Discussions By Condition: I cannot get a diagnosis.

I think I have Cushing's - anyone help!!!

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • February 2, 2007
  • 07:28 PM

I am 36 year old female. Ten years ago I had problems for three years with severe fatigue, facial paralysis, weakness, and the list goes on. I slowly started getting better after a few years but never got the energy back. Five years ago I broke out with a severe rash, diagnosed with eczema, and I was given a cortisone shot. This helped but the rash became really bad again and three months later got another shot. This shot did not help my rash but I noticed about a week later I started getting tons of hair on my face. It grew after two weeks to about ½ inch or more long and was all the way up to my cheekbones. I got rid of the hair with creams but have been having problems with it ever since. I also some time soon after that starting gaining weight, all upper body and almost all of it in my stomach. I have continued to put on weight over the past five years and I cannot lose a pound. Although I have only put on 15 or 20 pounds to me it feels like a 100. No diet or exercise will take it off. I finally got so bent out of shape about my stomach, I could pass for eight months pregnant, that I had liposuction. It has been about a year now and my stomach looks like I am five months pregnant already. I have dieted the whole time and put the weight back on. My face is enormous but my legs are small. This past nine months I have been diagnosed with severe hypertension, high cholesterol, insulin resistance, polycystic ovary syndrome, osteoarthritis. I also had a mini stroke (they think and was in hospital last year) and have still been having some visual disturbances. I still have the eczema and I also have ocular hypertension and they almost started me on glaucoma drops. My heart races all the time and I have a small hump on the back of my neck. They did check my cortisol levels and they came back fine. It was the dexamethasone suppression test. I took just one pill and the test the next day. Does anyone know how accurate this test is. Should I have the urine test. I have had MRI of brain in hospital which was fine. I also have to see a vascular specialist for circulatory problems and I have a bone density test which showed some bone loss but not significant. I am 36 and falling apart and I am tired all of the time and have muscle weakness, fatigue, headaches, fatigue!!!!!! I feel like I am on an adrenaline rush all day, I wake up like this and it does seem to get better at night but now I am only sleeping about four hours a night five nights a week. The doctor doesn't think I look cushionoid but I have felt horrible for years and it is taking its toll! Any feedback from anyone would help especially if there is anyone who has or had Cushings. I know it is rare but I do in my heart think i have it. I have been sick for so many years and no answers and this cortisol test was my last hope and they just called me about an hour ago and said it was fine. I am crushed!!

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