 PM
    • 0
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  • You need to find a doctor who will listen...good luck finding one who keeps their ego in check. University Hospital ER rooms are often good places because I have found that they are so overly careful. OU and OSU in Oklahoma have great specialist. I have all the same symptoms and went years being told I had various weird but normal problems. After an ER visit because I felt I was dying, the Doc kept me for several days. During this time he discovered a 38 year old secret...I had lived with Ehlers Danlos my entire life without a diagnosis. There are six types, but in a nutshell, they are all Collagen disorders. This means the body doesnt make collagen properly. This causes tons of problems as 80 percent of the body is collagen. It is very painful, but we look normal, not only normal, but good! But we hurt, those nodes, those are common with Ehlers, we live with these problems, have surgery when we need it, but only when we need it! Look it up. If I'm wrong what will it hurt? People are ignoring the normal test results with all the symptoms. They think the test are wrong, they aren't. The fact is genetic disorders cause problems but require special test. Have you thought of a genetic type of doc? Mention the Ehlers, they will do a family history, some test, and most likely help you find your problem. I doubt you have thyroid disease. I don't. I have symptoms, but its because of the Ehlers. I wish you well and know your pain. Don't give up. Once you learn what is wrong, you will be able to help others. sm
    Anonymous 42,789 Replies Flag this Response
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