Discussions By Condition: I cannot get a diagnosis.

Right hip/buttock and leg pain

Posted In: I cannot get a diagnosis. 30 Replies
  • Posted By: tellybeth
  • May 1, 2007
  • 04:13 AM

Hello! I have been suffering with extreme pain in the right buttock starting at tail bone, into right hip, thigh, shin ankle and foot for 2 years. I have seen every specialist in town and have even gone to a research center to get further testing. The pain is like nerve pain in the thigh and the shin and top of ankle and foot is more of a numbing and duller type pain. I have trouble walking, sitting, laying down and cannot carry my 7 month old without suffering tremendously. I have had MRI and it showed only slight deterioration of L4 disc but, all doctor's state this is not my problem. I also have deteriorating disc at C5-C6 which I am actually getting fusion on soon.
Specialist tells me that he "thinks" I have bursitis caused by piriformis syndrome. Apparently, the spasming piriformis muscle is squeezing my sciatic nerve and is also causing the inflamation around the bursa area in the hip. Dr recommended pt and cortisteroid injections. I have had 4 of these and have now been put on so many medications that I must have a daily pill reminder. I take at least 14 pills a day and am beginning to feel overmedicated with the same amount of pain if not more.
I finally quit therapy after 3 months of 2 time a week visits. I just don't feel that my diagnosis is correct. All treatment has failed and I am very quickly becoming emotionally drained. I have pain ALL DAY EVERY DAY! I feel like I would do anything to relieve my pain and have turned into such an angry bitter person because of it. I am only 30 and want to play with my daughter instead of constantly pushing her off to grandparents and my husband due to the intense pain
Any suggestions, advice would be appreciated.
Thanks

