Discussions By Condition: Medical Stories

Doctors are baffled as to why I have persistant spots and flashes in my vision..

Posted In: Medical Stories 33 Replies
  • Posted By: foreveryoung
  • April 16, 2007
  • 05:37 PM

Hi I am a 26 year old healthy mom of three. 4 years ago I started seeing black flashes in my vision periodically. They were exactly like what happens after someone takes your picture, only they would occur out of nowhere. They would last a few seconds and always cause me to have an anxiety attack. So I went to the eye doctor and they determined my eyes were fine and put me on some anxiety medicine for a year. It happened few and far between so I was able to cope. About 2 years later they started happening more frequently, on a daily basis. Not only did I see the black flashes, but sometimes white cloudy flashes, and at times I have a bad episode that looks like a million flashing veins in one eye. These episodes are terrifying and last about 10 minutes gradually getting better. One second I can see and the next all I see are these veins. Now my eyes are so light sensitive, I have light blue eyes to begin with, that any change in light will usually triger these spots or flashes. Going in the house from the sun outside will cause it. Walking into a dept. store will cause it. Not to mention they still happen randomly when I am watching t.v, reading anything. I see these flashes 100's of times a day and the bad episodes once every couple monthes, thank goodness it's not more frequent. I have been to the eye doctor, the Cleveland Clinic, my family doctor, a neurologist and everyone is clueless. My eyes have been dilated and determined there is no retinal tear or detachment. I have had a CT and MRI and nothing showed up. They can only conclude I have persistant visual aura. So they put me on a beta blocker preventitive migrane medicine and I see no change whatsoever. Is there any other possiblities as to what is going on? Any ideas at all would be greatly appreciated as I am so frustrated the doctors can't seem to help me. I should also say I have recently had my thyroid tested and sugar tested. Both came back okay. The doctor only said the B12 was low, only 206 out of a 200-900 range. I also have periodic tingling sensations in my fingertips and face which the doctor and neurologists can't figure out and only say it's no big deal. Please help if you can as it would be the answer to my prayers. My life has changed so much. I can't work now and can rarely drive because of these flashes . My kids need me to get better as they are all still young. Thank you so much for taking the time to read!:)

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33 Replies:

  • Did you have any brain MRI or CT done? Sounds a lot like a neurological problem.
    Anonymous 42,789 Replies Flag this Response
  • Has an opthamologist ruled out the possibility of floaters?
    Anonymous 42,789 Replies Flag this Response
  • Hi I do have floaters as well from time to time but the flashes of light are completely differant. They are blinding dark spots that occur in the center of my vision. The only way to make them go away is to close my eyes for a few minutes. If any of you have ever seen the image of the flash in your eye after someone takes your photo that is the same thing that happens to me for no apparent reason. My eyes are sore and tired from squinting a lot and always fighting these flashes. I wear glasses and sunglasses to help with the sensitivity to light. Also yes I did have a CT scan and MRI and both appeared fine. The doctors are clueless and don't know what else to do or what to be looking for. What nueroligical problems could be possible? Is there any cure for persistant visual aura if that is what I have? Those are my main concerns. Thank you for responding!
    foreveryoung 6 Replies Flag this Response
  • hey all of those things sound like it could be coming from the lack of b12 or folic acid, you might want to try taking a folic acid vitamin for a month or so and see how that works.
    Anonymous 42,789 Replies Flag this Response
  • Thank you so much! I will give it a try. I bought a 500 mcg B12 vitamin today and a 400 mcg of Folic Acid. I hope that helps and that there is no permanet nerve damage. After researching B12 deficiencies it sounds like that very well is what is going on. Has this ever happened to anyone else on here?
    foreveryoung 6 Replies Flag this Response
  • Actually there is an entire topic about B-12 deficencies and the medical profession's general ignorance in regards to it:http://forums.wrongdiagnosis.com/showthread.php?t=9948
    Anonymous 42,789 Replies Flag this Response
  • Hi, one thing you may want to look into is an "eye migraine." These are not terribly common, but your symptoms seem to be spot on for it. If you are predisposed to them, stress may bring it on, and, after a few days of the same experience the anxiety over having another episode may repeat the pattern. To rid yourself of them - pay attention to how you are feeling right from the moment you awaken. Be gentle and forgiving of yourself. When the eye migraine begins, go into a cool room where you can breathe deeply. Remind yourself that it will go away. If someone isn't available to give you a back massage, purchase an inexpensive chair-top rolling back massager - and use it when you first notice the symptoms. I did have this problem. It would begin at night where I would see flashes of light - spinning as if the light were a fan. It was disorienting. It did go on to happen in the day too. You have nothing to lose by changing your cleaning products (absorbing nothing harmful through the skin) and avoiding high-fructose corn syrup - which for some people can just throw their metabolism and liver functions off. If the liver isn't healthy, the rest of the body suffers too. Stay in for a few days while adjusting to sitting for a chair massage at least once an hour to keep the shoulder, neck and back muscles loose, keep cool temps in the house --which for me seemed to be right about 66-67 degrees F. Sounds too chilly maybe, but...this is just what worked for me.
    Anonymous 42,789 Replies Flag this Response
  • Thank you. It was very kind of you to take the time to give me so many suggestions. I will def. give it all a try, can't hurt!!!! Thank you!
    Anonymous 42,789 Replies Flag this Response
  • OMG! I'm a 26 year old female, 5'2", 125 lbs. I can't believe I found someone with a similar problem! I have infrequent classic migraines (migraines with aura), but they are so bad that I think I am having a stroke (tingling down left side, can't see, difficulty speaking/hearing/seeing). Anyway, After the alst attack about 2 years ago, I have seen "spots" like the ones you describe. The only way I describe them to doctors is as if I were outside and caught a light glaring off of chrome--except I am inside and usually doing nothing unusual! So I've seen many specialists, including neurologists and opthalmologists and even an opthoneurologist and rheumatologist. After getting a bunch of bloodwork and CTs and MRIs, the only things found were very high ANA and now just diagnosed with hypothyroidism, but was told that that wouldn't have anything to do with the "spots", and an elevated liver function test...but that was taken about a year ago before I had my gall bladder out for stones, so thinking that might have affected that count. Also, I got copies of my blood work results, and no one mentioned that I had an elevated AntiSmooth Muscle Antibody count...but I guess it has nothing to do with this or they would have mentioned it. Anyway, I see a Retinal Specialist every 6 months..the only thing they have determined is that I have damaged optic nerves, but nothing has changed with that in the past 2+ years, and relating that to a genetic predisposition to glaucoma..which also wouldn't cause these type of spots that go away within 10 minutes. Some days I see more spots, and do seem related to menstrual cycle (the spots are worse the week before). I still am thinking pituitary gland issue, even though not showing on MRI, but it's such a small gland... So, my diagnosis for now: retinal or eye migraines, clasic migraines, and probable MS !!! This is something that the neurologist went and diagnosed me with...but with no other symptoms and nothing on MRI...so I don't like to even think about that one yet. But long story short, these spots have stayed about the same for 2 years, so I do not know what is going on, and if anyone has any advice, please let me know!
    Anonymous 42,789 Replies Flag this Response
  • Wow! Did you ever find out for sure what was wrong with you? The doctors still see nothing wrong with my eyes. I just had a mini stroke two weeks ago so now the docotrs are taking this more seriously. Now we are looking into Lupus and MS. Let me know how things are going for you!!!
    foreveryoung 6 Replies
    • November 7, 2007
    • 08:37 PM
    • 0
    Flag this Response
  • Hi I am a 26 year old healthy mom of three. 4 years ago I started seeing black flashes in my vision periodically. They were exactly like what happens after someone takes your picture, only they would occur out of nowhere. They would last a few seconds and always cause me to have an anxiety attack. So I went to the eye doctor and they determined my eyes were fine and put me on some anxiety medicine for a year. It happened few and far between so I was able to cope. About 2 years later they started happening more frequently, on a daily basis. Not only did I see the black flashes, but sometimes white cloudy flashes, and at times I have a bad episode that looks like a million flashing veins in one eye. These episodes are terrifying and last about 10 minutes gradually getting better. One second I can see and the next all I see are these veins. Now my eyes are so light sensitive, I have light blue eyes to begin with, that any change in light will usually triger these spots or flashes. Going in the house from the sun outside will cause it. Walking into a dept. store will cause it. Not to mention they still happen randomly when I am watching t.v, reading anything. I see these flashes 100's of times a day and the bad episodes once every couple monthes, thank goodness it's not more frequent. I have been to the eye doctor, the Cleveland Clinic, my family doctor, a neurologist and everyone is clueless. My eyes have been dilated and determined there is no retinal tear or detachment. I have had a CT and MRI and nothing showed up. They can only conclude I have persistant visual aura. So they put me on a beta blocker preventitive migrane medicine and I see no change whatsoever. Is there any other possiblities as to what is going on? Any ideas at all would be greatly appreciated as I am so frustrated the doctors can't seem to help me. I should also say I have recently had my thyroid tested and sugar tested. Both came back okay. The doctor only said the B12 was low, only 206 out of a 200-900 range. I also have periodic tingling sensations in my fingertips and face which the doctor and neurologists can't figure out and only say it's no big deal. Please help if you can as it would be the answer to my prayers. My life has changed so much. I can't work now and can rarely drive because of these flashes . My kids need me to get better as they are all still young. Thank you so much for taking the time to read!:) I am glad they didn't find anything that look seriously out of place.My best bet: Radiation, radiation, radiation.You might react to radiation. Sun radiation, fluorescent radiation, ionizing and non ionizing radiation.I recently discover that fluorescent lights actually flicker in ways that most people can't detect, but they can disturb brain function in most of us.Consider using NAET or Bioset to test and treat this condition. It is the best! You can do it whie you follow your conventional treatment- no conflict.I am researching on MS right now...and positive ionizing radiation is deeply involved with the neurological functions of MS patients.naet.comSincerely,Fruity.ps: Right now I am researching on the effects of radiation. You gotta look outside the box w/o doing anything harmful, of course.ps:I was very allergic/intolerant to radiation. I had eye migraines all the time and advanced miopia.
    Eatafruit78 960 Replies
    • November 7, 2007
    • 08:45 PM
    • 0
    Flag this Response
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  • I am glad they didn't find anything that look seriously out of place.My best bet: Radiation, radiation, radiation.You might react to radiation. Sun radiation, fluorescent radiation, ionizing and non ionizing radiation.I recently discover that fluorescent lights actually flicker in ways that most people can't detect, but they can disturb brain function in most of us.Consider using NAET or Bioset to test and treat this condition. It is the best! You can do it whie you follow your conventional treatment- no conflict.I am researching on MS right now...and positive ionizing radiation is deeply involved with the neurological functions of MS patients.naet.comSincerely,Fruity.ps: Right now I am researching on the effects of radiation. You gotta look outside the box w/o doing anything harmful, of course.ps:I was very allergic/intolerant to radiation. I had eye migraines all the time and advanced miopia.You could be right. In fact, I have the exact same problem of seeing flashes for the past 2 years. Strangely, I first got it after going back to my home country in Malaysia from Australia during my university summer vacation. I went to a doctor because I was afraid of retinal detachment but he found there was nothing wrong with my eyes (with the exception of myopia and astigmatism). When school started, I went back to Australia and was surprised that I do not see flashes there. This year, I went for another check up with a different doctor; again, the results showed negative. The doctor only speculated a possibility that my eye nerves are more sensitive than an average person. He prescribed no medication for me.Recently, I realised that the root of the problem could be due to fluorescent lamps. I often see flashes in a room lit with...you know, those long fluorescent lights. Not only I see flashes, my eyes also feel strained whenever I work too long on my notebook in a fluorescent lit room. After 2 years, it seemed as though I've gotten used to it though it worries me sometimes that it'll be difficult to distinguish between over-sensitivity and an actual tear. All I can do is to ensure I get my eyes checked once or twice a year.p.s. An even stranger thing is; in certain fluorescent lit places, I do not see flashes at all. It is quite rare and I still haven't figure out the reason behind. Sigh.
    Anonymous 42,789 Replies
    • November 20, 2007
    • 08:38 AM
    • 0
    Flag this Response
  • oh, that's easy- there are no standards for fluorescent lights...the frequency and wave length of the lights vary from brand to brand.That flickering deeply affect the nervous system of many. You should check with a doctor of Oriental Medicine or NAET professional, so you can reverse that problem permanently if NAET is available in your area.Check research papers on Ergonomics...they are real research on radiation of lights and the nervous system.Best.Frui.
    Eatafruit78 960 Replies
    • November 21, 2007
    • 03:00 AM
    • 0
    Flag this Response
  • Hi, Ive been reading your long struggle with this problem. Iam new on here and havnt yet posted anything on myself. But I just wanted to tell you that when all my medical problems started a little over 4yrs ago, the flashes of light, floaters, blackish/grey spots, eye twitches were my first symtoms.I was cooking dinner one night, I had bent down to pick something up and when I stood up everything just got very dark.I just shook it off as to standing up to fast,but the next morning I started seeing all these little flashes of light, it was a constant thing, I seen them even when I closed my eyes.I was also having muscle spasms in my left eye, this to became constant. Then the headaches started and never went away.So I started my long journey on finding out what was wrong with me, in the mean time my whole body seem to be falling apart. I was sent for several MRIs,all showing signs of possible MS. My eye sight was getting worse by the day and all the attention seemed to go to my now neck and back problems. I was sent for every test/procedure they could think of but the one I really needed- which was a Lumbar Puncture. 24 doctors later, 3 hospital stays, and 5 lifetimes full of debt, I was finally diagnosed! I have Idiopathic Intercranial Hypertension, also called Pseudotumor Cerebri. It is truly a horrible nasty thing to have and you can go blind if it goes untreated. I live my days in constant pain even now, and I have had several surgeries now including a VP shunt, which Ive had constant problems with.This Fri. Im seeing a new N-sur. who will be redoing my shunt. Threw all of my problems my eyes were ignored for to long,now I can no longer drive.or work.or really do anything. Iam on high dosages of meds. that keep me sick to my stomach.I have someone drive me weekly to my neuro-opthamologist,which round trip is 247miles. Its alot to bare, but so much of what you said was so familiar to me. Maybe some of this can help you. I do hope you find out whats really going on,and that everthing will be ok for you. Best wishes, Tina
    Tina G. 2 Replies
    • November 26, 2007
    • 10:33 PM
    • 0
    Flag this Response
  • Hi, Ive been reading your long struggle with this problem. Iam new on here and havnt yet posted anything on myself. But I just wanted to tell you that when all my medical problems started a little over 4yrs ago, the flashes of light, floaters, blackish/grey spots, eye twitches were my first symtoms.I was cooking dinner one night, I had bent down to pick something up and when I stood up everything just got very dark.I just shook it off as to standing up to fast,but the next morning I started seeing all these little flashes of light, it was a constant thing, I seen them even when I closed my eyes.I was also having muscle spasms in my left eye, this to became constant. Then the headaches started and never went away.So I started my long journey on finding out what was wrong with me, in the mean time my whole body seem to be falling apart. I was sent for several MRIs,all showing signs of possible MS. My eye sight was getting worse by the day and all the attention seemed to go to my now neck and back problems. I was sent for every test/procedure they could think of but the one I really needed- which was a Lumbar Puncture. 24 doctors later, 3 hospital stays, and 5 lifetimes full of debt, I was finally diagnosed! I have Idiopathic Intercranial Hypertension, also called Pseudotumor Cerebri. It is truly a horrible nasty thing to have and you can go blind if it goes untreated. I live my days in constant pain even now, and I have had several surgeries now including a VP shunt, which Ive had constant problems with.This Fri. Im seeing a new N-sur. who will be redoing my shunt. Threw all of my problems my eyes were ignored for to long,now I can no longer drive.or work.or really do anything. Iam on high dosages of meds. that keep me sick to my stomach.I have someone drive me weekly to my neuro-opthamologist,which round trip is 247miles. Its alot to bare, but so much of what you said was so familiar to me. Maybe some of this can help you. I do hope you find out whats really going on,and that everthing will be ok for you. Best wishes, Tina
    Tina G. 2 Replies
    • November 26, 2007
    • 10:34 PM
    • 0
    Flag this Response
  • Hi I am a 26 year old healthy mom of three. 4 years ago I started seeing black flashes in my vision periodically. They were exactly like what happens after someone takes your picture, only they would occur out of nowhere. They would last a few seconds and always cause me to have an anxiety attack. So I went to the eye doctor and they determined my eyes were fine and put me on some anxiety medicine for a year. It happened few and far between so I was able to cope. About 2 years later they started happening more frequently, on a daily basis. Not only did I see the black flashes, but sometimes white cloudy flashes, and at times I have a bad episode that looks like a million flashing veins in one eye. These episodes are terrifying and last about 10 minutes gradually getting better. One second I can see and the next all I see are these veins. Now my eyes are so light sensitive, I have light blue eyes to begin with, that any change in light will usually triger these spots or flashes. Going in the house from the sun outside will cause it. Walking into a dept. store will cause it. Not to mention they still happen randomly when I am watching t.v, reading anything. I see these flashes 100's of times a day and the bad episodes once every couple monthes, thank goodness it's not more frequent. I have been to the eye doctor, the Cleveland Clinic, my family doctor, a neurologist and everyone is clueless. My eyes have been dilated and determined there is no retinal tear or detachment. I have had a CT and MRI and nothing showed up. They can only conclude I have persistant visual aura. So they put me on a beta blocker preventitive migrane medicine and I see no change whatsoever. Is there any other possiblities as to what is going on? Any ideas at all would be greatly appreciated as I am so frustrated the doctors can't seem to help me. I should also say I have recently had my thyroid tested and sugar tested. Both came back okay. The doctor only said the B12 was low, only 206 out of a 200-900 range. I also have periodic tingling sensations in my fingertips and face which the doctor and neurologists can't figure out and only say it's no big deal. Please help if you can as it would be the answer to my prayers. My life has changed so much. I can't work now and can rarely drive because of these flashes . My kids need me to get better as they are all still young. Thank you so much for taking the time to read!:) omg that happens to me too! like you cant see for about 20 seconds when you go inside from being outside or vice versa. and you see all these little different colored blotchesand then it just dissappearsim a 15 year old, and i thought it seemed kind of scary for this to be happening at such as young age
    Anonymous 42,789 Replies
    • December 19, 2007
    • 02:20 AM
    • 0
    Flag this Response
  • Visual disturbances always scare the swear word out of me. They're pretty petrifying. When you read, do spots sometimes block part of the word, like blind spots? Floaters especially bother me in the morning. For most people, migraines occur mostly in the morning, but lately they've moved to the afternoon for me. But since I always freak out at a migraine or ordinary floaters , it usually makes the distortions go on for some more time then it usually would.I know it's really hard, and I'm being so hypocritical here, but try to stop panicking and maybe take deep breaths. Keep calm.Don't take excessive medication which causes rebound cycles- not good.Do you get headaches; nausea, or anything other like that? After any bad episode of floaters I get slight headaches but they go if I'm calm and I stay quiet. Also, drinking a lot can't hurt . Some problems are also caused by lack of certain vitamins/ minerals. Diet might be playing a large part in this?I'm sorry you're experiencing these problems and I hope they end soon because they pretty much ruined my life for the last year lol (i'm not very brave haha).
    Anonymous 42,789 Replies
    • December 25, 2007
    • 06:21 PM
    • 0
    Flag this Response
  • http://www.netwellness.org/question.cfm/41582.htm Retinal problems such as scars or broken blood vessels can usually be seen by the eye doctor, but can be very deep in the tissues and therefore may require more advanced diagnostic procedures to detect (for example, fluorescein angiogram or optical coherence tomography). Vascular events (sometimes called transient ischemic attacks) can be brief blockages of blood vessels, followed by reopening of these vessels. In that case, the affect on the vision would be short. If a person has such an event, then a physician should examine the patient's vascular system http://www.netdoctor.co.uk/ate/eyes/202321.html
    Monsterlove 2,921 Replies
    • December 26, 2007
    • 00:52 AM
    • 0
    Flag this Response
  • I came across a website which lists natural ways to deal with eye problems. You may want to give it a try. http://www.visionworksusa.com/floaters.htm
    Someguy 15 Replies
    • December 26, 2007
    • 07:34 PM
    • 0
    Flag this Response
  • Hi Foreveryoung, My bet would go with the b12. I was deficient for decades. I had all sorts of weird phenom as you described. The veins flashed in sync with my pulse. Most all of this stuff went away, including the abnormal sensitivity, within a few days when I started sublingual methylb12 (Jarrow or Enzymatic Therpy). Also zinc, b-complex, A&D, E, C, magnesium, omega3 fish oils are all necessary cofactors for maximum healing.
    Freddd 3,576 Replies
    • December 28, 2007
    • 09:59 PM
    • 0
    Flag this Response
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