Discussions By Condition: I cannot get a diagnosis.

Purple cold hands?!!!

Posted In: I cannot get a diagnosis. 36 Replies
  • Posted By: xieaualoha
  • January 24, 2007
  • 10:49 PM

Hello, this is very important to me so if anyone could help me it would be GREATLY greatly appreciated!


About 4 years ago, its was probably fall or winter, I was laying down watching tv and noticed that my toes felt funny. I rubbed them and the feeling didnt go away. I took my sock off and was scared to find that my toes were PALE WHITE. After about 10 minutes it went away. That has only happened about 4 or 5 times since then. BUT, ever since that has happened, my hands and feet turn extremely purple. It is not only a menace but it can be quite embarassing at times. I feel people looking at them and when people say "OH MY GOD why are your hands purple?!" I almost want to cry. I dont understand why they are doing this or how I can stop it. I've asked my doctor frequently what it could be and she said it looks like raynaud's. I do have almost ALL the symptoms for it except my hands do not turn white before the color change. For much of the research I have done on raynauds it said that my limbs would turn white before turning purple. I don't understand how I can match up perfectly with the symptoms and not have it. I also thought i might possibly have RSD but i did not have any injury prior to all of this happening.:confused:

Another thing i have noticed that seems to coincide with all of this, is that the heat seems to have the same reaction as the cold?! When i go out in the sun on a hot day i notice red spots on my arms and legs and my hands and feet will be bright red. The same happens when Im in the shower. How annoying can this be! Red means too hot and purple means to cold! I feel like some kind of mood ring!!:rolleyes: I CAN'T stand this! Its an uncomfortable feeling and its so embarassing I feel like im always hiding my hands, i never get to wear flip flops either. i wear gloves all the time and as a student at high school and cant always carry a blanket around i have to deal with being freezing all the time.


Another thing i need help on is that I have very bad perspirations! My hands are always sweaty and clamy (cold or hot) and my feet and my ARMPITS seems to sweat. i always wear white shirts for this reason! im tired of it. Ive tried drysol and other prescription deodorants and they just dont work!!




Please please please help! i would mean the world to me!:(

Reply Flag this Discussion

36 Replies:

  • dont worry about it my friend has it and its just weak circulation to your hands or feet. when he gets it his hands feel like ice cold and they are white. then they start turning purple. his doctor said its nothing to worry about. alos my other friend has somethign where when it gets cold out his veins contract and he starts getting bad circualtion to his hands too. if i were you i wouldnt owrry about it becaus eim sure its just that and i know alot of people that get it.
    Anonymous 42,789 Replies
    • January 25, 2007
    • 02:25 AM
    • 0
    Flag this Response
  • It is called Raynauds disease, Can be dangerous in cold, always keep hands and feet warm, I keep those hand and toe warmers with me in the winter. Also I never handle cold foods like ground beef. hope the helps...:D
    Anonymous 42,789 Replies
    • February 2, 2007
    • 00:13 PM
    • 0
    Flag this Response
  • In reply to your question regarding your hands and feet and your increase sweating. You appear to have the condition Raynauds or a form of given the mechanism is not typically the same as the more common form of Raynuads which you describe. I wonder if anyone has tested your endocrine system such as your thyroid gland function and or your adrenal gland function, both of which may lead to increased perspiration and vascular changes?Other avenues to check might include your sympathetic nervous system which governs the dialation and constriction of your blood vessels and occasionally if there is restriction of movement in your lower neck then an area called the inferior cervical ganglion can be affected causing problems with circulation and perspiration.Hope this helps and good luck.B.Babington, Clinical Director, Clinique Fusion Sante, Inc
    Anonymous 42,789 Replies
    • February 2, 2007
    • 05:54 PM
    • 0
    Flag this Response
  • Sounds like Raynauds disease to me also. I have it, and all I can say is be sure to always wear warm gloves when its cold. Also, not sure if you smoke or not but I recently quit smoking and found that the numbness and color change happen much less frequently.
    Anonymous 42,789 Replies
    • February 2, 2007
    • 06:41 PM
    • 0
    Flag this Response
  • IT IS NOT RAYNARDS!!! I have been having the same problems for the last 8 months!!my hands turn purple in the heat and cold (in the hot shower and the cold outdoors)i sweat in my armpits and my handsmy vains show in my legs and armsRaynards is when your extremities turn purple in the cold not in the heat as well. I have been diagnosed with Antiphosphiliphid Antibody syndrome. I would suggest you get tested as well!! It might help a lot of your symptoms go away!! Good luck!!! Contact me if you have any Questions!!! I have TONS of your symtoms!!
    Anonymous 42,789 Replies
    • February 3, 2007
    • 05:56 AM
    • 0
    Flag this Response
  • my feet also turn bright red at times!!
    Anonymous 42,789 Replies
    • February 3, 2007
    • 05:57 AM
    • 0
    Flag this Response
  • I am not am md, but can say that with Raynauds disease, you may likely have other forms of arthritis which can cause the reddened joints. I just wear warm clothing whenever it is cold. You may want to see a rhuemetologist.:)
    Anonymous 42,789 Replies
    • February 3, 2007
    • 11:32 AM
    • 0
    Flag this Response
  • It is probably not raynauds! I have the exact same problem, "ITS TO DO WITH CIRCULATION" when your feet and hands are purple (when its cold) it means the blood in your hands doesn't circulate in and out fast enough. When they are red (when its hot) it means that too much blood is entering your feet and hands. I saw a rhuemetologist about this and they did some blood tests for Lupus and also tested me for Raynauds, the results where that i didnt have either. I recommend seeing a rhuemetologist about this though.As for the embarassment i to suffer from this but latley have taken to the mindset of "Who cares what others think". People have better things to do than to be looking at your hands, if someone happens to ask about them tell them that your cold, easy as that and befor you know it they will have forgoten about it. Dont live your life worrying what other people think.Best of luck.
    Anonymous 42,789 Replies
    • November 5, 2007
    • 11:39 PM
    • 0
    Flag this Response
  • I've had Raynaud's for years, as well as generalized mottling on my skin (livido reticularis). About eight years ago I began to feel very fatigued, with migraines and balance problems. I went to neurologist after neurologist and eventually my 8th one found my autoimmune thyroid disease- my hormone levels had been normal the whole time...It sounds like you might have Raynaud's phenomenon as well- a sign of vascualr instability and perhaps your only clue right now that you have an autoimmune disease lurking in your body. While your autoiimune disease may not be your thyroid, there are a lot of autoimmune diseases out there, and they tend to produce Rayanud's. Please keep this in mind while searching for an answer. If I had pain more attention to this sign, I may have been diagnosed faster. Do not ignore your raynaud's- especially if you start getting bad fatigue. It can help you narrow down which specialist to go to (rheum) if you get other symptoms.-good luck
    Anonymous 42,789 Replies
    • November 7, 2007
    • 11:15 AM
    • 0
    Flag this Response
  • My hands don't turn purple, they just get ice cold even on a comfortable day. It is so bad I avoid going where I will be expected to shake hands with someone. Think funerals, weddings and job interviews. People think there is something wrong with you when your hand feels like a corpse. I also suffer from facial flushing ( just what you need when you are already embarrased)My doctor checked thyroid (normal) but I do have an enlarged heart being treated with verapamill for BP.I really believe the cold hands are caused by mental problems related to stress and social phobias. Our bodies are wired to react to perceived threats, even irrational ones. The Fight or Flight instinct shuts down blood flow to the hands and feet to feed more to the large muscles. This was a life saver 50,000 years ago when our ancestors happened upon a dangerous animal, but for me I'd rather try to fight or run with warm hands.One solution I read about is a surgery where they cut or clamp the nerve that controls the blood flow to to hand to keep it open. But there are possible side effects and it doesn't always work.I notice when I wake up from a sound sleep my hands are always warm.
    Anonymous 42,789 Replies
    • November 10, 2007
    • 02:44 AM
    • 0
    Flag this Response
  • yh i have the same thing and im only 13 and it realy worris me and the doctor said the same to me dont worri about it just eat garlic and so i eat garlic and it still aint worket and i told him and they said a nother story it realy pes me off when they get the diegnostics rong
    Anonymous 42,789 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • IT IS NOT RAYNARDS!!! I have been having the same problems for the last 8 months!!my hands turn purple in the heat and cold (in the hot shower and the cold outdoors)i sweat in my armpits and my handsmy vains show in my legs and armsRaynards is when your extremities turn purple in the cold not in the heat as well. I have been diagnosed with Antiphosphiliphid Antibody syndrome. I would suggest you get tested as well!! It might help a lot of your symptoms go away!! Good luck!!! Contact me if you have any Questions!!! I have TONS of your symtoms!!OMG... I HAVE THE EXACT SAME SYMPTOMS AND I WAS ALSO DIAGNOSED WITH ANTIPHOSPHILIPHID ANTIBODY SYNDROME!!!!!including the red feet!!
    Anonymous 42,789 Replies Flag this Response
  • I have similar symptoms, and a family history of impaired circulation. I regularly get numbness in my hands and the tips turn white, overusing my hands as I do on a regular basis doing carpentry makes the condition worse. My hands are permanently blotchy purple but so what, we all have imperfections.My suggestion to improve circulation is cayenne tablets and nettle tea. The cayenne accelerates the oxygenation of cells and increases the flow of blood. It also encourages the adrenal glands to produce corticosteroidswhich help fight inflammation among many other benefits. I believe the sweating situation particularly if strong could be a sign of inflamation, a C-REACTIVE PROTEIN test would indicate if it is elevated.I also suffer from fluctuating strong aromas from the sweat gland department.Worth checking if you have an underlying inflammation condition. Best of luck.
    Rose Garden 3 Replies Flag this Response
  • I don't understand why your doctor is "guessing" about your health. Please get a new doctor who will run some tests to confirm a diagnosis and refer you to the proper specialists. I also agree that you should see an endocrinologist for an evaluation, along with a cardiologist to ascertain if your heart is contributing to the situation.
    Monsterlove 2,921 Replies Flag this Response
  • I should have mentioned that alcohol, caffeine (both in coffee and some sodas) and smoking is to be avoided since they all constrict the arteries and obviously reduce the blood flow.
    Rose Garden 3 Replies Flag this Response
  • I know how you feel about when people ask you "why are your hands purple?" its really embarresing to say I don't know why my toes and hands are changing colors! But i still wear flip flopes to school and everything. I would seriously get checked for antiphosphiliphid cause I have uncontrolable prespiration, turn red, and purple, and have similar syptoms, its just a blood test so it can't harm to check.
    Anonymous 42,789 Replies Flag this Response
  • There is a lesser form of Raynaud's called just Raynaud's syndrome, I have it.Raynaud's syndrome is just what they call it when they don't believe you have the full blown disease, but show some of the characteristics. My hands and feet are often purple/blue, and arms and legs often look "mottled" or "speckled" with white, pink and purple spots. I have very low blood pressure and tiny veins, so I imagine that's what causes my problems. I DO get cold easily too, which is funny since I am overweight. mine dont go white 1st Things that can help:Wearing thick socks and gloves even in mild weather can help with the coldness/numbness. I often wear 2 pairs of sock just to try to keep my feet warm.Those warm packs you can buy for muscle aches, stick one in each jacket pocket and it will help keep hands nice and toasty.If like me you have problem when you have to have blood drawn, (my veins won't give any blood, it clots faster than it drips!), take a heat pack (or ask for one) and place it on the area you are having blood drawn from for at least 5 minutes before. The longer the better. And once the nurse gets the needle IN, place the heat pack back on top to keep it warm.goodluck
    Anonymous 42,789 Replies
    • October 7, 2008
    • 05:47 PM
    • 0
    Flag this Response
  • I have the exact same symptoms as the original poster. I've had it for 4 years, I think? Are you sure it's Antiphosphiliphid Antibody syndrome? If so, is it treatable? That would make me waaaaaay less self conscious.
    Griff8415 2 Replies
    • November 15, 2008
    • 06:39 PM
    • 0
    Flag this Response
  • It's Acrocyanosis.
    Griff8415 2 Replies
    • February 11, 2009
    • 08:14 PM
    • 0
    Flag this Response
  • I get this, i know how unbeliveably annoying it can be, first noticed it at school when i was 7 or 8 and a kid said 'whats wrong with your hands', they were really purple, i was like what the ***l is wrong with me!! A teacher noticed abit of fuss as kids were looking at me and she took me out assembly saying have you taken anything etc. lol i was like nooooo course i havent. Anyway this day was a cold day on the playground. I sort of forgot about it to the age of 13 and ever since then its pretty much all i think about, every day for the last 4 years i think about it. I think why cant i just be normal then i can go out with friends and wouldnt have to walk with my hands in my pockets. Went to the docter 2 years ago, 'nothing to worry about, nothing you can do its just because your tall and your heart struggles to pump blood the end of my body e.g hands and legs'.So as far as i know no cure.
    Anonymous 42,789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement