Discussions By Condition: Nerve conditions

Pituitary tumor...

Posted In: Nerve conditions 3 Replies
  • Posted By: Anonymous
  • September 18, 2006
  • 10:13 PM

Hi. I'll try to keep this as short as I can. In Oct 2002, I had a pituitary tumor removed via craniotomy. (It wasn't in a position where they could go through the nose) My symptoms were few. Lost all menstruation, elevated prolactin levels. I had gained a lot of weight. Anyway, the pathology reports of this tumor came back inconclusive. They were not able to determine exactly what kind of tumor it was. They said if I was done having children, it wasn't necessary to go on meds to get my period back. Four years later, I still don't have my periods, still overweight. No other symptoms. I am done having children, but worry I may never get back to my normal self. I can go on meds to get my period back, but I've heard the side effects are often unbearable. Nausea, dizziness, and it's ongoing. Is it dangerous for me to continue this way? I mean, is it possible I could develop more problems if I don't have a period for so long? They said it was okay, but I worry.
Thank You,
Susan

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3 Replies:

  • Hello. My name is Yvonne. I have been diagnosed w/prolactinoma since 2002. Now, I have been seeing an endocronologist and not a neurologist. My tumor is not at the size that she is worried that I need surgery. Now, my menstrual is off I skip a month. The specialist is monitoring my estrogen level. I have had an osteo. test. Since you are not getting your cycle, you are not producing estrogen. I would be worried. Are you being monitored? Yvonne
    chapas34 1 Replies
    • October 3, 2006
    • 06:37 PM
    • 0
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  • The old meds like Parlodel had resally unpleassant side effects but there are newer ones now (I take Dostinex) like dostinex that do the same thing with much fewer and milder side effects.
    Anonymous 42,789 Replies
    • February 24, 2007
    • 09:10 AM
    • 0
    Flag this Response
  • Hi. I'll try to keep this as short as I can. In Oct 2002, I had a pituitary tumor removed via craniotomy. (It wasn't in a position where they could go through the nose) My symptoms were few. Lost all menstruation, elevated prolactin levels. I had gained a lot of weight. Anyway, the pathology reports of this tumor came back inconclusive. They were not able to determine exactly what kind of tumor it was. They said if I was done having children, it wasn't necessary to go on meds to get my period back. Four years later, I still don't have my periods, still overweight. No other symptoms. I am done having children, but worry I may never get back to my normal self. I can go on meds to get my period back, but I've heard the side effects are often unbearable. Nausea, dizziness, and it's ongoing. Is it dangerous for me to continue this way? I mean, is it possible I could develop more problems if I don't have a period for so long? They said it was okay, but I worry.Thank You,SusanHiLooked up prolactinoma as I have one (apparently) and found this post. Was on bromocriptine a while ago, came off it when got pregnant for second time and now about to go back on it again now that I have finished breastfeeding baby and periods not returned and still lactating.If you get this message, I wondered if you could update me on what happened to you (all these years on!)Also, am really curious about the surgery in case I ever need it. Was it scary? Did you recover well? Were there any side effects?Thank you for listening if you do get this.
    Anonymous 42,789 Replies Flag this Response
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