Reply Flag this Discussion

30 Replies:

  • Have you had any laparascopic or female surgeries? I have the same symptoms and mine started after laparoscopy to remove cyst and cauterization of endometriosis adhesions in my pelvic lining. There are nerves in the pelvic area that can cause you to have pain in your tailbone, back, hips, and legs.
    Anonymous 42,789 Replies Flag this Response
  • it's possibly a ruptured disk - see a spine specialist. My ruptured disk made me think i was going to permanently lose the use of my arm and the pain was unbearable... I had epidural steroid shots and don't have pain or numbness - as much anymore.
    BETH27584 31 Replies Flag this Response
  • Thanks for the replies and suggestionsI have had 3 laporoscopic surgeries. 2 were just exporation and one was to remove endometriosis that had attached to my liver! I never thought about that being the cause before. At one time, they thought that maybe some endometriosis had attached to some nerves but, they dismissed it and decided against surgery when I got pregnant. I was actually told that the endometriosis was so bad that I could not have a baby!Beth--I have a bulging/deteriorating disc at C5-C6 and know the pain of that. I sympathize with you on that. I am actually at thepoint with it that my only option is spinal fusion. I too have the numbing and horrible nerve pain in my right arm.I have had MRI on lower back and only found slight deterioration of L4. They are telling me that this is not the cause of my pain.I am so frustrated!
    tellybeth 3 Replies Flag this Response
  • I take at least 14 pills a day and am beginning to feel overmedicated with the same amount of pain if not more. Wow, at the very least please look up ALL the meds you are taking on www.drugs.com - click on drug interactions checker. Please do this to see what sort of interactions you are having from these meds, and consider taking fewer medications, especially since they aren't offering you relief!!! With that said, have you tried acupuncture? Acupuncture is extremely helpful for sciatica, disc herniation and ruptured discs. It is often the only thing that provides relief, and it is often the LAST thing that people will try. Please look into this and visit www.acufinder.com to find a practitioner near you. You need to give this time, there is no quick fix and no magic pill that will make your pain go away. I am very concerned for you - especially with the amount of meds you are taking. This can cause liver toxicity, and add further problems. Please look them all up, or if you'd rather, list them here on this post. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • I am very cautious about the medications and have liver enzymes checked on a regular basis. I have just recently gotten my acetomethaphine dose lowered due to the liver concern. I am taking Celebrex, Lyrica, Soma, Hydrocodone, Amitiza for the constipation, Zyrtec(unrelated), and of course my birth control. I am not taking 14 different meds but take 14 pills daily with the dosage of my medicines. It is a lot considering I am so young. I go back to the specialist at Emory May 22 and hope to get some alternative plan for this. I have received all of the steroid injections allowable in one years time with no relief. Physical therapy has also offered nothing. I have thought of accupuncture and actually visited one while pregnant but, they would not treat me. I am planning to look into this again.Thanks so much for the helpful websites. I will look into my meds on there.
    tellybeth 3 Replies Flag this Response
  • I had the Exact same thing and the doctors could not find anything wrong! It started after I had my second child then 6 years later it disappeared! I have no Idea what it was, if I had know another child would have taken the pain away, I would've did it a lot sooner! Of course I'm not suggesting you have another baby, just thought I would share my experience with you. During the pain I went to physical therapy, used TENS units, took OTC pain meds. needless to say, didin't work.
    GaNurse 23 Replies Flag this Response
  • Apparently, the spasming piriformis muscle is squeezing my sciatic nerve and is also causing the inflamation around the bursa area in the hip. Dr recommended pt and cortisteroid injections. Oh and yes, I had this same diagnosis, and I also had the steriod injections from the pain clinic. I thought I was the only one who experienced this!
    GaNurse 23 Replies Flag this Response
  • Try to find an acupuncturist who is also an NCCAOM certified Chinese herbalist - this will be very helpful for your endo. I have treated several cases of endometriosis with excellent results. The acupuncturist you went to most likely wouldn't treat you for liability concerns - I think this practitioner may not be the best choice for you. Ask them if they are certified in Herbology, as this is extra training they will have needed to take, and they will be better qualified to treat you. I first tried acupuncture for severe sciatica over 10 years ago. Docs gave me muscle relaxants, which I promptly threw up. A friend of mine suggested acupuncture, and I was in so much pain I thought "what do I have to lose"? Well, after just two treatments my pain was GONE. It was such a dramatic difference that it moved me to study this form of medicine and I am now a Doctor of Oriental Medicine. Everyone is different, and more chronic cases take longer to see results like the one I had. But I have seen huge differences in patients pain levels with many different problems. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • Ga Nurse--I know how you feel. It seems that noone I know has heard of my diagnosis and they cannot sympathize with something they know nothing about. I have actually had worse pain since my pregnancy and now, I carry around a 24 pound 7 month old most of the day so that does not help. They diagnosed you with Piriformis Syndrome and Bursitis in hip? My mother-in-law has shoulder bursitis but, when I hurt I am unable to rest my hip/leg like she can her shoulder. I am not trying to take away from the pain she is feeling or anyone with shoulder bursitis. It is just so hard when walking, sitting, laying down and just about anything else hurts so bad ALL the time! Driving is the worse! I can drive just a couple of miles down the road and begin to hurt really bad. I noticed you are from GA I am too!Are you feeling fine now? I am going to look further into the accupuncture thing. It can't hurt to try. I am honestly at the point where if they told me they could remove my leg and my pain would be gone I would not think twice about it. I have read that they can actually do Botox injections into the Piriformis muscle and it will paralyze that muscle for several months to relieve the pain. They can also remove the muscle itself and the bursa. This sounds like a last resort. Did you have constant daily pain? Was it intense pain?I too thought I was alone. I hate that you are suffering too but, it is nice to have someone that understands what I am suffering.
