Discussions By Condition: I cannot get a diagnosis.

Desperate for Answers for Daughter's Symptoms

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: Anonymous
  • April 5, 2007
  • 03:34 AM

My daughter has been suffering for a couple of months with a numb, but painful, drooping right side of her face, also, right leg is very heavy. Sometimes she can't feel it and has to drag it. Her right arm is also heavy, and sometimes she can't use it. It goes numb and tingles. She has many other symptoms such as headaches that lasts days, both eyes went blind for a few seconds. She has involuntary jerks of her shoulders, arms, fingers, legs, feet toes. Other symptoms that are just too numerous to list. She has had an MRA, MRI of cerv. spine, and brain and EEG. All have come back normal. If anyone has any ideas, please let me know. She has burning and electrical shock sensations, pins and needles. Drs. say it is stress. We can't believe that because of other times during extreme stress, this has never happened. Especially since most of the numbness is on the right side. Memory loss, confusion and lost 20 lbs. Thanks so much for your help.

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17 Replies:

  • Conventional medicine isn't always the best at diagnosing such conditions...I'm sorry for your daughters illness. If you can find a lyme literate Dr. have her tested for lyme disease first. It has to be a specific and very specialized test...IGeneX Labs is where mine was sent. You can even order it from them yourself, but a Dr. has to OK the test. And begin educating yourself about lyme disease. Google "Borreliosis "It mimics over 300 other diseases, and isn't easily diagnosed. Can be transmitted by other means, besides deer tick. Only 50% or less of suffers have characteristic bulls eye rash. Onset often appears as an extreme flu that doesn't go away.Also, have her do the test for neurotoxins, found on www.neurotoxins.com Dr. Schaffer has recommendations on the site.Best of luck to youDiane in MI
    Anonymous 42,789 Replies Flag this Response
  • Sounds like something neurological to me--not stress. Has she talked to a chiropractor? Also she might request an appointment with a spine clinic/doc. It sounds like she has a vertebre out of place that could be putting pressure on the nerves. The other things to check are her blood sugar levels and request a head CT to rule out stroke (she could be having TIAs or mini strokes). Do this asap and consider calling an ambulance for her next spell. If it is a stroke or TIA then they can help with the diagnosis and getting treatment that could save her life.
    emsbabydoll 73 Replies Flag this Response
  • http://forums.wrongdiagnosis.com/showthread.php?t=7286
    Eatafruit78 960 Replies Flag this Response
  • I am very sorry about your daughter's condition. We get stories like yours here everyday.Best thing I can think of is for you to visit the best Doctor of Oriental Medicine that you can find in your area. Look into NAET and perhaps Reiki as well. (naet.com)I was sick and crippled in bed for months. Doctors were not able to help me- they had no clue. They wanted to say that I was "sad", that's why I had stabbing pains, tingling, numbness, rapid heart rate etc,etc,etc. At the emergency room and other clinics I visited I was given 5 different misdiagnosis. including Hepatitis- well my liver wanted to burst, but I tested negative for all types of Hepatitis.I read the book "Never Be Sick Again" by Raymond Francis, and that was my first step towards recovery. I followed as much as I could from the book- changed my whole diet and my mind opened to alternative medicine.Once under the care of my Doctor of Oriental Medicine we discovered what was making me sick. I had a strep infection running freely in my body, I had been exposed to toxic mold, and somehow I developed many intolerances to harmless substances including my laundry detergent, my bed, my pajama, my homework material, etc.So what particularly was affecting me is not relevant, as something else can be making her sick and giving her similat and various symptoms.Whatever you do, avoid giving her sedatives, or sleeping pills as that can be fatal given the fact that they don't know what is not wrong with her.Usually- people ignore my advice- but just so you know, I am the only person here that was crippled sick and recovered in the last 4 months. I actually reversed my condition 80% and counting without the use of drugs.Take Care,Best.Maribel.
    Eatafruit78 960 Replies Flag this Response
  • Wow Maribel, that sounds like quite an ordeal. How did the Doctor of Oriental Meidcine pin it to strep? Did you have a strep test with a standard doctor?About the topic creator's problem though- I'd get your daughter a head CT immediately, and get a neurologist. The symptoms sound NOTHING like stress.
    Anonymous 42,789 Replies Flag this Response
  • you describe your daughters symptoms as occuring on the rght side of the body, which idicates a neurological problem in the left hemisphere of her brain. an MRI or a CT scan could show the underlying cause (f.ex an anneurism, necrosis), if those come back clean do a lumbar puncture to see if th cause may be an infection
    Anonymous 42,789 Replies Flag this Response
  • Wow Maribel, that sounds like quite an ordeal. How did the Doctor of Oriental Meidcine pin it to strep? Did you have a strep test with a standard doctor?About the topic creator's problem though- I'd get your daughter a head CT immediately, and get a neurologist. The symptoms sound NOTHING like stress.My allopathic doctor ran a full health panel and urine tests. She found nothing but protein in my urine, and blood in my urine (but she thought it was my period). She tough I did not have a urinary track infection because I had no burning, itching or fever. The health panel showed high liver enzymes. I felt fever but it did not register. I felt pain in my joins, but they did not have tools to measure my Misery at the ER.I had tonsil stones. No pain but throat spasms. I could not speak my mother tongue. I could not even pronounce my own name. I had a bad lump in my throat. That was all "mental" according to the doctors. I had several classmates with strep throat going to class sick- so it popped in my mind while at my DOM's office. I was constantly sick with strep throat during my first 3 years of life. She asked me about symptoms. Then she tested me with Jaffe Mellor Technique. And it came positive. Next thing, she tested me with NAET for strep- it was positive. So she gave me a NAET treatment on the spot and a prescription. My DOM is also a Head R.N. in a University Hospital- so she knows very well the ***l they put me thru at the Hospital, the test they ran, and the lack of training to deal with patients like me and the Original Poster here.
    Eatafruit78 960 Replies Flag this Response
  • you describe your daughters symptoms as occuring on the rght side of the body, which idicates a neurological problem in the left hemisphere of her brain. an MRI or a CT scan could show the underlying cause (f.ex an anneurism, necrosis), if those come back clean do a lumbar puncture to see if th cause may be an infectionLumbar puncture or spinal tab can make people blind- and it is not going to save her life. Unless if the patient's fever is frying the brain to a coma- you may not want to use a spinal tab. I have had 2 of those and they are not memorable.
    Eatafruit78 960 Replies Flag this Response
  • To the original poster:How old is your daughter? Is she currently on any medications? Did she stop taking any meds in the past few months? Is she taking birth control? DOM
    acuann 3,080 Replies Flag this Response
  • I agree- DON'T just opt for a lumbar puncture unless a life-threating condition is suspected. Get a CT and MRI first to see if it's even necessairy for a spinal tap.
    Anonymous 42,789 Replies Flag this Response
  • Hi again Maribel, Sounds like the normal doctors had no clue what to do with you. What kind of tests did the JMT specialist do? What about the DOM? I'm having some odd symptoms that sound a bit like yours and might want to look into this.
    Anonymous 42,789 Replies Flag this Response
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  • Hi again Maribel, Sounds like the normal doctors had no clue what to do with you. What kind of tests did the JMT specialist do? What about the DOM? I'm having some odd symptoms that sound a bit like yours and might want to look into this.My point is to let people know that there is not such thing as "unrelated symptoms" or " mental disease"- all symptoms mean something and when people have symptoms they need to be investigated not suppresed, with drugs.Every person manifests different to different conditions- in other words, it will be very unlikely that my personal findings shed any light on what's bothering you. We might share a pattern but not the same triggers.What I can recommend you is the way in which I found out what was making me sick: JMT (muscles tests and questioning your subconscious/yes-no answers) and NAET (muscle test with viles).Of course chances are that more than one thing is making you sick- and you have to keep your eyes and your mind open to observe yourself before, after, and during the time that you start feeling sick.However, depending on how complex your condition is- one has to be prepare to evaluate the progress. The practitioner does not act like he/she knows everything that is or is not bothering you. He/she won't drop assumptions or promises. You alone will be telling him/her what the treatment did for you, physically and emotionally.These conditions will eventually materialise in the form of something that a regular doctor thinks he knows all about. So it is best to treat it before it turns into something tanglible on the blood, x-ray, ultrasound, etc, etc. Our lives are always trial and error: in the last 100 years we have created more poisons than in the past 50 thousand years. No wonder why we start to degenerate. Our bodies were not designed to take vaccines, antibiotics, msg, formaldehyde, parabeens, modified food, processed food,pesticide, etc. Also the comsumption of massive amount of grains is questionable.I recommend everyone to go to the JMT webpage and Naet- maybe it can help you, like it helped me.Best
    Eatafruit78 960 Replies Flag this Response
  • Has multiple sclerosis been ruled out? There are varying degrees of it and many treatments available. Look up the Boulderstone technique. I hope she'll be ok. Or could it simply be a trapped nerve?
    Anonymous 42,789 Replies Flag this Response
  • Look into Lyme Disease and it's co-infections Not just the initial infection but the advanced stage of "Lyme" I have Been afflicted with tick born diseases for last 2 years even though my symptoms are totally different I have read a lot about Lyme and co-infections and I have came across the symptoms you are mentioning a lot. I do know one girl that had her symptoms they actually showed up while she was on antibiotic for a skin infection and it kicked in the "Lyme" that she had for 10 years. Oh! I did not mean to confuse you but ticks give a lot of different infections that why my symptoms are different.Find someone that is Lyme literate and has treated a lot of cases since we know so little about those infections. It is very hard for a Doctor to diagnose it since it mimics so many illness. It took me 5 doctors and a year and a half to get to the bottom of it and I am on the lucky one most people go on for years. If you do suspect "Lyme" Learn all you can about it because you may need to become your own advocate. Hope this help,Sylviane
    Anonymous 42,789 Replies Flag this Response
  • www.ahummingbirdsguide.com sx too numerous to list? they are all there see how many she has...if most, print out article, take to Dr...get some answers...mommy cat
    mommy cat 1,654 Replies Flag this Response
  • What side of her face is the drooping on? When I first looked at it I thought possibly Bell's Palsy but then I was thinking it almost sounds like a CVA or "brain attack" (aka a stroke). It's not really common in those that are younger but it could certainly happen and the s/s sound very similiar of a CVA. Best of luck finding out what the cause is!
    R0xyg4l 22 Replies Flag this Response
  • facial drooping is a stroke like symptom. it is one of many symptoms of ME please visis www.ahummingbirdsguide.com if you haven't already. it is autoimuune, neurological and caused by a virus...please look...mommy cat
    mommy cat 1,654 Replies Flag this Response
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