Discussions By Condition: I cannot get a diagnosis.

Do I have a sleeping disorder?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • February 28, 2007
  • 01:59 AM

Hi, I'm fifteen years old and have been having these symptoms for years.

My hallucinations started when I was twelve. I looked up some research, and I'm pretty sure they are hypnopompic hallucinations, since I have them when I'm waking up. I'm fully conscious, I can move. I've jumped out of the bed, pointed at the hallucinations, hid under my covers, said what they were, screamed; when I finally realize I'm hallucinating I can't see it anymore. I've had people witness me hallucinating before. I don't remember ever hallucinating with the room lit, or tv on. My most recent hallucination was two weeks ago.

Since mid-last year I've experienced what I think is sleep paralysis. But instead of waking up, it happens in the dreams. I'm having a nightmare, everything vivid, especially sound. The sound is extremely painful, either bad music, or someone screaming. I want to wake from it, so I try to throw my leg over, or reach my arm over, but it won't work. I try to open my eyes to wake up, but it won't work. It's like my limbs are attached to the bed, they barely budge. Then suddenly I snap out of it. A few times it had happen while I was falling asleep, rather then waking up. Those times I wasn't dreaming, instead I hear stuff around me, like the tv, or people talking, and I'm trying to wake up because I have fallen asleep on the couch. I try opening my eyes and lifting my head, but I can't. This isn’t as frequent as my other symptoms.

I've always had a hard time falling asleep before twelve, often falling asleep at one, sometimes two. I don't feel tired in the morning, and in the mornings I have a cup of coffee. At school, most of the time I'm fine, not tired, but when coming home I get extremely tired. I've started to fall asleep on the couch in the afternoon after school, and after waking up I feel alright. Later around 5ish-7ish I feel the urge to take another nap. Even when I get a good night's sleep for a some weeks I still feel the urge to go to sleep around these exact times. I can resist them, but its hard. If I've gotten bad sleep the night before, I may doze off for ten seconds, but wake myself up because I realize I have to stay awake. I often miss my favorite tv shows that are on around 7ish, because I fall asleep during them. It becomes a big problem when I baby-sit. I don't fall asleep, but the urge is so strong.

Today for the first time, I was in school and we had a math test. I felt completely fine, but then I started getting extremely tired. While everyone was going onto the next page, I was only on number five. That's not normal for me, I have an A in that class, and knew I knew the stuff we were learning. It was unexpectant. I just couldn't concentrate, and tried so hard to speed up. I have ADHD, and I know what its like not being able to concentrate, (I'm not on medicine for it anymore, haven't been for years), but this was different then attention defficet. I felt like I was falling asleep, and had to stay after school to finish my test. I appologized to my teacher after I finished and told her I tried, I just couldn't concentrate probally because I don't get enough sleep. She understood. This is the first time this has happened.

I know I have parasomia. I sleep walk, and sleep talk. I also have sleep terrors and will scream at night. I think it may have started when I was eight years old. A lot of people have witnessed me doing this. So much that I have to warn new people I camp with or have sleepovers with of my sleeping problems. I think it's unrelated to the symptoms I've mentioned, but I figured I might as well list everything.

Do I have a sleeping disorder? Please, I’d really like to know if its called something.