    tellybeth 3 Replies Flag this Response
  • You might want to look up pudendal nerve damage and see if it sounds like what you are having. I never thought that my back pain could be related to my surgery even though it came on immediately afterwards. When I came across this it was exactly my symptoms... My pain started in my tailbone as a stabbing pain and then spread to my hips as a constant burning pain. They also told me I had bursitis. Now it is traveling down my legs and my legs are going numb. If left untreated I have heard that this nerve damage can be permanent. Just an idea!!
    Anonymous 42,789 Replies Flag this Response
  • Yes they do Botox injections to relax the spasm in the piriformis muscle. Injections can also be done with cortisone and other pain relieving meds. The safest way apparently is to do the "guided" injections using fluoroscopy. The injections can be both diagnostic and remedial.You probably should have your gait analysed. If you pronate significantly then that can aggravate the piriformis. You may need orthotics. At the very least try wearing good running shoes for a while and see if it helps.The Nerve Medicine Institute in Santa Monica California does all the above treatments and may be a good starting point. They are not cheap and you may be able to find a specialist locally who could do the same thing.In the interim, try four or five deep tissue massages by a registered masseur and reduce the lifting of the baby as much as you can.
    Anonymous 42,789 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • I too suffer buttock pain and am considering Dr Filler after having done botox, physio etc. I will be interested to hear whether OHIP covers any of the cost as I am going to apply also. You are not alone with the pain. I have suffered for years with it. I finally said enough is enough. At 50 years old there has to be something that can be done. My MRI showed a piriformis muscle 50 per cent bigger on the sore side. I am having osteo treatments to realign a dropped pelvis, however so far I have not seen relief. After many years, it may be somewhat chronic irritation of the sciatic nerve. I will be patient for a few more months of therapy, and until I get a response from Ohip.
    Anonymous 42,789 Replies
    • August 14, 2007
    • 04:40 PM
    • 0
    Flag this Response
  • Saw this exercise in Prevention. Lay on your back on a carpeted floor. Place pillows on either side of your legs. Open knees and try to press the soles of your feet together. Gently. This is called a frog-leg position. Wiggle around until your pelvis is totally against the floor. Stay in this position for a while if you can. It realigns the pelvis slightly. Have you been able to try any yoga? A warm moist pack over the area BEFORE you attempt might help. Have they looked at your SI joint?
    rad-skw 1,605 Replies
    • August 15, 2007
    • 11:42 AM
    • 0
    Flag this Response
  • Yes they do Botox injections to relax the spasm in the piriformis muscle. Injections can also be done with cortisone and other pain relieving meds. The safest way apparently is to do the "guided" injections using fluoroscopy. The injections can be both diagnostic and remedial. You probably should have your gait analysed. If you pronate significantly then that can aggravate the piriformis. You may need orthotics. At the very least try wearing good running shoes for a while and see if it helps. The Nerve Medicine Institute in Santa Monica California does all the above treatments and may be a good starting point. They are not cheap and you may be able to find a specialist locally who could do the same thing. In the interim, try four or five deep tissue massages by a registered masseur and reduce the lifting of the baby as much as you can. Yikes,:eek: why would someone want to put botulism spores in their body? Does this really do anything other than provide temporary relief? IMO, acupuncture not only helps relieve pain, it promotes healing of the tissues and joints. Yes, a deep tissue massage may be helpful, but when the sciatic muscle is involved it rarely gets that deep. This is why I recommend acupuncture over most PT and massage for this problem... it really can get deep into the area of the sciatic nerve. Please just give it a try - most people notice a pretty immediate amount of relief after the first treatment. I just treated a new patient last week who had experienced severe lower back and leg pain/numbness for over 9 months. He had tried EVERYTHING including PT and chiro adjustments, epidural shots, pain meds, and just stopped short of surgery. His pain was a 9/10. He came to see me as a last resort, seeing my sign from the highway. After one treatment he reported a decrease in the pain by nearly 75%...he was so happy! It works, and I just love what I do:) . Best wishesDOM
    acuann 3,080 Replies
    • August 15, 2007
    • 09:26 PM
    • 0
    Flag this Response
  • A gynecologist can also assist in differentiating causes of dyspareunia and pelvic pain in women with suspected piriformis syndrome. A gynecologist can assist in identifying trigger points for local injections in female patients via the vaginal route. In the olden days, the piriformis was massaged rectally. OW!
    rad-skw 1,605 Replies
    • August 16, 2007
    • 09:46 AM
    • 0
    Flag this Response
  • rad-skw I liked that exercise, kind of a stretch and strengthen in one. I will add it to my prescribed routine. My pelvis is out of alignment. It was very bad to start with but is more where it should be now after adjustments . The glute on that side was very weak as the piriformis had taken over (was hypertrophic on that side per the mri results). The botox has relaxed the piriformis so now I am working to strengthen the glut max and medius and the pelvic core muscles. I am making good progress on the muscles but sadly the pain has not diminished. I know it make take time, but wish I could see just a little pain relief in the interim. After many years I can only hope that it is fixable.I know that chronic nerve irritation can be hard to cure. I tried acupuncture but it hasn't had any effect. Thanks
    Anonymous 42,789 Replies
    • August 16, 2007
    • 06:06 PM
    • 0
    Flag this Response
  • Here's another exercise from that same article. Sit on the floor with your legs out in front. Bend right leg and place the right foot on the floor to the left of the left knee (or however far you can get it). Sit up straight on both your sit bones. You can go into a yoga stretch by placing your right outer elbow to the left side of the left knee. Left arm will be on floor balancing you. Slowly turn to the left and look behind you...still sitting up as straight as you can and keeping your pelvis straight. I call this the pretzel. They call it a sitting spinal twist. This will also cure a tension headache for me.
    rad-skw 1,605 Replies
    • August 17, 2007
    • 08:08 AM
    • 0
    Flag this Response
  • If possible, look into something called Somatics. In July of 2007 I had sudden onset pain in my lower back / hip. Active at 46 (at the time), I was only about 20lbs heavier than I should have been and never had any back issues or pain until then. In the next 15 months I had an MRI showing nothing of significance (one small disc bulge that shouldn't have caused the pain), a clean X-Ray, P/T, massage, chiropractic care, an anti-inflammatory shot for periformis (minimal results), more P/T, 3 shots over 9 months into my spine, another MRI showing 2 small disc bulges (everything was getting worse instead of better)... I was still in constant pain ranging from knife like pain don my leg to headache like throbbing in my buttock and hip. Aleve/Motrin seemed to help ease it a bit, but couldn't take it away. Staying active kept it loose and laying down or sitting aggrevated it as things tightened up which aggravated the sciatica. UNable to sleep more than 2 hrs. at a time due to the pain waking me up, I was even considering surgery (despite the MRI showing the bulges shouldn't have been causing that much pain) as I needed to do something... On-line research led me to somatics and I was game to try anything at that point. Basically, its premise is that over time your body, through small injuries, bad posture, tension, etc., 'forgets' how to relax certain muscles fully. Stretching hurt because it was tearing at muscles tying to contract, working them out felt better initially by loosening them but then exacerbated it by creating more tension. That constant tension (even though you feel relaxed) creates problems. Although hard to find a practitioner around my home, I finally found one about an hour's drive from me. One 1 hr. session a week for 5 weeks and I was almost back to normal. The third week I was sleeping through the night! His feeling was that the bulges were because the spinal muscles in constant tension were compacting my spine... Unfortunately after about 2 months of feeling almost normal (I still felt a little tension bending over to put on shoes, etc.) I made the mistake of shoveling 18" of heavy snow (I live just outside Boston MA) and the back tightened up again. Combining that with a 4 hr. drive on Christmas and I am back trying to get rid of the pain, up every two hrs. again... Frustrating, but I now know it can go away an am back for more somatics. Best of luck to all!
    Anonymous 42,789 Replies
    • January 29, 2009
    • 08:39 AM
    • 0
    Flag this Response
  • Hi...I am so glad I decided to research what is happening to me...I have had pain in my right hip, buttock, thigh, shin, right foot, for the past 4 years...I have had MRI's, CT scans, PT, pain meds, Chiropractor, nerve burning, injections, you name it, i've had it....I read about the one person that asked if you had any female surgeries, I have had two laparoscopies to remove cyst, I had a leep procedure done, to remove cancer cells from my cervix, I have had double hernia surgery, gall bladder surgery.....I was told that I have a small bulge at the SI or something like that, slight arthritis, and pinched nerve....but no one can do anything...every one says that is not the problem....I am soooo tired...I sit all day at work at a desk....so you can imagine how I feel....I don't do the things I used to...and the pain causes my blood pressure to go up so high, which is something else I have to worry about....what should I do?
    Anonymous 42,789 Replies Flag this Response
  • I had a car accident last June and have since suffered with my back on and off. Occasionally the pain goes all down my right leg. I have been having physio since July and she said I have a disc problem and gives me accupunture but does not give much relief. Then 2 weeks ago my back went again a few days later my hip, and right leg was very painful then it carried on down my leg causing my right lower leg and foot to go very cold. My GP sent me to Hospital where I spent 1 week. They have now sent me home I am in tremendous pain sometimes in bothe hips but more so my right hip all the way down to my foot with a numbness sensation and like a severe cramping. I am awaiting a MRI Scan, my medication (45mg morphine sr am and pm, oral morphine every 2 - 3 hours, diclafenic and paracetomal ) is making no difference to the pain. I find it hard to sit, stand or lie down for a long period of time. This is ruling my life I have been housebound now for 3 weeks. I have everything going through my mind of what is causing this I am 41.
    Anonymous 42,789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

Safe Sex With Hepatitis C

Prevent the spread of the hepatitis C virus.

Preventing Lung Infections

With COPD, it’s important to protect your lungs.

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement