Discussions By Condition: Kidney conditions

HELP!!!!! my kidney hurts

Posted In: Kidney conditions 25 Replies
  • Posted By: Anonymous
  • January 18, 2007
  • 11:47 AM

hi,
i am a 30year old woman and since the age of 18 i have been suffering from pain in my kidneys.
this started when my twins were 1year old, i was taken to hospital in agony, i spent ten days in there and left with no diagnosis. since this epesode i have been back and forth to the doctors and in and out of hospital that much that they feel more like home than home does.
two years ago i was finaly refered to a kidney specialist as i was now suffering from extremly high blood pressure (tablets are now taken for this)
after several tests i was told that my left kidney is half the size it should be and badly scared and damaged (they dont know why) and my right one had a small cyst but not to worry about it as you can live with one kidney.
since this time i have been to the doctors 100's of times (yet again in agony) only to be given more antibiotics and pain killers.
over christmas i have been to the doctors four times and taken into hospital for 3 nights, i have nearly allways got protien in my urine but this time there was also blood, my blood tests showed there is inflamation somewhere in my body but they didn't know where. yet again they gave me a load of antibiotics and sent me home (undiagnosed)
the doctors keep giving me antibiotics but at the same time telling me there is no sign of an infection.
so far in this the doctors have suspected IBS, APENDIX, BLOOD CLOT, LUNG INFECTIONS, GAS, STOMACH ULCER AND A PULLED MUSCLE OHHHHHH and several urine infections,
i am waiting on the results of a stomach ulcer at the moment (from my last stint)
i asked the doctor recently about what the specialist said in his report about my kidneys as i am not entirely sure, his words were "they just dont know"
i am at the end of my tether with all this.
i am fed up with spending night after night crawling around the bedroom in agony and nothing reliving the pain, it is absolute agony at times, i am constantly aware of my kidneys as every day for the last 8months to 1year my right one as ached all day/night long, i can cope with this as i have learned how to, it's the blows of feeling like someone has there hand deep inside squeezing the air out of my kidney.
Private bit: i havn't been able to have sex in months as every time we try, it feels like something is going to burst inside, (extreem pressure)
it used to be one side or the other but now they play me up at the same time, im so tired of all this but my doctor still has no answers,
can any one help me on what to do next?
from a desperate soul.

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25 Replies:

  • Well my sister in law had about the same issues and they are putting a box in her that is going to send electrods in her so she doesnt feel so bad at the Cleveland Clinic. I hope that helps.I hope you get better.
    lizzi9983 35 Replies
    • January 18, 2007
    • 11:18 PM
    • 0
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  • hi,have u managed to get any answers?my left kidney functions at 15%, but for the last 3 yearsi have been having pains on both the left & right kidneys...i've had a load of tests, but they all indicate my right kidneyis ok, but my pains carry on, still no answers...i also get abdominal & chest pains, i've had blood, urine, heart, kidney IVP, x-ray tests,but they all indicate that everything seems ok...just wish thepain would stop!!
    Anonymous 42,789 Replies Flag this Response
  • Ask if it is Loin Pain Hematuria Syndrome. It took me 3 1/2 years to get a diagnosis with similar symptoms. May not solve anything, but at least you might have a name for whats going on. If it is LPHS antibiotics will not do anything for you. See a kidney specialist and keep on asking what is wrong. Try keeping a journal of your symptoms and give the pain a rating of 1-10 so you can show your dr/s. I hope it all works out for you - good luck!
    Anonymous 42,789 Replies
    • December 14, 2007
    • 02:39 PM
    • 0
    Flag this Response
  • I'm not sure if any of you have received answers to your questions, but I have a lot of the same problems as you. Unfortunately, I must live with mine as there is no treatment and I have only learned to moderately manage it. That may be the case with you. Please have your doctor/specialist look into it. I was sent to a Urologist and a Nephrologist for my kidney pain, recurring kidney stones (every 12 - 18 months, OUCH!!!) and blood in the urine. My Urologist diagnosed me with sponge kidney (MSK). Look it up. Sort of difficult for me to explain but the medical sites explain it well. It can be painful and cause a lot of stones and blood in the urine, hence my problem. My Nephrologist diagnosed me with Nephrolithiasis (frequent kidney stones), ha, ha... Secondary to the MSK. There's a shocker. He ran a bunch of tests. Here's a hint... If you live in a sunny state such as Florida, Arizona, Texas, etc., you may be putting yourself at risk for additional stones. The sun causes your body to produce Vitamin D and kidney stones can be caused by excessive Vitamin D in the body (according to my Nephrologist). So sunlight coupled with your dietary intake of Vitamin D can cause an excessive amount of the vitamin in your body. I have also found that prolonged sitting in one position, such as long car rides, or watching TV or my daughter's sporting events can cause my kidneys to hurt if I don't move around enough. I suppose it's the sedintary position and the pressure on the kidney area from the backrest? Not sure. However, when I do get up and move around, the pain subsides. When my kidneys just ache for no reason and I'm up and about, I find that flushing them with pure cranberry juice helps tremendously. Don't buy crangrape or cranapple because the citrus and other acids will only aggravate your kidneys more. However, cranberry juice works great but by itself is too sweet for me so I do mix it with water to dilute it. I hope this helps all the kidney pain sufferers. It's not a permanent fix but it does seem to help me.
    Anonymous 42,789 Replies
    • January 5, 2008
    • 10:39 AM
    • 0
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  • im 20 yrs old n i too suffer from kidney pain...my left one especially i can be sitted for too long or do much... once the pain was too much that i almost had tears coming down my eyes... i once drank bacardi 151 w coke n wen i peed my kidneys hurt sooo bad...idk wats wrong
    Anonymous 42,789 Replies
    • January 21, 2009
    • 08:13 AM
    • 0
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  • You should see a Chinese doctor. They can help you I think. Beside, meditation is working too. Best luck!
    Anonymous 42,789 Replies Flag this Response
  • I too have chronic kidney pain, but I have a diagnosis. I have Polycystic Kidney Disease. There are fluid filled cysts surrounding both my kidneys; however, the right one is the most painful. I will eventually need dialysis or a transplant, but for now I am in Stage 2. I do wonder if the amount of pain I have is normal for Stage 2, but my nephrologist has not been very informative. He says he won't address my pain issues until I am in end stage failure. So my regular doctor prescribes pain meds - which doesn't always help. I have recently started using a 50mg Duragesic patch that seems to work better in combination with the other pain meds. All it takes to diagnose PKD is an ultrasound. I hope you get the answers you are looking for.
    Anonymous 42,789 Replies Flag this Response
  • hi,i am a 30year old woman and since the age of 18 i have been suffering from pain in my kidneys.this started when my twins were 1year old, i was taken to hospital in agony, i spent ten days in there and left with no diagnosis. since this epesode i have been back and forth to the doctors and in and out of hospital that much that they feel more like home than home does.two years ago i was finaly refered to a kidney specialist as i was now suffering from extremly high blood pressure (tablets are now taken for this)after several tests i was told that my left kidney is half the size it should be and badly scared and damaged (they dont know why) and my right one had a small cyst but not to worry about it as you can live with one kidney.since this time i have been to the doctors 100's of times (yet again in agony) only to be given more antibiotics and pain killers. over christmas i have been to the doctors four times and taken into hospital for 3 nights, i have nearly allways got protien in my urine but this time there was also blood, my blood tests showed there is inflamation somewhere in my body but they didn't know where. yet again they gave me a load of antibiotics and sent me home (undiagnosed) the doctors keep giving me antibiotics but at the same time telling me there is no sign of an infection.so far in this the doctors have suspected IBS, APENDIX, BLOOD CLOT, LUNG INFECTIONS, GAS, STOMACH ULCER AND A PULLED MUSCLE OHHHHHH and several urine infections,i am waiting on the results of a stomach ulcer at the moment (from my last stint)i asked the doctor recently about what the specialist said in his report about my kidneys as i am not entirely sure, his words were "they just dont know"i am at the end of my tether with all this.i am fed up with spending night after night crawling around the bedroom in agony and nothing reliving the pain, it is absolute agony at times, i am constantly aware of my kidneys as every day for the last 8months to 1year my right one as ached all day/night long, i can cope with this as i have learned how to, it's the blows of feeling like someone has there hand deep inside squeezing the air out of my kidney. Private bit: i havn't been able to have sex in months as every time we try, it feels like something is going to burst inside, (extreem pressure)it used to be one side or the other but now they play me up at the same time, im so tired of all this but my doctor still has no answers, can any one help me on what to do next?from a desperate soul.Next time you go to the doc tell them that you don't need to be treated for a kidney infection you need to be treated for something like it and thats their thing to try and figure that out I can't remember what exactly its called but I had it and the anitbiotics made me feel like a million bucks it was hard to go to the bathroom at some points hurt really bad and everything but as soon as the put me on the meds it didn't work for like 2days then I started feelin better and I quit drinkin that helped out alot also!!!!!
    Anonymous 42,789 Replies
    • December 7, 2009
    • 06:36 AM
    • 0
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  • way out there, but endometriosis? not all endo has classic period related symptoms.
    Anonymous 42,789 Replies
    • December 28, 2009
    • 04:44 AM
    • 0
    Flag this Response
  • way out there, but endometriosis? not all endo has classic period related symptoms. I didn't write the original post but I may as well have. My symptoms are pretty much identical. I've been through every test and I have a colonoscopy Monday. To the person that said maybe endo...is that based on anything? I really think that's what my problem is and I want somebody to go in there and figure this out. My mom has a severe case of endo.
    disturbed 77 1 Replies
    • January 16, 2010
    • 04:06 AM
    • 0
    Flag this Response
  • I also have the same symptoms. Acupressure has helped in taking away the pain. I can say that I have a better life right now and the pain is just a distant memory. Though at times I am still afraid that it comes back. I understand your pain. I find the experience traumatic. I have suffered for a long time and im glad I found a way to manage it.
    Anonymous 42,789 Replies
    • January 28, 2010
    • 01:06 PM
    • 0
    Flag this Response
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  • Won't go into details, but beware of normal lab results. My mother was sick for at least two decades before receiving a diagnosis of lupus, which came only after her fingertips and toes turned black sending her into intensive care. This was eleven years after her brain swelled, nearly killing her, requiring the implantation of a shunt. Never in all the years leading up to these life threatening episodes did she receive an abnormal test result, other than that of high blood pressure, for which she was successfully treated. How can your brain shut down, and your peripheral capillaries collapse with no chemical indication of a problem? But that is the reality. The women in my family are cursed, my mother's health following a similar pattern of her mother, basically a decline of wellness that begins in earnest in the mid forties. But diagnosis is non existent. I am following a similar path. One of my daughters is showing early tell tale symptoms that alarm me. Before receiving a diagnosis of severe Vitamin D deficiency two years ago, I figured I would be dead in a year or two, or hoped. I just felt horrible all the time, always tired, unable to sleep, mental impairment, shortness of breath, pounding heart, and pain in my back, then hips that was nearly crippling me ( I had purchased a walking stick so my husband and I could continue to hike, but it was a poor substitute for painless locomotion- I used it once). Even so, I was a picture of health by current diagnostic testing. So do not expect the medical community, as clearly you have already discovered, to heal you. Do your own research for every possible solution. Had I not basically lied to a doctor, telling her that I suffered from a malabsorption disorder, which was true but I had never been officially diagnosed, I do not know if the Vitamin D defiiency would have been discovered (though it is the new "it" condition for older women-many are now prescribed Vitamin D though the level of symptoms for which it is proscribed varies greatly). The supplement has changed my life, reducing the bone pain and completely correcting the mental impairment, BUT, and it's a big but, every time I take it I suffer kidney pain which my doctor, of course, pooh poohs. So I drink my cranberry juice, as I have for kidney and bladder pain in the past, and ignore it because nothing shows up on standard lab tests. ONE MORE NOTE ON THE KIDNEY FRONT: I am a retired x-ray tech. As a tech we had to check creatinine and BUN results, clear indicators of kidney disease, before injecting patients with a chemical that was quickly excreted by the kidneys, illuminating them for x-ray imaging in the process. Twice I had patients, both women, who had normal results clearing them for injection, but whose kidneys subsequently failed to "illuminate" on the x-ray images. This lack of "illlumination" was indicative of kidney failure. One died the next day, the other's fate I do not know. Both had creatinine and BUN levels within normal ranges, but the patients themselves were not enjoying normal, as in good, health. In fact, the purpose of this test was to identify problems, cysts, tumors, abnormalities, that were not indicated by the lab tests. So much for blood tests.
    Anonymous 42,789 Replies Flag this Response
  • hi, its for every one of who is suffering from pain. Try this it will definitely help u all n assure u gud health but htis therapy needs to be done without fail and regularly.Drink 1.5 lit of water at 3.00 AM in the morning and repeat the same at 6.00 PM in the eve.Remember not to take any sort of solid and alcoholic food before 3 hrs and after 45 min of drinking.results hyperacidity- 4days kidney stones-2 weeks ulcers and UTI-3 weeks TB-90 dayscure for all diseases.............. thank god.
    Anonymous 42,789 Replies Flag this Response
  • My left kidney only worked 6% so i had to get it removed because it produced hormones that caused my blood pressure to rise VERY high! I had the surgery in oct. of 09 and I JUST WANT TO SAY THAT IT IS SOOOO DIFFERENT LIVING WITH ONE KIDNEY!!!! -i can’t do as much activities-the right one hurts alot!-my menstrual periods hurt like nothing before-every time i stand up everything turns black in my eyes and then gets back to normal.those are just a few things i experience living with one kidney! those things have never happened to me before the robotic nephrectomy.i am 16, this would never had happened if doctors took one single UTI seriously. when i was 2, urinary tract infection scarred my left kidney and i found out that it was the size of a 2 month year old baby when i was 15. any suggestions?
    Anonymous 42,789 Replies Flag this Response
  • mine hurt a lot too, but then i started seeing a homeopathic massage theripist and a accupuncture dr and now i am feeling a lot better. good luck.
    Anonymous 42,789 Replies Flag this Response
  • You should try a Traditional Chinese Medicine Doctor,Acupressure, orAcupuncture. When I had undiagnosed pain a few years ago, noWestern medicine could find anything wrong or help me and within 3 visits (2 weeks)I coudn't remember what my main complaint had been.Even if you are working with a regular doctor, the Chinense doctor can help you manage the pain.Good Luck.It's not right that you should be livingwith all that pain especially when you have 2 kids that need you.
    Anonymous 42,789 Replies Flag this Response
  • My left kidney only worked 6% so i had to get it removed because it produced hormones that caused my blood pressure to rise VERY high! I had the surgery in oct. of 09 and I JUST WANT TO SAY THAT IT IS SOOOO DIFFERENT LIVING WITH ONE KIDNEY!!!! -i can’t do as much activities-the right one hurts alot!-my menstrual periods hurt like nothing before-every time i stand up everything turns black in my eyes and then gets back to normal.those are just a few things i experience living with one kidney! those things have never happened to me before the robotic nephrectomy.i am 16, this would never had happened if doctors took one single UTI seriously. when i was 2, urinary tract infection scarred my left kidney and i found out that it was the size of a 2 month year old baby when i was 15. any suggestions?I am 21 and also suffer from kidney pain. I will be fine for a few monthes and then undergo an "attack". I also have had many tests done only to have the doctors say that I am probably passing stones, even though they never show up on the scans that they run. Im wondering if I have a scarred kidney as well. When I was younger I frequently got UTIs. Im curious if that is where all this originated.
    Anonymous 42,789 Replies Flag this Response
  • i am a 19 year old girl i was diagnosed with ckd at 6months old so have been living with it all my life i am prone to urine a kidney infections and know exactly what you mean about the pain it is absolutly unreal you need to go back to your doctor and demand he gets you an emergancy app at the hospital so they can check you out and find out exactly what the problem is
    Anonymous 42,789 Replies Flag this Response
  • I'm in agreement with the endometriosis. I had what I thought was kidney pain for months and months, turned out that off all of the tests, nobody though to check that. While at an OB visit for an annual, I explained my pain, he immediately scheduled an internal ultrasound which saw what we thought was a growth on my ovary. Turns out my colon had fused itself to my ovary. Once I had the 'kink in my hose' alleviated, the pain was gone. I should have gone to the OB in the first place so I could save all of that money I spent on all of the other tests.
    Anonymous 42,789 Replies
    • August 19, 2010
    • 00:39 AM
    • 0
    Flag this Response
  • Hi , how are u , i am male 30, sound health , never smoke , never drink. A+ blood group. really want to sell my kidney. just serious buyer pls. oaqab1980@gmail.com 0060126270197
    Anonymous 42,789 Replies
    • September 25, 2010
    • 03:48 PM
    • 0
    Flag this Response
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