Reply Flag this Discussion

6 Replies:

  • This is the original poster speakingI haven't asked for advice from an actual doctor yet. My parents told me I have to wait till my next schedualed appointment, so I'm just wondering beforehand.
    Anonymous 42,789 Replies
    • February 28, 2007
    • 00:01 PM
    • 0
    Flag this Response
  • Read my thread under Lindsayx12: slept my 30's away. After nine years, the last six months totally bed ridden, I finally got the right diagnosis. My sleeping disorder had many of the same symptoms when I was younger. At 42, I have lost everything and had aquired several other conditions that have been making my life very difficult. Like you, I really want to be part of everything going on around me. You need a neurologist with a sleep medicine specialty. If you are overweight or have breathing problems, you can also go to a sleep doctor who deals with sleep apnea. You can read my thread and email me at l.mills2007@gmail.com. I will help you find doctors in your area that can help you. I developed many other illness due to my lack of restorative sleep. If you do not want to contact me, please make an appointment with a sleep specialist and a psychiatrist. Psychiatrists can also find if something else is causing your condition. Google, 'Brain Chemistry", and when you find the site that explains how the brain and neurotransmitters function (it uses a baseball game analogy) it will be clear how complicated this condition can be. I also am going to a psychologist to help me deal with problems that have developed in my life from family, etc. not understanding what it is like to not be able to stay awake. "you look fine to me" and "I get tired too" are things I hear from family, and it doesn't help. Please email me so I can at least find good doctors in your area for you. P.S. The idiot who wrote that you are '*****d' is speaking about him/her self. They just left out the work 'up'. It is nice to know such losers exist; someday you may need someone to clean the dog ***t off of your shoe and chances are that kind of ignorance is a prerequesite for the job!
    Lindsayx12 29 Replies
    • February 28, 2007
    • 02:46 PM
    • 0
    Flag this Response
  • Have your parents read my thread, email me with your phone number and I will call them. Don't wait!!!! I did everything my parents and doctor said to do and everyone missed the real problem! YOU have to be the advocate for your health care! For years I was the polite patient and look where it got me. The second you walk out of most doctors doors, they are on to the next patient. They are maybe going home, eating dinner, enjoying their evening (as they well deserve), but you are going home back to not being able to function, enjoy tv shows, studying and remembering things for tests is more difficult, etc.I called, begged, did everything I could to get better. My situation had become life-or-death. I want to do so many things. Please follow-up with me. I have found that there is very little understanding about sleep disorders(unless you've experienced it, it would be hard to really understand). P.S. I think I stepped in dog ***t----know anyone I could call? hee,hee
    Lindsayx12 29 Replies
    • February 28, 2007
    • 02:59 PM
    • 0
    Flag this Response
  • I just went to a neurologist and found that my sleeping disorder, diagnosed as narcolepsy and idiopathic hypersomnia by three other doctors, had to do with my neurotransmitters over firing 'fight or flight' neurotransmitters. It eventually exhausted me to the point of losing my entire life at 42. You do sound like you have a sleeping disorder but it is important to find the base cause,not just have the symptoms treated. I went to a neurologist that is a sleep specialist. He got it right away (and I have been everywhere looking for help). I fire too many fight or flight signals in my brain. I wasn't depressed, I was too anxious-in a contant state of panic without knowing it. I left you my email address previously. feel free to contact me. I hope your family understands. When you can't stay awake, there is no working through it. Mine didn't understand and it is hurtful and can make things worse. Hang in there!
    Lindsayx12 29 Replies Flag this Response
  • Hi 15 year old,What is the reason your parents want you to wait to see the doctor? Is that appointment coming up in the next couple weeks, and that is why? Or is there a money problem? I don't understand why they are asking you to wait.Do your parents have any problem with you calling the doctor's office, and speaking to a nurse there, to tell them your symptoms, and seeing what they say to do?Besides the terrible annoyance of falling asleep in class, and having bizarre dreams that hold you still, and various scary stuff, is there a particular aspect of this strangeness that makes you worry most about your health?Shulaps. Apologies in advance, I am being stalked by a nasty, anonymous, poster who is trying to make me look bad.
    Anonymous 42,789 Replies Flag this Response
  • Well i think i have same thing but much worse just a month ago i started seeing stuff which was not there and waking up in random places i woke up 50 miles from my house, i see stupid visions of me then sudenly every thing around me starts burning and i hear screams then i starts getting all wrenkled and i see some devil like figure, wat really freaked me was 1 night i woke up in town where some 1 died randomly with no explanation some time everything sudenly just stops and im only 1 moving Please help me tell me wat this is
    Anonymous 42,789 Replies
    • February 24, 2008
    • 01:27 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement